Short Synacthen Test - Update

[Jamima]

As a follow up to my query on SST, I had the test yesterday, no problems, took around 50 mins. I didn’t feel any worse other than slightly shaky about an hour after, don’t know if that means anything.

Just wanted to say thank-you to everyone who chipped in with their stories and advice, much appreciated.

[Hidden]

Well done Jamima hope all goes well with results best of luck x

[Jamima in reply to Hidden]

Thank you, I’ll post the results in the hope they might might be helpful to others. Bizarre coincidence/or not, I stopped all vits and ginseng around 10 days before test, and on the day of the test, I felt better than I have in almost 3 years. Go figure…

[Angel_of_the_North in reply to Jamima]

I also felt great after my SST, even though I was in floods of tears during it. I think being given ACTH must be a great relief if you don't usually make enough. I also felt wonderful after a general anaesthetic.

[Jamima in reply to Angel_of_the_North]

That’s interesting- do you think it’s because we’re not producing enough acth naturally?

[Jamima in reply to Jamima]

I’m also high as a kite after a numbing shot at the dentist - that was years ago so this must have been going on a while.

[Angel_of_the_North in reply to Angel_of_the_North]

I don't really know, but I have central hypo, which suggests a pituitary problem, and ACTH is produced by the pituitary

[Jamima in reply to Angel_of_the_North]

Thank you, hopefully something will be revealed.

[Hedgeree]

That's good to hear Jamima! Best wishes.

[Jamima in reply to Hedgeree]

Thank you.

[PixieElv]

Really good to hear. Let us know if we can help with your results.

[Jamima in reply to PixieElv]

I will, thank you.

[Hedgeree]

Hi Jamima,

Good luck with the results!

Did they do the ACTH one as well where it gets put on ice and goes straight to the lab?

I'm still waiting for my results so hopefully 'no news is good news' although I did have to do the ACTH a second time but have an endo appointment next week so I should find out then.

Take care.

[Jamima in reply to Hedgeree]

Hi Hedgeree - I’m not sure what they did - they took 3 separate blood samples before the synacthen shot, so hopefully one of those was ACTH. Tbh, the nurse wasn’t very friendly and I’m just done with pushing for help. They should be testing all pituitary hormones, can’t imagine it’s that difficult once you have the blood sample. I’ve got an appointment with private endo on 16 April, so hopefully the results will be available then. I’ll post the results when I get them.