Thank you for your reply SD.I was splitting the T3 as 3 x daily. When I was on the 15mcg I was feeling a little wired!
I informed my Specialist about GP concerns and she has advised to reduce back down to 7.5 mcg (2.5 x 3 daily) and bloods done in 7 weeks.
I have adopted this approach and am feeling ok ish.
Temp 36.5C, average resting HR in the lower 60s (excluding nocturnal bradycardia) and Blood Pressures in normal range. However, I am suffering from lots of belching and burping since starting the T3, not sure if that's a side effect or linked to some other issue. Any thoughts?
No not dairy free or gluten free. Levo usually 100 mcg accord and 25 mcg Northstar, never any noticable problems with these over the last few years. Only noticed burping issues since introducing Thybon Henning T3.
the 'limit' is an artificial limit that the NHS in some areas have decided they will not prescribe over .. it is not a 'medical' limit .. some people take more than your 50mcg if they have private prescriptions or if they self source their T3. (and in some areas the NHS may well be prescribing more than 50mcg to some people . but i'm not totally sure about that)
May I start here first! I've just checked your last post which included this comment from your endo
The last TSH ( mid November) was nicely in the lower half of the normal range and therefore I cannot recommend an increase in the Levothyroxine unless your thyroid function has changed. We do not increase the dose of Liothyronine- that is a standard dose.
It's not much help is it!!
So he thinks 50mcg is a standard dose....no wonder you are questioning this. Never heard if a " standard dose"!
Oh dear....they are prescribing based on TSH which science shows is not a reliable marker. This endo is clueless...he is putting the cart before the horse!
Do you have any lab results to hand...if not you are legally entitled to request copies.
You say your dose is 75mcg levo and 50mcg T3.
Surprising you were given T3 when still only on 75mcg levo...we advise that FT4 should first be well into the top quartile/ around 75% through reference range, before adding T3.
75mcg levo is not a large dose...
Before adding T3 did your endo not suggest an increase to 100mcg followed by another test 6/8 weeks later to see if FT3 had risen. You could have repeated that with 125mcg levo. If those Levo increases failed to improve your symptoms then T3 should have been added
In other words it looks as if this endo didn't increase levo enough before adding T3! His reliance on TSH as a marker may have caused this!
Were you advised to optimise vit D, vit B12, folate and ferritin to support thyroid function aand conversion
To get to your question...
I self medicate with T3-only , out of necessity, so don't depend on a prescription but there is no cut off point for medication....we need what we need!
However, the average dose lies somewhere 5mcg and 75mcg daily. Some health boards possibly set a limit 50mcg. ? I really don't know much about that ... but the limit seems to be more for financial reasons than medical!!. T3, bought by the NHS, has become rediculously expensive.
Establishing a therapeutic dose is the challenge....and obtaining a prescription for that dose of T3 can be an even greater challenge....if not impossible
Some of us need ( much) more, in my case I have a form of Thyroid Hormone Resistance and need the large dose to overcome tht resistance....it's all in my bio.
To answer your question my current dose is 112.5mcg daily....a supraphysiological dose.
I suggest you start by having a full thyroid test to include....
TSH, FT4, FT3, vit D, vit B12, folate, ferritin and antibodies TPO and TG
Many of us have to do this privately ...since NHS will not!
I had a full private test in July 2022 of the following and I have booked a full one for Friday through the Endo Team in the hospital
TSH - 0.62 Ranges 0.27 - 4.2
Free T3 - 4.6 Ranges 3.1 - 6.8
Free Thyroxine - 14.8 Ranges 12-22
Thyroglobulin Antibodies - 202 Ranges <115
Thyroid Peroxidase Antibodies - 169 Ranges <34
After just looking on my box I have realised I'm not on 50mg Liothyronine and Im actually on 10 mg (sorry I have complete brain fog today and struggling to get my brain to catch up!) Its what I sent on my email to the Endo team too so that might be why they responded about the limit too, so now I will have to chase that mistake tomorrow... feeling very frustrated that I have to fight all the time for symptoms to be recognised by the NHS.
I will post up what my tests says when I get the results from Friday morning, thank you so much for helping and all the info and I will try and get a full vitamin test asap too.
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