Mum on t3 and son on borderline hypo.

[Maya_83]

Hi.

My mum has been complaining alot about fatigue, feeling unwell in pain and losing her voice in the mornings. We got the doctors to test her and her TSH was 4.2 (0.24- 4.2) just within borderline so will not actioned it.

I gave my mum 6.5mcg of my tiromel( I know maybe I shouldn't have) to take first month and now on 12.5mcg daily.

She's now feeling loads better and no broken voice in the mornings.

Doc's have done her bloods again and results are TSH 1.4 (0.24-4.2)

T4 8 (10.5-24.5)

They have referred to the endo saying she may have a pituitary problem. I didn't disclose to them about the t3. Should I tell them?

My son also has the same problem, tsh borderline been like this for years . He's 8 years old. Gp doesn't take any notice.

He always complains of being tired . Always irritated. Shows sighs of ADHD.

Please help. Any suggestions will be highly appreciated.

[SeasideSusie Remembering]

Maya_83

I gave my mum 6.5mcg of my tiromel( I know maybe I shouldn't have) to take first month and now on 12.5mcg daily.

Doc's have done her bloods again and results are TSH 1.4 (0.24-4.2)

T4 8 (10.5-24.5)

They have referred to the endo saying she may have a pituitary problem. I didn't disclose to them about the t3. Should I tell them?

Well, I think you should otherwise they'll possibly get the wrong idea and be investigating something that's not necessarily appropriate.

If your mum was going to self medicate then she should have done a full thyroid panel - TSH, FT4, FT3, Thyroid antibodies, plus key nutrients - Vit D, B12, Folate and Ferritin, and if no problem with nutrients and borderline hypothyroid or suggestion of Hashimoto's then she should have started on Levo. Just my opinion.

[Maya_83 in reply to SeasideSusie]

Thank you .

All the other tests done was high in range only folate was low which they have prescribed folate for.

That's why I wanted to see if the t3 was going to help.

[SeasideSusie Remembering in reply to Maya_83]

With hypothyroidism it's normal to try Levo first, many people get on well with this, it's generally only those who don't convert T4 to T3 well enough that then add in T3, but of course you have to go the Levo route first to know that.

[SlowDragon Administrator]

We got the doctors to test her and her TSH was 4.2 (0.24- 4.2) just within borderline so will not actioned it.

She should have had 2nd thyroid test 6-8 weeks after first abnormal test

Plus testing thyroid antibodies and vitamin D, folate, ferritin and B12

Always test thyroid levels early morning, ideally before 9am and last dose levothyroxine 24 hours before test

On T3, day before test split T3 into 2 or 3 smaller doses spread through the day and last 1/4 tablet approx 8-12 hours before test

Suggest you test your son too

Blue horizon will test minors. Pay extra for private blood draw at clinic

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/wp-content/up...

[Maya_83 in reply to SlowDragon]

Thank you

My mums results have been like this everytime they did the thyroid panel. Hence why we tried t3.

Thank god its helped somewhat.

[SlowDragon Administrator in reply to Maya_83]

So you need to get full thyroid and vitamin testing done, including thyroid antibodies

Likely to need to improve low vitamin levels

Low vitamin levels tend to lower TSH

look at adding 25mcg levothyroxine and retest in 6-8 weeks

[Hidden]

Do you have any other test results for your mum other than TSH? Prior to taking T3?

[Maya_83 in reply to Hidden]

Hi .

Yes,

vit d 100

B12 1200

[Hidden in reply to Maya_83]

I meant thyroid results. I ought to have been specific!

FT4 or FT3?

[Maya_83 in reply to Hidden]

Hi. So sorry I totally missed this comment!..

My mum's ft4 was 4.2 ( 0.27-4.2) this was before any t3.

X

[Hidden in reply to Maya_83]

That looks like a TSH result. Are you sure it's a T4 result?

[Maya_83 in reply to Hidden]

Oh yes, your absolutely right! I don't think I had the ft4 results before t3.

My mum still feels well on 12.5mcg thank god.