Thyroid UK
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Vitamin D deficiency left untreated

I found out yesterday after looking at old blood tests that I had a vit D result come back abnormal in March 2015 ( 38nmol/l range is below 50 classed as deficiency ) with a note to say contact patient for an appointment!i never knew and was never contacted!!this was a couple months after being diagnosed with hypothyroidism (and hashimotos disease of which they also never told me untill I discovered blood tests recently!!!) would there be a reason they never told me about me vit D deficiency because of my thyroid medication???ive not had another vit D test since so I don’t know what it is now but it has been left untreated all this time which from my understanding can cause serious health issues!!im still symptomatic with my thyroid condition despite bloods in range but I have been under investigation the last few month as experiencing ms like symptoms and serval other strange and painful sensations over body!tested weak positive for anti nuclear anti bodies /anti smooth muscle tissue antibodies /liver kidney stomach/HEp2 cytoplasmic cells/abnormal DNA!im worried that this vit D define you has evolved in to something...any ideas??visiting neurologist in December and endocrine specialist in jan to discuss alternative meds!

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Domi1041,

Vitamin D deficiency causes bone and joint pain and muscle weakness. It can also pose other health risks. google.co.uk/search?q=vitam... Ask your GP to check vitD level because it is not likely to be something that will self correct without loading doses of vitamin D3. I would also make a formal complaint to the practice manager about not being notified in 2015.

Hashimoto's causes 90% of hypothyroidism. There is no treatment for Hashimoto's, treatment is for the hypothyroidism it causes. GPs don't always mention elevated antibodies/Hashimoto's perhaps because they are already treating the hypothyroidism.

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Yes I am going down the route of a formal complaint! I do understand that hashimotos has no separate medication but I feel it my right to know if I have an autoimmune disease as is means you are at more risk of developing more which is probably what’s happening now!!!especially the fact I am in the forces and they never changed my medically category at diagnosis for either conditions so I could have potentially been sent away and been at v.high medical risk for all 3things (vit D ,hashimotos,hypo) not good!theymay not have had correct meds with out the medical warning I should have had put in place!is all up in the air atm!

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I recently had Vit D tested, the doctor considers anything less than 30nmol to be deficient, but they won't treat unless you're below 25nmol - my result was 25.4, so they aren't treating me.

I'd ask for another test, but consider a good quality over the counter supplement.

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Oh ok!i don’t get it why is there ranges if there not used??i get if your top of range or bottom ....but abnormal is abnormal and should be investigated especially with autoimmune conditions present which is going to eat up even more of you bodies proteins and nutrients it needs!

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why is there ranges if there not used?

A question many of us have asked in the context of nutrients! Doctors think vitamins and minerals aren't important.

I had below range serum iron in a test in 2010 and I was never told. I only found out in 2014. It has never been tested by the NHS again.

I started treating my own iron deficiency, and I pay for my own private testing.

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Yeah, it confused me too, as the low end of the range on my test was 50nmol. All I can think is that 30-50 is considered "low" but not "deficient". I don't think they should have told you yours was "normal" though, as it's towards the low end, and you can improve it easily with something over the counter.

I'm not sure how much faith I had in my GP -she said there was no point treating my borderline result if we're going into winter, & I wasn't so deficient it would be causing symptoms. It's only going to get worse over winter!

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Cooper27,

How much are you supplementing?

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I've not started yet - :/ I have a nutritionist who is going to calculate the dose I need, and will tell me in my appt next week.

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Cooper27,

I'd supplement a loading dose of 10,000iu D3 x 6 weeks then reduce to 5,000iu and retest in March.

My GP prescribed 40,000iu daily x 14 followed by 2,000iu daily x 8 weeks which raised vitD from <10 to 107.

Vitamin D should be taken 4 hours away from Levothyroxine and T3.

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You can calculate it here: 138.68.12.120/?post_project...

You will need to convert from UK units and the converter is here:

138.68.12.120/?post_project...

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So I hope you are treating this yourself

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I will do, I'm seeing a nutritionist, who will sort me out next week.

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My GP says the ranges are within parameters of safeguarding patients before they actually become ill/ drop to below the normal range- which I think is Poppycock!!!

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I found similar situation when I got online access to old blood test results. I had had absolutely dire vitamin D (below 25nmol) results over 15 years ago. Never informed or advised I need to supplement.

After so long, when I did start finally start vitamin D supplements (after joining here) it caused a great deal on intense pain in bones for over four months while they re-mineralised.

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Sounds horrendous!

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