Diagnosis : Hi all, I'm new to the Thyroid club... - Thyroid UK

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Diagnosis

nicolalou89 profile image
7 Replies

Hi all, I'm new to the Thyroid club 😓 33 years old and I'm terrified, my doctor said that I have no other/very tiny traces of hormone in my body at the moment by Thyroxin. It's added with 140bpm heart rate and high blood pressure. I started taking Verapamil 40mg last night when I got home and today I feel completely exhausted. Has anyone else had a bad case of this and have any wise words to possibly make me stop worrying so much. I have a horrible family history of heart disease and I'm worried it's going to happen to me too.

Just can't seem to catch a break recently.

Thank you for reading my rant ❤️

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nicolalou89 profile image
nicolalou89
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7 Replies

Hi Nicolalou,

Welcome to the club! It's a bit crap but you're in excellent company.

Do you have any blood tests you can share with us? Specifically TSH, Free T4, and Free T3?

If you have virtually no hormones you'd be virtually dead. So I think there is likely a misunderstanding somewhere. :)

Do you take thyroxine at the moment? If so, when did you start? what is your dosage?

nicolalou89 profile image
nicolalou89 in reply to

I don't at the moment I'm afraid, I only received my diagnosis yesterday evening 😳 they haven't put me on Thyroxin yet but I'm back on Friday for my 3rd round of bloods and hopefully a prescription! I'm taking Verapamil for my ridiculous heart rate and blood pressure so hopefully they'll start to kick in soon

in reply to nicolalou89

Do you have online access to your medical records? If not, you can ask the receptionist for a print out of your results. You're legally entitled to them so you're allowed to ask. :)

Once you have your results post them here and members can comment properly on your results.

I know it's a big shock to the system now but this is the first step in regaining your health. You've 100,000 cheerleaders here! We'll be with you all the way. :D

PurpleNails profile image
PurpleNailsAdministrator

Welcome to forum.

Your doctor may mean your thyroid stimulating hormone (TSH) is undetectable.

Your thyroid hormones may not have been tested, but often when the TSH is low thyroid hormones (FT4 & FT3) are high.  

Having a high thyroid levels cause high heart rate. Heart rate lowers if hypothyroid, but symptoms can vary considerably.

Hyperthyroidism common symptoms are Hand tremors, Weight loss.  Nervousness.  Fast heart rate.  Trouble sleeping.  Brittle nails, Muscle weakness.  Irritability.  Weaker or less frequent menstrual periods.

A specialist usually manages further investigation & treatment, usually starting with anti thyroid medication. 

With  HypothyroidismSymptoms include   Constipation.  Fatigue.  Cold sensitivity.  Weight gain.  Dry skin.  Forgetfulness.

If FT4 & FT3 levels are very low a GP can start replacement & repeat test in 6-8 weeks.

nicolalou89 profile image
nicolalou89 in reply to PurpleNails

Hi all, just sat back in the Drs waiting room now I've put a picture on of my results from the 13th. I don't understand it at all so hopefully you guys can make sense of it

Blood Results
PurpleNails profile image
PurpleNailsAdministrator in reply to nicolalou89

Wow.  They are some very high levels 

TSH <0.02 mU/L 0.30 - 4.50 This is low. The TSH is a pituitary hormone which signal thyroid to produce.  When thyroid levels are high it lowers as a signal to reduce.  but for some reason the level are rising.  

“TSH Receptor Antibodies (TRab) added on by the lab.”

This result is likely pending, as result not showing & it’s a specialist test which often takes longer to process.  Excellent that it automatically been added. Check back for result.  TRab is a antibody which signifies Graves disease a autoimmune condition which cause continuous stimulation and would explain very high thyroid levels.  It’s the most common cause of continuous hyper.

Your looking for a result & a range such as 0 - 1 or <1.  If result if over upper limit it’s positive for condition.  I would be very suprised if it was negative.

Free T4 76.3 pmol/ (11.0 - 22.0) 593.64%

Free T3 33.5 pmol/L (3.1 - 6.8) 821.62%

Your thyroid levels are very high.  Graves level often reach 3x normal range your are 5x for FT4 & 8x For FT3.

Your GP needs to liaise urgently with specialist and you need to commence an antithyroid medication.  Usually carbimazole is 1st choice, Propylthiouracil PTU is used is carbimazole not suitable.

nicolalou89 profile image
nicolalou89 in reply to PurpleNails

Thank you PurpleNails I really appreciate it. I've been urgently referred to a specialist but my DR today said that it could be after Xmas now. There was an infection marker in my blood today and something popped up about my liver so also got a referral for an ultrasound to make sure that's not where the infection is lying. Thank you for all of your help, it's comforting knowing there are people with alot more knowledge than me willing to help ❤️

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