blood tests.Who is thick, me or the doctor? - Thyroid UK

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blood tests.Who is thick, me or the doctor?

fiftyone profile image
18 Replies

When I have routine blood tests and results come back 'normal', ie within normal range, the doctor never suggests any action. However, when I look back at the 'history' I often see that vitamins, hormones etc. have dropped off a cliff .. .yes, still in the normal range ...just...but rapidly on the way down. Why don't doctors pick this up. I invariably have to point this out and suggest that maybe some action should be taken. Anyone else found this?

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fiftyone profile image
fiftyone
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18 Replies
greygoose profile image
greygoose

Because they do not know how to interpret blood test results. They believe that anything within the range just has to be good. They have no idea how ranges are arrived at, nor that they are just a rough guide. Show your doctor a copy of this article, and see what he says:

The normal range: it is not normal and it is not a range

pmj.bmj.com/content/94/1117...

DippyDame profile image
DippyDame in reply togreygoose

Helpful link greygoose ....been looking for this info.

Thank you!

greygoose profile image
greygoose in reply toDippyDame

You're welcome. :)

Regenallotment profile image
RegenallotmentAmbassador in reply togreygoose

my GP is going to love me correcting her talking about ranges with ’reference interval’ and normal in the statistical distribution sense 🤣🤣 this is genius. 🙏 thank you for making me smile 🦋💚🦋

greygoose profile image
greygoose in reply toRegenallotment

You're welcome. :)

Jazzw profile image
Jazzw

I suspect many of them simply don’t know that in range often doesn’t mean optimal.

They get taught many things at uni but the finer detail like how to interpret blood test results they learn from peers and colleagues. We’ve now reached a critical mass of peers and colleagues who no longer know how to read blood test results, much less fully understand much more than the basics of why one level is high and the other is low, and how results often work in tandem, for example, the relationship between Vit D and calcium, or the relationship between folate and B12 (and the rest of the B vits).

Medicine (as opposed to surgery) has always been the trickier part of doctoring. Surgeons tend to get all the plaudits but surgery is often a matter of re-routing plumbing, cutting something out or bolting on a plate.

Medicine needs a deep understanding of biochemistry and physiology. For that you need good teachers and time to read and absorb and make connections.

Our GPs these days have neither.

SeasideSusie profile image
SeasideSusieRemembering

However, when I look back at the 'history' I often see that vitamins, hormones etc. have dropped off a cliff .. .yes, still in the normal range ...just...but rapidly on the way down. Why don't doctors pick this up.

I have never had vitamins tested as routine other than once I had B12 tested (probably due to age and it being common for B12 deficiency to develop the older we get) and twice ferritin tested (no idea what prompted that). Hormones (other than thyroid) have never, ever been tested.

TiggerMe profile image
TiggerMeAmbassador

Absolutely! I spoke with the nurse yesterday about this and she said " we are only into General Practice if you want to optimise your results you need to go elsewhere!"

I said "I didn't realise this when all I'm trying to do is make the Levo that you give me work?"...

Then her defensive attitude changed too...

"Oh I see you have an Endo appointment coming up, they are the people to ask" and I replied "yes but I had to request a referral it wasn't offered?" her response " Make sure you go prepared, write everything down and see if you can see a nutritionalist as well!"

nellie237 profile image
nellie237 in reply toTiggerMe

Hi Eeyore,

Please don't get your hopes up if this is an NHS Endo. NHS Endo's are less interested in optimising nutrient levels than GP's, and even if you are deficient they are likely to tell you to speak to your GP rather than prescribe..........let alone monitor. I can understand it.............they have long waiting lists.

I hope that you come back and tell us otherwise. Good luck.🙂

TiggerMe profile image
TiggerMeAmbassador in reply tonellie237

Thanks Nellie, I'm giving the Endo a chance to surprise me but having read so many experiences on here I'm not expecting a lot... I'm not really looking for them to prescribe Vits & Mins but to guide me how to obtain optimal levels and how to manage this going forward and what to keep an eye on....

Having said that I'm not sure there is an Endo who could possibly relate the vast array of real life knowledge that is accessible on here!

I'm just a little shocked that they hand out Levo with little instruction and no guidance how to make it work well for you, it surely ought to be a combined approach to achieve better outcomes.

SlowDragon profile image
SlowDragonAdministrator

NHS only obligated to test and treat vitamin deficiencies

Unfortunately they don’t elaborate or explain this to thyroid patients who MUST have optimal vitamin levels for levothyroxine to work

TiggerMe profile image
TiggerMeAmbassador in reply toSlowDragon

You wonder why they give out T4 rather than T3 which might have a better outcome for many?

SlowDragon profile image
SlowDragonAdministrator in reply toTiggerMe

T3 is much more difficult to manage than Levothyroxine …..and vastly more expensive

The majority of thyroid patients do ok/well on levothyroxine…..provided that there’s good gut function, optimal vitamins and patients understand how important it is to take levothyroxine consistently and to test early morning, last dose levothyroxine 24 hours before test

Keep good records of results and symptoms

A spreadsheet of results over time can show trends on levels of thyroid or vitamins

blogfrog profile image
blogfrog

I think GP's are too hard-pressed to look at any patterns for preventive measures, only looking at the very latest results for diagnosis. I have seen a rapid decline in a lot of my blood results in the past couple of years and they never told me of the patterns. It was only when I actually requested printouts I saw the worrying cliff like drop (or rises). The GP had not even bothered to tell me sometimes when a few results were out of range or bang on the edge.

fiftyone profile image
fiftyone in reply toblogfrog

It's a good thing results are now online and we can see everything for ourselves.

TiggerMe profile image
TiggerMeAmbassador in reply toblogfrog

If they would just tell you from the outset that their care will be basic as they know little about this issue and that better outcomes are likely if you read up on the condition and take control...

I wrongly thought GP's referred you if they didn't know what they were dealing with, but they just string you along! I had no idea I had to make that request... 😳

blogfrog profile image
blogfrog in reply toTiggerMe

The docs hate Dr Google. They want you to be ignorant and reliant on their poor guesswork.

SlowDragon profile image
SlowDragonAdministrator in reply toTiggerMe

GP is a gate keeper and the wait for NHS endocrinologist is long

Vast majority of endocrinologists are diabetes specialists and useless for thyroid anyway

If thyroid results are “within range” referral will get often get refused

Before considering booking any consultation we always recommend getting all four vitamins as near optimal as possible

Majority Endocrinologist will also only test for vitamin deficiencies.

Retest thyroid and vitamin levels just before any consultation

Email Thyroid U.K. for list of recommended thyroid specialist endocrinologist and doctors 

tukadmin@thyroiduk.org

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