hi all, just looking for some advice really. Starting in June I started feeling funny, racing heart for no apparent reason like I was stuck in fight/flight , fatigue,chest pains,d,izziness,pins and needles in hands and feet,brain fog and angry all the time.I've visited gp around 4 times each time I get referred for ecg which shows up ok, they then prescribed me ppi for acid reflux which haven't helped. I recently had blood test for thyroid and vitamin deficiency my gp called to say results were fine. I am going to request a copy of the results but in the meantime any help would be much appreciated..
just looking for advice : hi all, just looking... - Thyroid UK
just looking for advice
welcome to the forum
Are you already on levothyroxine……or not diagnosed at all?
How long have you been taking PPI have you been taking PPI every day?
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.
Very important to test vitamin D, folate, ferritin and B12 at least once year minimum
Being within range, is not the same as optimal
You’re legally entitled to copies of your results and ranges
Were your tests done early morning?
About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies
Autoimmune thyroid disease with goitre is Hashimoto’s
Autoimmune thyroid disease without goitre is Ord’s thyroiditis.
Both are autoimmune and generally called Hashimoto’s.
Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis
In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)
Recommended on here that all thyroid blood tests early morning, ideally just before 9am and (if on levothyroxine) last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
List of private testing options and money off codes
thyroiduk.org/getting-a-dia...
Medichecks Thyroid plus antibodies and vitamins
medichecks.com/products/adv...
Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins
bluehorizonbloodtests.co.uk...
If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3
£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code
thyroiduk.org/getting-a-dia...
NHS easy postal kit vitamin D test £29 via
Only do private testing early Monday or Tuesday morning. Watch out for postal strikes, probably want to pay for guaranteed 24 hours delivery
Link about thyroid blood tests
thyroiduk.org/getting-a-dia...
Link about Hashimoto’s
thyroiduk.org/hypothyroid-b...
Symptoms of hypothyroidism
thyroiduk.org/wp-content/up...
thank you for the quick response. Sorry I am not diagnosed just at the end of my tether nd my gp is of no use. I have gone from playing football to hardly being able to get up the stairs without feeling dizzy,heart racing and pulse pounding out of neck.
Yes took ppi for 2 months everyday,weaned myself off and been off them for 3 weeks.
tests were done at 9am
I have ordered one of the tests listed below so hopefully that sheds some light.
thank you so much for the information I will be sure to check back in when my results come back..
Pins and needles can be low B12
Have you had Covid?
Can seem to upset vitamin levels/thyroid in number of people
Are you currently taking any vitamin supplements?
If not don’t start anything until had tests back and see what results show
What’s your diet like
Are you vegetarian or vegan, dairy or gluten free
Any family members who have any autoimmune disease
come back with new post once you get results
thank you, yes I did have covid twice october 2021 and February 2022.
I am not currently taking any vitamin supplements.
my diet is not terrible i eat meat,fruit and vegetables and I'm not vegan,vegetarian,dairy or gluten free.
no family history of auto immune disease
I was reasonably healthy never I'll work in a manual job, coach kids football,walk the dog for miles at 4.30 am now I struggle to pull my head off the pillow.
thanks for your time means alot
Low thyroid and low vitamin levels often give similar symptoms
Low thyroid levels tends to result in low vitamin levels as well due to low stomach acid
Low stomach acid leads to low nutrient absorption and low vitamin levels as direct result
Low stomach acid gives very similar symptoms to high stomach acid
PPI are to treat high stomach acid
Low B12 symptoms
b12deficiency.info/signs-an...
It’s possible to have symptoms with B12 result still well within range
NHS GP will only test for and treat vitamin deficiencies
B12 range in U.K. is too wide
Interesting that in this research B12 below 400 is considered inadequate
healthunlocked.com/thyroidu...
Thousands of posts on here about low stomach acid
healthunlocked.com/search/p...
But never assume you have low stomach acid
healthygut.com/4-common-bet...
Web links re low stomach acid and reflux and hypothyroidism
nutritionjersey.com/high-or...
stopthethyroidmadness.com/s...
thyroidpharmacist.com/artic...
How to test your stomach acid levels
healthygut.com/articles/3-t...
meraki-nutrition.co.uk/indi...
huffingtonpost.co.uk/laura-...
lispine.com/blog/10-telling...
Protect your teeth if using ACV with mother
healthunlocked.com/thyroidu...
Ppi
Omeprazole will lower vitamin levels even further
gov.uk/drug-safety-update/p...
webmd.com/heartburn-gerd/ne...
pharmacytimes.com/publicati...
PPI and increased risk T2 diabetes
gut.bmj.com/content/early/2...
Iron Deficiency and PPI
medpagetoday.com/resource-c...
futurity.org/anemia-proton-...
Many of your symptoms sound like a b12 deficiency. Also, PPIs can cause low b12 levels - or exacerbate the issue already at hand.
And if it is be aware that doctors know very little about b12 deficiency/Pernicious Anemia, so educate yourself.
Just in case it is that