MTC/Thyroid: Hi all, 5 years after thyroidectomy... - Thyroid UK

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MTC/Thyroid

DelilahMcD profile image
3 Replies

Hi all,

5 years after thyroidectomy due to MTC I'm having the most awful episodes with racing heart, chest tightness, tingling in extremities, dizziness, nausea and a sort of giddy feeling. Had ECG and heart was fine, BP also good. GP thought it was anxiety and prescribed Xanax for the short term. I wonder if it's T3 levels as these are not checked by my Endo, or could I be perimenopausal, or does this sound familiar to anyone at all? I'm just fed up being ill and constantly unable to drive or function"normally". I do have recurring MTC, which they haven't located as yet and had another cancerous lymph node removed from my next last October, but just wish I had some semblance of me! Sorry for long post x

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DelilahMcD profile image
DelilahMcD
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3 Replies
SlowDragon profile image
SlowDragonAdministrator

All sounds sadly too familiar

Just testing TSH and Ft4 is completely inadequate

What are your most recent thyroid and vitamin results

What vitamin supplements are you currently taking

ALWAYS Test thyroid levels early morning, ideally before 9am and last dose levothyroxine 24 hours before test

For full Thyroid evaluation you need TSH, FT4 and FT3 tested.

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Are you in N Ireland or Republic?

S Ireland testing

letsgetchecked.ie

Approx what age are you, conversion often gets worse around menopause

DelilahMcD profile image
DelilahMcD in reply to SlowDragon

Hi SlowDragon,

I'm in the Republic and had blood drawn last week, will get results next week. I'm 52 but still getting regular, long and painful periods, but I could be perimenopausal also. Just would like to know how to stop these awful episodes...

SlowDragon profile image
SlowDragonAdministrator in reply to DelilahMcD

Likely low iron/ferritin then

Come back with new post once you get results

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