I've been med free now about 9 months but she said TSH normally should go back in range within 6 months (It was in range on Carbimazole it got to a really good figure it stabilised around the number 1 when on meds, I will dig out my numbers and update later)
It is just on the borderline I personally think maybe it's fine could my body just naturally be on the borderline? But she says she will refer me to have a consultant appointment next year if still like this on my next check up but is it a concern or is it ok to be a bit borderline?
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kittyelen
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Yes I always have the test in the morning it was around 9:15AM
I don't take supplements and the nurse advised not to as they can mess with it and don't do much to help as this is an auto immune thing, to avoid Vit B iodine and biotin and I've never had vitamins tested nor scan just antibodies were checked
Biotin is in vitamin B complex taken by large numbers of thyroid patients. Biotin can falsely affect test results so anyone taking any vitamin supplements that contain biotin is advised to stop taking this a week before tests…..but that’s not the same as “never taking supplements “
That one is £68 I will try find cheaper I am not paying £68 atm
Sorry I just wanted help about TSH if vitamins are low yes I would just take supplements that doesn't really help and I don't get why you are telling me to come back once I have results, so you are implying I have low vitamins and this is why the TSH is still not in range?
What if my vitamin levels are fine, how would the results change how you respond to TSH 0.28 and being 9 months med free but still not in range but actually on the results it says "satisfactory" on the GP portal
Optimal ferritin, folate, vitamins B12 and D support thyroid health and are often depleted in those of us with auto immune conditions. Test your levels first, then share with us for further advice re optimising via supplements as needed.
As long as your FT3 and FT4 are in range, there is no need to worry about your TSH being slightly low. Optimal folate, ferritin, B12 and Vit D may improve your levels and will certainly aid overall health, so I would definitely investigate your levels.
But is says satisfactory no further action but maybe I should eat a bit better to reduce that, but I would say I was asking about TSH I don't get why I need to get vitamins done before you will answer my question
It's a small price to pay in regards to your health. I wish I had known about low vitamins and thyroid health before I decided to have RAI, it could have made all the difference.
yes I do. All my vitamin levels were low, but only one I knew was low before was vid d. So not sure which were affected by RAI or which were just affected by graves. I just recently discovered that my phosphorus is below range and calcium is low and RAI can deplete those plus vit d within days.
I am ways tired, mood often low, very little motivation for life, suffer with tinnitus. Now have fatty liver (hyperthyroidism can also cause that) and am 5 stone heavier (3 of that went on when on carbimazole though). Wish I had done more research and tried to eat better and eliminate gluten and dairy, but really didn't take it seriously enough at the time, but you live and learn.
TSH is the least important number of the three - the most important being the FT3. If that is good, then it doesn't matter what the TSH is. And, as you have had Graves', it might never rise, anyway, because the HPT axis has been down-regulated. There are so many things that can affect the TSH that it really isn't a very good indicator of thyroid status.
Was about to say the same—when you’ve had Graves it sometimes happens that TSH never sorts itself out again.
But even so, kittyelen—what little TSH you’re producing seems to be working, right? Your thyroid is producing T4 and your T3 levels are also ok.
I don’t understand what they’d hope to achieve by referring you—putting you back on carbimazole or PTU would be a very odd move because your levels of FT4 and FT3 are not over range.
Suspect they’re simply not thinking things through logically. As is so often the case…
That's interesting to know, and yes I feel ok I don't have any symptoms I am hoping though that in the next blood test the TSH will be a bit more in range
I get the impression it's more she is frustrated they can't discharge me yet as she said they need to be happy with the levels for a few months until they can discharge so atm I am still to be monitored which takes their time....I get the impression she was hoping it would be more in range but it is pretty much the same result as 8 weeks ago! I feel this is a good thing as it shows it is staying the same rather than going over active again!
Since you have Graves the TSH will be misleading and it is essential to be dosed and managed on your Free T3 and Free T4 results.
Your TSH might come up into range but it may not - how are you feeling in yourself ?
Core strength vitamins and minerals, namely ferritin, folate, B12 and vitamin D can influence thyroid blood test readings and so for a thorough answer we generally ask for these results as well.
Unfortunately doctors do not get taught about vitamins and minerals and few understand the value of ' optimum ' levels ' and just prescribe when flagged by the computer and the NHS ranges can be too wide to even be sensible.
It's just better to be ahead of the game, and on top of your health rather than waiting until the NHS computer picks you up when your levels are dire and on the floor with you struggling more than necessary.
Some doctors do run these test for their patients but more and more forum members get knocked back and refused and so resort to having to go private - not ideal but it seems to be getting more and more difficult to get the basic done.
Since you are technically still being monitored for Graves and haven't been discharged you might find that the request is actioned.
Thank you that makes sense, I feel the same as "normal" so no notable symptoms I have been getting a bit stressed though but there is an external trigger for that
I have asked the endo nurse before who said they don't normally need to run vitamin tests and I could ask GP but I don't have anything else I need to go to the GP about so don't really want to book an appointment when others more in need. I had my yearly review on the online forms they don't even call me for an appointment for it but because of another condition I should get a yearly review and asthma review. However since covid these are online forms and they only contact me if required.
I did put some silly answers like I don't own scales so can't weigh myself and I think I put my blood pressure number wrong way round but I haven't heard anything from them.
Well your last paragraph says it all - doesn'it !!
Whenever metabolism runs too fast or too slow for any individual it becomes more difficult for the individual to extract essential nutrients through food irrespective of how well, and clean they eat. and too fast or too slow a metabolism can cause these core strength vitamins and minerals to nose dive through the ranges simply compounding one's health and well being.
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Low t3 with high t4, graves.
