Hi ! Long story short, I was diagnosed with Graves Disease in 2018. There was a time where the levels where back to normal and I weaned off my med. But I got my first relapse last year, although now my levels are good (per April 2022) and only require 1 x 5 mg Carbimazole.
I complained to my Endo that I still feel awfully tired, still ongoing hairloss and headaches. So she sent me for a blood test but I couldn’t see the result until now. ( I have asked the UHS to get me the test results but then they can’t see it in the system). I know the test results are there as when I consult with GP for headaches only (she only want to talk about one thing…). She saw the result and mentioned low cortisol ( I think it was 190 something).
I managed to get synachten test last Friday, they told me my result is good as my response to the synachten is good. The thing is I have been feeling sick and very tired since last Saturday. I had to take regular time off interval from work. Any advice ? i am so frustrated right now.
Written by
ABCD210506
To view profiles and participate in discussions please or .
Setting up and arranging access to records will help. You need to see where you levels are and track them yourself. Hair loss and headaches can be a hyper or hypo symptom.
For full thyroid function you need TSH, FT4 & FT3. (Doctors focus on TSH) carbimazole should be dosed by FT4 & FT3.
Thyroid antibodies TPO & TG antibodies. To confirm Graves you need TSI or Trab tested? Was this done often drs treat all low TSH as Graves.
Also important to test folate, ferritin, vitamin D and B12.
Private blood tests can be arranged via post & finger prick sample at home is GP refuses to test everything.
Cortisol have a time range eg morning should have higher results and levels decline through day.
You had a further test to how you respond to ACTH (synachten test). Doctors will say “good - fine - acceptable- normal” for any result in range even is just within range. Get a hold of copy of results & check how good they are.
The Graves was confirmed years ago, when I was not in the UK. During that time they tested the TrAb, TPO,TSH and everything including liver function.
I was doing quite well until January probably where I feel that my fatigue isn’t going away at first I put it as due to the winter season or something.
Do Vitamin deficiencies and etc you mentioned still expected even when the TSH and T4 level is good though? Tbh I am really frustrated with everything going on here
I know my vitamin D was low, I have been supplementing with 1000iu even though the GP prescribed for 800. I have told the GP and endo about it and they never checked even though I asked.
I asked again when she finally relents additional blood check for my fatigue and hairloss. Should I be concerned that my morning 8.45 am cortisol is 190ish?
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Am I missing something!!
So confused by results - should I give up?
Am I being overmedicated on levothyroxine?
Am I really over medicated
