low t4 assistance : hi everyone, I’m 26 and I... - Thyroid UK

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low t4 assistance

SJMRx profile image
8 Replies

hi everyone,

I’m 26 and I have had my thyroid removed and are taking 125mcg a day of Levothyroxine. My doctor just called and said that my T4 level is low which is my hormone level and automatically being young you think of your fertility. They have said to drop my medication down to 100mcg a day, should I also stop my contraception as at my age I’ll like to keep my hormone level as in tact as I can. Can you recommend how I can increase my hormone level and any other suggestions you may have or any words of reassurance if you’ve been in the same position .

Thank you.

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8 Replies
PurpleNails profile image
PurpleNailsAdministrator

Welcome to forum.

If FT4 (free thyroxine) is low you need an increase not decrease

.Doctors often look at TSH thyroid stimulating hormone.  

This a pituitary hormone which signals thyroid.  If all it working normally when thyroid levels are high it becomes low - but it’s very unreliable.

I’d obtain actual results dr may be going by TSH only,  you need FT4 & FT3 (free triiodothyronine) results.  

Get a printed copy or set up online access you need results & ranges (ranges vary).Contraception shouldn’t affect thyroid hormones, or fertility once you stop taking it, but thyroid levels do need to be adequate for fertility.  

Low FT4 would have a poor affect on fertility - so your doctors comment is inaccurate.  

If it’s Low TSH that’s might not be a issue provided FT4 & FT3 is within range. TSH would not cause symptoms or impact fertility. Focus in FT4 & FT3

SJMRx profile image
SJMRx in reply to PurpleNails

Thank you for your comment, I’m going to call them back and schedule a call to make sure the information is correct as it was given to me so quickly.

Do you know what levels would need to be out for it to affect my fertility? as I want to assure these levels were in tact. I initally called the doctor as I was having intense sugar cravings and couldn’t settle at night time. I thought it was strange they were being lowered and not increased too

jimh111 profile image
jimh111 in reply to SJMRx

If you were feeling alert at night it could be that your dose did need to be reduced. In this case it would have been your TSH that was low not your fT4. The only way to know is to get a copy or your results. I would get hold of all your results not just the latest ones.

If you are under medicated it would affect your fertility for as long as your thyroid hormones are low.

SJMRx profile image
SJMRx in reply to jimh111

I am alert at night therefore I believe I have missheard, they are calling me back tomorrow so I would check for definate! What are the negatives or side affects of low TSH does that affect fertility or anything else do you know ?

Thanks for your help!

jimh111 profile image
jimh111 in reply to SJMRx

A low TSH carries long term risks of cardiac events and bone loss. It probably has effects on fertility / baby development but I don't know of any studies and if these effects were substantial we would know about them. A high TSH is not good for pregnancy, it leads to a higher risk of harm to the baby and probably reduces fertility.

Please note these risks although present are not high risks.

All the above assumes the 'axis', the mechanism that controls thyroid hormones is working as it should, this is so in most people. TSH will fall as fT3 or fT4 increase and vice versa. This is why TSH is very informative for most people. However, for some people TSH goes low even though fT3 or fT4 isn't high, the pituitary isn't working as it should. So, it is really useful to measure TSH, fT3 and fT4 at least once. Unfortunately, this is rarely done as GPs are not usually allowed to request fT3 (on cost grounds, it's costs about £1-20 grrrrrrrrrrrr.).

So, get hold of whatever results they have, all of them. If your TSH was low the assay machine will probably automatically run an fT3 test, if TSH is high it usually runs fT4. The machine rules, totally wrong but that's the mess we are in.

Let's wait and see your results. You can get a home kit to measure TSH, fT3, fT4 for less than £30 but you may not need to do this, depends on the result from your GP.

PurpleNails profile image
PurpleNailsAdministrator in reply to SJMRx

Doctors might say If FT4 & FT3 in range it is acceptable & should not affect fertility.  

Some do feel well low in range but many say they don’t feel well until at a good  level.

If trying to conceive it’s often necessary to increase dose once pregnant.  I think the advice it to automatically increase by 25mcg.  

Having a low level prior to conception means there’s a high chance they will fall below range in early stages of pregnancy & that might be an issue.

    So having good levels might be preferable.  

Being over range isn’t good either but over half way of range for FT3 is a fair aim.  

FT4 often need to be higher as FT3 converts from FT4, but we need to know your FT4 & FT3 levels to say is you are over or under medicated.  

TSH isn’t reliable & although symptoms are a clue somethings isn’t right, symptoms can so varied you need to be guided by results.  

SlowDragon profile image
SlowDragonAdministrator

welcome to the forum

Sounds like GP meant low TSH

ALWAYS test thyroid levels early morning and last dose levothyroxine 24 hours before test

Is this how you did your test

Which brand of levothyroxine are you currently taking

Do you always get same brand levothyroxine at each prescription

What vitamin supplements are you currently taking

What was reason for thyroidectomy?

You are legally entitled to printed copies of your blood test results and ranges.

The best way to get access to current and historic blood test results is to register for online access to your medical record and blood test results

UK GP practices are supposed to offer everyone online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.

Link re access

healthunlocked.com/thyroidu...

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.

Important to see exactly what has been tested and equally important what hasn’t been tested yet

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine

 

For full Thyroid evaluation you need TSH, FT4 and FT3 tested.

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

NEVER agree to reduce dose based just on TSH

Low vitamin levels are extremely common when on levothyroxine

Low vitamin levels tend to lower TSH

Recommended on here that all thyroid blood tests early morning, ideally just before 9am and last dose levothyroxine 24 hours before test 

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

Only do private testing early Monday or Tuesday morning. Watch out for postal strikes, probably want to pay for guaranteed 24 hours delivery 

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism 

thyroiduk.org/wp-content/up...

pennyannie profile image
pennyannie

Hello SJMRx and welcome to the forum :

A fully functioning working thyroid would be supporting you on a daily basis with trace elements of T1. T2 and calcitonin + a measure of T3 at around 10 mcg + a measure of T4 at around 100 mcg :

So if your T4 is low, you likely need to be taking more T4 thyroid hormone replacement not less.

We generally feel at our best when our T4 sits in the top quadrant of its range as this should in theory convert to a good level of T3 in it's range - as it is T3 that runs the body which is said to be around 4 x more powerful than T4.

T4 - Levothyroxine is a prohormone and needs to be converted by your body into T3 the active hormone with the average person needing to find and utilise and convert to around 50 T3 daily just to function.

Your ability to convert the T4 into T3 can be compromised by non optimal levels of ferritin, folate, B12 and vitamin D, inflammation, any physiological stress ( emotional or physical ) depression, dieting and ageing so whilst we can't stop the clock we can keep on top of other contributing factors to ensure we keep as well as possible.

Maybe ask your doctor to run a full thyroid blood panel including the vitamins and minerals for you - if you haven't got any recent results to share with forum members - and we can explain any results and readings to you.

If you doctor can't help with the blood tests there are a list of private companies on the Thyroid UK website thyroiduk.org and Thyroid UK is the charity who supports this forum.

For blood tests we generally suggest you arrange an early as possible morning blood test - fast overnight just taking in water and take your daily dose of T4 - Levothyroxine after the blood draw.

If taking any supplements stop them all around a week before the blood test so we can see exactly what your body is holding on to and when your results are back just a new question detailing all the results and ranges and forum members will talk you through what it all means and what your next best steps back to better health are.

P.S. just to add T4 - Levothyroxine should be taken on an empty stomach - hence why most people take it in the morning but you do need then to wait around an hour before you eat or drink anything other than water so to get maximum absorption.

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