Diagnosis: I have been back and forward to dr... - Thyroid UK

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alimariebell profile image
10 Replies

I have been back and forward to dr feeling very ill and they have taken my tsh a few times going from high 3 to high 2 a few times. This time they tested a few new things and althoug im lower tsh im also showing other problems i would love to hear what others think. Also showing top of range in crp and serum visocity so infection or swelling.

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alimariebell profile image
alimariebell
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10 Replies
SeasideSusie profile image
SeasideSusieRemembering

I'm just about to log off as 11pm is my limit (!) but your B12 and ferritin are very low - ferritin should be at least 70 for thyroid hormone to work (our own or replacement) and B12 above 500.

Your FT4 is very low compared to your FT3 - do you take any thyroid replacement hormone?

alimariebell profile image
alimariebell in reply to SeasideSusie

No as they have only taken tsh before drs were not very interested. Im hoping these results might be enough to get help. Thanks for the reply

Marz profile image
Marz

Anti-bodies ? Perhaps they need testing ....

SlowDragon profile image
SlowDragonAdministrator

Your B12 is very low so your GP should run test for Pernicious Anaemia before starting on B12 injections

Ferritin is also very low and you need full iron panel to test for Anaemia

Both these can be problems in their own right or as result of having autoimmune thyroid disease. (Hashimoto's)

GP should test for raised Thyroid antibodies - TPO and TG antibodies

Also ask that they check vitamin D too. Very common to be too low as well

alimariebell profile image
alimariebell in reply to SlowDragon

I had thought hashimoto before and both my plasma visocity and c protein are up which shows infection. I also twice in last 6 months have come out in petachaea

SlowDragon profile image
SlowDragonAdministrator in reply to alimariebell

If you test positive for Hashimoto's at any time in past that means the cause is Hashimoto's.

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

But don't be surprised that GP or endo never mention gut, gluten or low vitamins. Hashimoto's is very poorly understood

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

Ideally ask GP for coeliac blood test first

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alimariebell profile image
alimariebell in reply to SlowDragon

Got my vit d result today which says im severely depleted.

SlowDragon profile image
SlowDragonAdministrator in reply to alimariebell

So has GP prescribed loading dose vitamin D?

Look up your local CCG guidelines on vitamin D deficiency

oxfordshireccg.nhs.uk/profe...

Has you had test for Pernicious Anaemia before first Vitamin B12 injections.

Insist they run coeliac and thyroid antibodies tests

alimariebell profile image
alimariebell in reply to SlowDragon

just had all results this week drs 21st. I want to full of knowledge

alimariebell profile image
alimariebell

Thank you

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