Slow Release T3: Hello again all, Are there... - Thyroid UK

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Slow Release T3

Thyroid_mum profile image
15 Replies

Hello again all,

Are there any thoughts on Slow Release T3? My DR wants to try me on compounded Slow Release T3 to avoid peaks and troughs to see if this helps stabilise my moods more.

What are the costs like for this T3 option and can you get it prescribed through the NHS?

Many thanks

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Thyroid_mum profile image
Thyroid_mum
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15 Replies
humanbean profile image
humanbean

I don't have any experience of slow release T3, and I have wondered whether it will work.

Doctors have been brainwashed into believing that TSH must never go out of range, also Free T4 and Free T3 must never go out of range and should preferably never be too close to the ends of the range.

They constantly try to squeeze patients into these tight little boxes despite the fact most patients take Levo once a day, and don't take T3. Why they expect patients under these circumstances to have results like those of healthy people I really don't know. (Healthy people produce tiny amounts of TSH, Free T4, Free T3 throughout the day and night which must produce completely different blood test results to those from people with thyroid disease.)

I think slow release T3 might not work (from a patient's point of view). I take Levo and T3 in the morning, and I suspect that the very brief burst of high in range or over the range T3 that I might get from taking T3 might actually be an essential part of the process of my body coping with a dodgy thyroid.

But who knows. I don't. I doubt the inventors of slow release T3 do either. They will have concentrated on blood test numbers not symptoms or patients. I will have to wait for guinea pigs to test it out and report their experiences back to other patients.

Vasiliki99 profile image
Vasiliki99 in reply to humanbean

I have taken T3 before and I did feel a bit quiker although not much better , the GP ijn the UK stopped prescribing and it cost too much private. UNFORTUNATELY as u say the ranges done reflect ow you feel physcally and thats true.

Anthea55 profile image
Anthea55

Looking at previous posts about Slow Release T3, it seems unlikely that you'll find it in the UK. Here's a post which shows that it was obtained from a private doctor who had it made up abroad and imported it for his patients.

healthunlocked.com/thyroidu...

Thyroid_mum profile image
Thyroid_mum in reply to Anthea55

apparently compound pharmacies do it 🤷🏼‍♀️

I’m waiting to hear back from my gp to see if I can be prescribed 🤞🏼

Anthea55 profile image
Anthea55 in reply to Thyroid_mum

Probably only on private prescription. You could try the pharmacies listed on the Thyroid UK website.

thyroiduk.org/if-you-are-hy...

Vasiliki99 profile image
Vasiliki99 in reply to Anthea55

Thanks 😊

Lotika profile image
Lotika

I have no idea whether the NHS would prescribe slow release T3 or not, in all honesty. However, my general view is that slow release T3 would be a good thing, as it might save us some peaks and troughs. I take T3 in the morning with T4 and a little more T3 in the afternoon. I've done a peak blood test, so I know that my T3 does not go over range 2 hours after taking it, which is, I'm told, the point of maximum absorption, but I do feel myself slump if I take my afternoon T3 too late or if I forget it. I'd prefer one slow release tablet a day, with that in mind, because it makes life easier. I so often forget to take my second T3 at the right time.

TiggerMe profile image
TiggerMe

helvella put a paper on about this the other day, saying that NDT is slower release due to the way the body has to access it(my take of the whole paper in a nutshell 😉 I only have limited brain storage!)...but they won't prescribe it to you on the NHS 🙄

helvella profile image
helvellaAdministratorThyroid UK in reply to TiggerMe

I think it was diogenes !

TiggerMe profile image
TiggerMe in reply to helvella

Whoops, soz... I bet you know where to find it though 🤗

So many clever folk to choose from 😊

TiggerMe profile image
TiggerMe in reply to helvella

Don't faint.... I have found it!!!

healthunlocked.com/thyroidu...

Had-enough profile image
Had-enough

I take slow release T3, along with T4, and have done so for the past six years. It works for me. I get a private script for the T3.

Thyroid_mum profile image
Thyroid_mum in reply to Had-enough

Thanks for replying. How much is the private script?

Popoff profile image
Popoff

Hi, I am currently taking slow release T3 having earlier tried T3 along with T4. My body found it difficult to cope with T3, so I tried the slow release T3 which is compounded and works very well for me. I avoid the sudden burst of energy that the T3 tends to give you and get the benefits of adding T3 to my T4 medication. I get the SRT3 with a private prescription. I hope that this helps.

radd profile image
radd

Thyroid_mum,

I have no experience of SR-T3 or any evidencing literature but seem to remember reading something about the slow release sometimes being released in a part of the GI tract where absorption wasn’t so great, resulting in plummeting T3 levels.

We are told to take our meds with a glass of water that whooshes them down to the right place (although where that is I have no idea 😬).

Maybe others will comment on this.

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