Hi guys. Just wanted to update.: After I got my... - Thyroid UK

Thyroid UK

137,936 members161,765 posts

Hi guys. Just wanted to update.

Dshadzz07 profile image
8 Replies

After I got my results the other week I’ve now been put up to 100mg Levo (accord brand) officially. I started about 5 days ago, so hoping for better things to come to lower my levels.

I’ve been really anxious and even more depressed the last week since upping my dose though, whether that’s related or not. Even bad weakness in my legs feeling I can’t walk much just making my anxiety so much worse thinking I’m dying. I don’t know if maybe as I’m tapering off my antidepressant might be effecting things too. My head is all over the place, I just don’t know where to think. My life just feels shit.

Written by
Dshadzz07 profile image
Dshadzz07
To view profiles and participate in discussions please or .
Read more about...
8 Replies
Recon profile image
Recon

Hang in there - this thyroid journey is a long-haul adventure. There is a lot of support here - and know that "this too, shall pass" - and it will get better. Sometimes it just takes a lot of figuring, and that figuring is a very slow process. I know I was not used to things moving so slowly (as in getting to the right place for me right now), but I do know that the road was long and sometimes dark, it eventually did unwind and I am now fine (at least for today!) Again, hang in there!

Lalatoot profile image
Lalatoot

It is common to feel worse when you increase before you feel the benefits. This makes increasing hard. Too many times I have given up on an increase I really needed because of those bad few weeks. And of course I've then had to increase and go through them

It helped me to split my levo dose taking some morning and night. This is gentler on the body.

woofa27 profile image
woofa27 in reply to Lalatoot

Interested in how you went about making the split, did you change to two doses or just split your usual dose into two doses from day one?

Lalatoot profile image
Lalatoot in reply to woofa27

I felt ill when I tried to increase from a starter dose of 25mcg so the endo suggested taking a separate dose later. From then I have always taken more than 1 dose of levo . At one time I split it into 3 doses but this didn't fit in well with my daily routine so I went back to 2.The doses have not always been of equal size. Just depended on the total daily dose I was on. The GP has supported this by prescribing the correct tablets ie my current dose is 50mcg x 2 daily.

There is a thought that a total daily dose in 1 go is detrimental to some. Our body has a protective mechanism that when ft4 gets too high it starts to convert more t4 into reverse t3 to prevent ft3 getting too high - like a safety valve on a pressure cooker. The trigger level of ft4 for this to happen is individual. The theory is that for some the peak spike of a total daily dose taken in one go is enough to trigger the body into this poorer conversion reverse t3 safeguard. So for some conversion is improved by taking several smaller doses daily as this means the peak spike of the lower dose never reaches that trigger.

woofa27 profile image
woofa27 in reply to Lalatoot

Thanks so much for this, I think reverse t3 maybe whats happening to me, I'll feel better on a higher dose for a brief moment and then it all feels worse than ever, but drop the other way and even worse again - it feels like a lose lose situation. ☹️

Lalatoot profile image
Lalatoot in reply to woofa27

I would try splitting your dose in that case.

woofa27 profile image
woofa27 in reply to Lalatoot

Got to be worth a try! Though I have to say, I'm pretty scared of any changes and yet scared to stay where I'm at too! Thanks for the advice lalatoot!

woofa27 profile image
woofa27

And you've got this Dshadzz07! Coming off anti depressants takes time, but you're doing the right thing tapering and your body will adapt. I hope you start feeling more like yourself again (the well version that is) really soon. Hold on in there, you're doing good!!! 😃

You may also like...

Just wanted to say Hi 👋

asleep! I’m so tired but I’ve been researching so much due to an Upcoming Endo appointment next...

Hi guys new here, looking for advice please :)

and in the last few days I’ve now starting getting pain in my feet too. I’m currently recovering...

Just thought I’d update

thought I was dying, and my endo was just like “oh let’s just see how it goes” I’ve tried so hard.

Hi guys.

managing this at all feeling okay ish in day but evening are horrible. My breathing gets harder I...

Hi Guys, Need Advice

like rubbish on levo, no energy, pilling on the Weight while exercising 3 times a week and playing...