absolutely fedup

[Kowbie]

I was starting On a trial of t3 starter dose 5 in the morning and 5 afternoon then it was put up to 10 morning and afternoon put my prescription in last week to get my meds , and they wouldn’t give me the liothyronine they said you will have to see endocrinologist to get them , I didn’t understand really why, and not sure if it’s anything to do with endocrinologist letter, but they said you’ll have to wait on the meeting that they were going to be having next Thursday, I’ve rang hospitable loads of times spoke with pharmacy at drs and the dr had told pharmacy to tell me you’ll be ok ,

So now I’ve been without for a week they put my thyroxine down by 50 , have tried hospital again endocrinologist is going to give me 2 weeks worth , but what’s best to do because I really think he started me on 2 lots of 5s then doubled it to 10 twice a day , then not having them for over a week what would you start back on , also what he had said in the letter was tsh undetectable t4 in range t3 in range but that I am over medicated , t3 was 6.4(3,1-6.8) t4. 16.4(12-22) I tried to ask if I could have , I was trying to ask about t4 upping a bit didn’t mind if I had to come down a bit on t3 , but he didn’t want to listen . I was thinking of what I had read on here about tweaking up or down , sorry it’s a very long read , but I can’t believe they are doing this thankyou if you’ve got this far , appreciate all your help (, oh would stopping t3 just like that give you diarrhoea ). Thanks again

[Lalatoot]

Kowbie if the endo has started you on a trial of t3 then the endo has to provide the prescriptions and monitor you through the trial. Only once the endo has decided the trial is over can tell the GP to provide t3 prescriptions.

[Kowbie in reply to Lalatoot]

Well as I said he didn’t want to talk about anything any more, I was trying to tell him about upping t4 but he cut me off , so didn’t really get chance to put it to him properly, in his letter to the doctor which I got this morning, it said I wasn’t happy that I won’t up medication,I can always go to another endocrinologist, I didn’t hear him say that , I have been trying to get to talk to a doctor at the practice but it wasn’t an emergency, so couldn’t, so I asked the receptionist if she would relay a message to a dr , and tell them I am not overmedicated as t4 and t3 were in range , so I don’t know what will happen just have to wait and see , can I ask you what you would start on again please , and thankyou so much for replying to me appreciate that hope your keeping well nice talking

[Lalatoot in reply to Kowbie]

Options as I see them:

Increase levo by 25mcg and wait 2 weeks till endo appt

or

Restart T3 5mcg daily for 1 week and then 2 x 5mcg daily for 2 weeks

If I was in your position I would want to gradually get my levo dose back to where it was and then see how much T3 was needed to feel well and have acceptable ft4 and ft3.

My endo reduced my levo by 50mcg (from 100mcg) and add 2x 10mcg T3 - this seems to be a common protocol. This dosing made me ill - ft4 was too low for me at 0% and was ft3 76%. Over 2 years I adjusted doses methodically, slowly and 1 thing at a time with bloods every 3months to monitor the effects of a change. The dose I have been on for a year now is levo back up to 100mcg and lio T3 7.5mcg. All I really needed was a little T3 added to my levo dose. Endos don't seem to understand that some folks only need a little and that we need time on a trial to try various doses to see what suits.

[Kowbie in reply to Lalatoot]

Yes thanks I think I will get my t4 up by 25 , and wait a couple of weeks and get back on the 200 I was on , leave it like that for another 4 weeks and add 5 liothyronine in then test after 6 weeks does that sound a plan do you think , thanks a lot hope we speak again

[Lalatoot in reply to Kowbie]

That's what I would do if it was me.

[Kowbie in reply to Lalatoot]

Thankyou for your help much appreciated