hi i have had a blood test taken on 19 july and my thyroid test has come back as 1000.0 ku/l dose this mean i have an overactive thyroid again as i had an overactive thyroid in 2014.
i have recently been diagnosed with ADHD and I’m taking medication could this have caused my thyroid to become overactive?
clare
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High thyroid antibodies confirms autoimmune thyroid disease also called Hashimoto’s
Hashimoto’s frequently starts with transient hyperthyroid results and symptoms (possibly what you had previously…..it’s not really overactive…..but as cells in thyroid breakdown, excess thyroid hormones can be temporarily released)
Hashimoto’s will eventually become increasingly hypothyroid as thyroid is attacked and destroyed
About 90% of primary hypothyroidism is autoimmune thyroid disease
Have you had TSH, Ft4 and Ft3 levels tested
Always test thyroid levels early morning, ideally before 9am
Also important to test vitamin D, folate, ferritin and B12
Last time i had an overactive thyroid I was told I have Graves’ disease and A goitre. I was on Carbimazole medication for 8 months before I had allergic reaction and had to stop they then tested me regularly every month for 6 months and said that the thyroid was back to normal. The consultant at the hospital said it normally takes 12 to 18 months before you can come off the medication and they were most surprised that after only 8 months I was all clear.
I am looking at my blood test results on my my GP app and there are no ranges on there.
I had the blood test on Tuesday and GP called on Friday to say you need to get an appointment asap but we don’t have any today
So i am going to call in the morning to get an appointment x
That really does sound more like Hashi's than Grave's. Trouble is, very few doctors know the difference, as strange as that may sound! And as soon as they see a low/suppressed TSH leap to the conclusion that it has to be Grave's and put the patient on carbi WITHOUT DOING THE PROPER TESTING! Which is wrong, and very unprofessional, but they just don't have the knowledge to treat thyroid correctly.
If you had Hashi's, and took carbi, your FT4/3 levels would have gone down very quickly, and you would become hypo. So, the fact that you came off the carbi after six months only, really does suggest that it was Hashi's, and not Grave's. But, your doctors were too dim to put two and two together.
Now, your antibodies are high, and so are your FT4/3, but not high enough to suggest Grave's. Those levels really do suggest a Hashi's 'hyper' swing. They will eventually come down by themselves and you will probably become hypo.
The only thing you can do is replace the thyroid hormones when your thyroid becomes too damaged to make them itself. There is no treatment or cure for Hashi's, I'm afraid.
See if you can find TSI or Trab antibodies test results
If not been tested, insist GP does test this week
As greygoose said ….we see a small, but steady stream, of initially hyper Hashimoto’s patients misdiagnosed as having Graves’ disease if Graves antibodies aren’t tested …..including Buddy195 , one of admin team on here
It’s also possible (but rare) to have Graves’ disease and Hashimoto’s at the same time
Thanks for your reply. Is there anything i can do as i have been struggling to sleep i spent most of my time tossing and turning 4 week of not much sleep is exhausting me I also have been having hart palpitations and I feel sick most of the day. I am seeing my GP at 3:30 should I ask to be referred to endocrinology ? X
Hi i am not on any meds yet the HP have referred me to endocrinology on Friday last week and I’ve been told I have a 2 to 3 week wait. I have asked fir blood test and on the form it say bone Profile vitamin D folate vitamin B12
I also got the GO to print the Results and I now have the ranges so
Free T3 is 9.6 pmol/L 2.40-6.00pmol/L
Thyroid peroxidase Ab conc > 1000.0 ku/L 0.00- 5.60 ku/L
So if not on any medication these results suggest Hashimoto’s
Very high thyroid antibodies suggests Hashimoto’s rather than Graves’ disease. It’s also possible to have mildly raised TPO antibodies with Graves’ disease
I have relaid these results out by date
Not sure if I have correct results on correct date …it was confusing
19 Jul 2022
TSH 0.01 mu/L ( 0.35-5.00 )
Ft4 22.7 pmol/L (9 -22) only just over range
Ft3 9.6 pmol/L (2.4-6.0) High
Likely a temporary Hashimoto’s flare as thyroid breaks down
TSH is the message from pituitary to tell thyroid to work
Because you have (temporary) excess hormones, probably due Hashimoto’s, pituitary is not sending any messages to thyroid
This temporary excess thyroid hormones is called a Hashimoto’s flare. Caused by sudden breakdown of cells in thyroid releasing excess thyroid hormones.
After each flare thyroid becomes a little more damaged and increasingly hypothyroid
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