For all fellow MCAS ( also Histamine intolerance) sufferers, of if you suspect you might be one, of which there are quite a few on the Thyroid forum:
mastcellactivation.byhealth...
There are some really excellent practitioners speaking: Lawrence Afrin, Trudy Scott, Beth O‘Hara, to name but a few.
I am a fellow MCAS sufferer and I don’t have anything to do with the conference, just thought it might be of interest😀
Omg, how strange I just logged in, because this is just what I needed! For a few weeks now, I've been covered in hives that appear and disappear everyday have swelling on my face hands and feet and am finding breathing hard. I feel wretched. I have no clue what's really going on although I have had severe allergic reactions in past but not like this and it's going on and on. Thanks for posting!
Hi Alanna. I’m glad to be able to help😀 Hopefully you’ll find some good info in the talks. I’m sorry to hear you are suffering from all these reactions. Have you noticed any correlation to meds/ supplements, temperature, stress, food, chemicals? Have you read up about MCAS and Histamine intolerance? From the reactions you are having and the severe allergies you mention, I wouldn’t be at all surprised if you are suffering from one or the other or even both, although to me it sounds like it could be MCAS with the reactions you are describing. By the way, I am not medically trained and only diagnosed with MCAS since January this year.
If you read this post, you might find some good info in it. I’ve also written a bit about my background in answer to the original post. My bio isn’t yet finished, unfortunately.
originalText
All the best and write if you have any questions.
Thanks Swissgirl,
(Which post do you mean? This one or another one? There isn't a link. I did read your bio, thanks for all the info)
I know house dust mite is a trigger, I had 3 years of immunotherapy for that...but then at the time, I always thought there was more going on, because it also happen in spaces outside and because it took over 2 years before I started to feel any benefits from the immunotherapy (the immune system usually starts to respond after the initial strongest shots about 6 months) which I was told was unusual. Sitting or lying down definitely seems to make the hives worse. So I'd say physical pressure makes it worse.
Sometimes I'll eat something and feel a prickling itchy feeling around my mouth and cheeks...but another time I'll eat the same thing and feel nothing. That confuses me.
I also did the autoimmune paleo diet last year - for the fibromyalgia, fatigue and the Hashimotos...and did feel an improvement in symptoms...but the fatigue still returned and I could only identify a few foods - tomatoes - red peppers -kidney beans - soy that I pretty much know are problematic (IBS inducing) before I dropped off the bandwagon at christmas. I defo need to return to the diet and eliminate again.
Medicines: I stopped all my thyroid meds for a week but nothing changed. I stopped all my daily supplements, nothing changed.
But one thing I think may possibly have triggered it, was I was taking an adaptogen blend which included Rhodiola and Gingseng and it didn't work for me, made my cortisol too high. I stopped it after two weeks which gave me a sudden cortisol slump and a week later this started. But equally it could not be that.
No clue really. I would just like it to stop😥
Hi Alanna. Sorry, there seems to be a problem on HU at the moment with posting links. Here it is again. Quite a lot of info on MCAS:
How wild -- I JUST finished reading a research article on Mast Cell Activation in relation to the fact that after 3yrs of subcutaneous allergy injections I don't feel any great improvement. thanks for the link -
I had the 3 year allergy injections too. Stopped almost 5 years ago but am now back to square one, with a vengeance😥
Could you please share the article? Many thanks.
Certainly, a LOT of medical terminology, but parsed my way through it trying to remember from biology classes ncbi.nlm.nih.gov/pmc/articl... I found it an interesting read - jump to the summary, if you get bored
Thank you, for finding and sharing, no worries, I have time to wade through it, I'm certainly not going anywhere fast atm lol....
Hi I am doing some further digging re: allergies. Went to an ENT to make sure no structural issues in sinuses aggravating allergies - clear. He suggested I probably have allergic & non-allergic rhinitis - oh, great! It dawned on me that turmeric acts as an- inflammatory for the body. Histamines are an inflammation. Found enough articles wherein the outcome of the studies is that curcumin (the active component of turmeric) does indeed reduce histamine levels and, of course, many other health issues. What I haven't found, yet is the dose used. I do remember from reading about curcumin a number of years back, is that black pepper extract acts as an accelerant for the curcumin. Though I'd share since I know the unending allergy yuck I have, almost every day and you are back @ square 1
Ahh thank you so much for this. Sorry just saw it now. I had tried tumeric a few years ago but not for very long to be honest. There was so much health info to take in at the. I'm going to defo order some and try it again. Thanks for the tip. Just come back from the GP who , despite seeing the pictures of me covered in urticaria and swollen lips says I must be suffering anxiety and need pain relief for my so called fibromyalgia. I don't even know how fibromyalgia came into the picture or what it's got yo with anything. Meanwhile my breathing is really laboured
😤
Help oneself someone needs must, most certainly!
You are welcome....hope it is a decent panacea for allergies, etc. No, I am not a dr., but comment on their diagnosis now & then. when someone has a digestive issue that doesn't have a neat label to pin to it, it has to be IBS - fallback diagnosis. Maybe that is what the fibromyalgia is. One has to do their digging into research, and hope they get a dr. that will listen to them. I am fortunate that I have had 2 of my last 4. I fired the other 2 as they were very myopic. L-theanine is to be good for anxiety I use it as, if I awaken in the middle of the night, my head is going wild w/stupid things to think about. The l-theaine reduces it, greatly. I only take half of the amount of the max limit. Do your research!
PS the research articles regarding curcumin & allergies is 2mos. minimum use Can you stop it after that, if it is effective?...couldn't find that info
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