Vitamin D deficiency

[Mandarin18]

I've been found on my recent blood test to be Vit D deficient . My endocrinologist has prescribed me hidroferol 0.266mg caps to take one every 15 days. Since taking the first dose 12 days ago,my stomach has been very uncomfortable ever since,today it feels much better. I'm sure it is the medication. Does anyone have any experience in taking the spray preparation of Vit D and if so wondering what would be the best dose to take daily or at whatever frequency please .my vitaminD 2-5OH level was 18.62 ng/ml (30-100). Thank you for any advice

[SlowDragon Administrator]

You are taking vitamin D at least 4 hours away from levothyroxine

You could try different vitamin D

Many people find a vitamin D mouth spray works best

Retest vitamin D after 2-4 months and test folate, B12 and ferritin at least once a year

How much levothyroxine are you currently taking

[Mandarin18 in reply to SlowDragon]

Many thanks for your prompt reply and advice. I take my levothyroxine,now on a maintenance dose of 88mcg,at 7am and took the Vitamin D at 22:00hrs. I will attach my recent and history of blood test results and will get a coeliac test. I'm keener to go with Vit D mouth spray, asked about it in the first place but Dr not familiar with it,so recommendedthe twice monthly tablet .

[userotc]

I don't understand why you were prescribed the drug when it can easily be supplemented. Has a related medical problem been identified with you - or is it a case of medics only trading in drugs, whatever the consequences?

Re dosage, see Grassroots Health calculator grassrootshealth.net/projec...

[Mandarin18 in reply to userotc]

Thank you for your reply. I live in Spain and although I'm not in the sun all day long I think I am in it more than if I were living in UK. I am going to have a blood test for coeliac to see if this is why I'm so deficient in Vitamin D. I have Hashimotos/Ords thyroiditis,diagnosed a few months ago. What did you mean by it being easily supplemented rather than taking that drug?

[userotc in reply to Mandarin18]

hidroferol is a drug but vitamin D levels can be increased with supplements instead (without side effects generally). I note Jbrooke is similarly confused. Tbh I didn't realise there is a drug for vit D, seems crazy to me.

[Mandarin18 in reply to userotc]

Thank you again. Well I am living in Spain,maybe that has something to do with it!🤔

[Mandarin18 in reply to userotc]

Sorry, probably helpful to mention I am also osteopenic ,that may have influenced the hidroferol to get more Vitamin D into me at a higher level quicker 🤔

[userotc in reply to Mandarin18]

Thanks but neither suggestions make sense to me (other than maybe Spanish medics are even more drug-focused than elsewhere!). So supplementation could still be a (better) option for you, particularly with sides effects experienced. Suggest you ask doctor and, if not clear reason, consider it.

[Mandarin18 in reply to userotc]

thank you

[Jbrooke]

How come you don’t just take Vitamin D3 in supplemental form? Most people just take a vitamin for D3. Just curious. The vitamin form can be taken with food too, to curb stomach upset.

[Mandarin18 in reply to Jbrooke]

Thank you for your reply. I just went with the advice of the Dr. I will go over to the mouth spray,less chance of interaction and tummy upset then

[SlowDragon Administrator]

You will need to retest thyroid levels again in another 2-3 months

Last test was only TSH and Ft4

Previous test showed low Ft3

Approx how much do you weigh in kilo

Your PTH test result in April was 30

(Parathyroid levels test);

No range on result but looks high

This might be why you were prescribed hidroferol

You should have vitamin D, PTH and calcium levels tested together

You better ask endocrinologist before taking any vitamin D supplements

pillintrip.com/medicine/hid...

RAYALDEE is a vitamin D3 analog indicated for the treatment of secondary hyperparathyroidism in adult patients with stage 3 or 4 chronic kidney disease and serum total 25-hydroxyvitamin D levels less than 30 ng/mL.

Website all about parathyroid and vitamin D levels

parathyroid.com/low-vitamin...

[Mandarin18 in reply to SlowDragon]

Thank you again for your prompt reply. I'm attaching the blood results from April that show the PTH range. Endocrinologist doesn't want to see me for 6mths now,post bloods then too!

Test results

[SlowDragon Administrator in reply to Mandarin18]

ok so PTH not over range

Likely fine then to supplement vitamin D

Once you have had coeliac blood test, assuming it’s negative……recommend trial on strictly gluten free diet

Many people find gluten free gives noticeable reduction in symptoms…..or is absolutely essential

[Mandarin18 in reply to SlowDragon]

thank you for your reply. I don't really have any symptoms. Only symptom pre diagnosis was the burning scalp pains,which for last month have resolved.can only assume it was thyroid related and that as I'm now back within normal range on the 88mcg of Levothyroxine,it's gone🤞