I have been hyperthyroidism since six years ago. I think I didn't take medicines regularly, my heart is beating very fast. How can I do? Because of the side effects of radioactive iodine, I'm afraid to treat it.
Now I take Carbimazol vs Propanol. I can't go to hospital because of my country's conditions.
Why didn’t you take your medicine regularly? Is it an issue with supply or are you having trouble remembering to take medicine on time?
It’s difficult to offer helpful advice, as it is best to work with a doctor. We can offer guidance on which blood test to have arranged to get the best care.
Is that something you are able to do? Do you have a general practitioner or primary care doctor or possibly directly through a private lab? you would need to check your thyroid levels and make sure you have the right level of medication?
I have the same condition plus Graves’ disease to go with it I had radio iodine and had no problems after I am on thyroxine and propanol now for last 6 years and don’t get palpitations anymore I have one blood test once a year it’s a horrible disease and was pooley bfore I had my treatment now it’s a case of just taking your tablets every day without missing them I am on 112.5 mcrgs once a day and 80 mg propanol my husband has the same thing but had his removed nearly 20 years ago and now our daughter has the same disease since she was 14 and was very pooley she had full symptoms and was in hospital a lot she had hers removed 4 years ago and still not right has the meds are not fully working on her she has to go hospital every 2 weeks for bloods and medication she also has grave’s disease she is on 1000 mcrgs 2 times a week I do not wish this on anyone she has got this through our genes she is 24 years old now so hope you get it sorted
Sorry to read your post - and yes, there is a genetic predisposition to Graves Disease :
I started my learning with my Graves around 8 years post RAI thyroid ablation and learnt so much from Elaine Moore's first book - Graves Disease - A Practical Guide :
Elaine had had RAI too and finding no help with her continued il health started researching this poorly understood and badly treated auto immune disease herself and now 20 odd years later a lading well respected researcher into all things Graves.
I now self medicate with full spectrum thyroid hormone replacement, and still need to maintain and supplement my core strength vitamins and minerals of ferritin, folate, B12 and vitamin D at optimal levels. and am much improved to just taking T4 thyroid hormone replacement.
Graves is an auto immune disease and something has triggered your immune system to attack your body, it's not your fault and I understand the disappointment but you need to try and accept as you can't change what has happened.
You might like to read around Graves Disease on the Elaine Moore Graves Disease Foundation website - elaine-moore.com - and check out the section on alternative and more holistic treatment options that you can do for yourself, as it's very important to try and calm down your immune system response and understand your own ' triggers ' :
Graves is said to be life threatening if not medicated - are you being monitored at all and whereabouts are you in the World ?
I deeply regret having had RAI thyroid ablation - I don't recommend RAI treatment and believe it should be banned - but I am just one person for whom the consequences were much worse than the initial disease and I was well on the AT medication.
Many hundreds and likely thousands of other people would appear to be ok after RAI :
But they won't be here, on a forum, as most other people are unaware of this treatment's negatives, and appear to be ok and getting on with their lives afterwards.
Is there an option of a thyroidectomy in your country ?
Just thinking Elaine Moore has a forum, much like this, and has a World wide following - maybe join up there as well as write on here, and see if there is anyone on Elaine's forum from your country.
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