TMJ and Jaw Pain

[SilverSavvy]

Is Temporomandibular joint dysfunction an issue with Hypothyroidism does anyone know? I've never knowingly suffered from it but since taking more Levo, I keep getting bouts of terribly sensitive teeth and pain in my jaw. Looks like TMJ from the description but obvs will check with the dentist/doc. Might be a relief to know it's a thing if anyone is aware?

Thanks all. And thanks generally actually: this site is an absolute Godsend when you're recently diagnosed and the NHS does nothing but throw meds at you.

[SlowDragon Administrator]

yes it’s more common when hypothyroid/on Levothyroxine

Recommend a mouth guard via dentist- about £300

[humanbean]

One person on the forum cured (or reduced the severity of) their TMJ by supplementing with high-dose vitamin B12 even though her level wasn't actually bad.

I have no evidence to suggest this is real or common for anyone else.

[Jaydee1507 Administrator]

TMJ is often connected with Hypermobility type of Ehlers Danlos Syndrome, basically weak connective tissue/ligaments due to faulty collagen.

Getting vitamins optimal may also help. If you struggle with one type of folate then try a different one. Some people have to whats called 'pulse' folate. If it starts to make you feel bad then pause for a day or so then restart, repeat.

[HowNowWhatNow]

I wonder whether you take levo at night or in the morning?

I grind my teeth now and take it at night. I’ve wondered about changing to the morning as a result.

[Will_blue]

I am hypothyroid and have suffered badly with TMJ - to the point of having a wisdom tooth extracted to find that didn't solve the problem. I saw a facial specialist who recommended heat. I use one of those microwave lavendar sacks & apply to my jaw when I feel the pain. Over time that has solved the problem for me.

[SlowDragon Administrator]

I was highly sceptical that a mouth guard would work….but it’s brilliant

I never sleep without it

[SilverSavvy]

Thanks everyone..hearing all this wisdom has helped me out a lot both mentally and physically. I'm going to see a dentist to take their advice about all of it - and also ask my doc for some better pain relief. I had no idea this problem was associated and I wonder how many more are?! Perhaps I'm only at the start of this journey after all