I’ve just been reading this article here:
thyroidpatients.ca/2018/07/...
It talks about certain situations, such as illness, whereby the body may opt to lower metabolic rate by converting active T3 to the inert T2.
As such, does anyone know if it’s possible to test for T2 in the UK, either through the NHS or privately?
No - there is no T2 test. It isn't even obvious that a useful one would be possible as some of the T3 conversion to T2, and subsequent pathways of that T2, are largely, or entirely, within cells. Therefore, the bloodstream would not receive it and a blood test would make little sense.
Also, although it was a quick look, I didn't think the article said T2 is inert. T2 does in fact have roles. However, there are potentially at least three different forms of T2 - depending which iodine atoms were removed to produce it.
3,5-diiodothyronine (this is the form that is usually meant by the name T2)
3′,5′-diiodothyronine
3,3'-diiodothyronine
You don`t give up easily, do you? Recently, it was rT3 dominance, now T2…I think you cause unnecessary stress to yourself coming up with new theories all the time. Some of the rT3 converts to T2, it`s normal and I do not know of any way to measure T2, not even in the US…my advice would be to forget about it. No offence intended, but I remember how worked up you were about rT3 last month.
No, I don’t give up easily. That’s my nature.
I’m worked up because I’m dying, one way or another. I came very close to taking my own life last Sunday; it was only averted because my 5 year old daughter caught me crying and alerted my wife that something was wrong with daddy. I was crying because I had just been playing with her, and in my head it was the last time I would do that.
I am a husband and a father of two. I am the sole provider for this family, and I know if would be catastrophic for them if I were to have gone through with it. But also know I cannot go on feeling this way for much longer; watching my health, my body and my sanity decline with each day.
Four years ago I was in the best condition of my life, at the most successful stage in my career, and the happiest I’ve ever been. I feel like illness has stolen that from me. The impact on my life has been incredible, and at times unbearable.
For the record, this wasn’t a new theory. When I asked about rT3, I was pointed in the direction of Thyroidpatients.ca and an article which pointed out that rT3 is just a product of D3, which plays the role of inhibiting the effects of T3.
Reading deeper into that site, it points out that D3 can also convert T3 into T2, hence my question. I wanted to find a way of either proving or disproving a D3 related issue, rather than simply ‘forgetting about it’, as you suggest.
You know, I tried to ask the question in such a matter of fact way to avoid any additional comment on my situation. If there’s no way of testing for T2, or you don’t know, that’s all you have to say.
Honestly, if my occasional questions on this forum have an adverse effect on this community, then please say so. I will never post again. If not, then I do find some of the ever so slightly snide and sarcastic comments I’ve been getting, such as yours above, somewhat unnecessary. Compassion is an underrated quality, and also something often cited by users of this forum as lacking in their own doctors.
Perhaps there’s a frustration that I do not seem to be satisfied with the conventional advice offered on here, and I understand that. However for context, my gut feeling based on my own, unique circumstances and how I arrived here is that my issue is not borne of an unhealthy thyroid gland, but rather the way my body has altered its utilisation of thyroid hormones in order to halt my metabolism - I lost a lot of weight, very quickly, a few years ago, and I’ve been ill ever since.
That is why I’m still trying to educate myself. That is why I am still searching for answers. For as long as my heart is beating, I will continue to do so, for my children, for my wife, and for me. I cannot promise them I will liver forever, because I will not. I cannot promise them I will live for another year, another month, week, or even day. That is just where I am at at this stage.
But, no, I don’t give up. I have had to overcome many things in my life. I don’t give up.
I won’t give up.
During the last discussion we had, about rT3, you refused to listen to reason as you seemed to have made up your mind that rT3 was causing your problems. Now, it`s T2 which I doubt many here know much about as it is not measured and, as far as I know, we are not sure if the thyroid gland makes any, or if all T2 comes from conversion.My impression is that people here are very helpful, but there is only so much we can do if you will not take our advice.
Are you sure all your symptoms are thyroid-related?
Well, that’s not quite the sequence of events, no. I posted that I had very high levels of rT3, and several users pointed me in the direction of this article:
thyroidpatients.ca/2019/11/...
In a nutshell, rT3 is potentially a marker for D3, which can prevent T3 from entering cells. I asked a question in the comments section, to which I kindly received a reply, and am now doing further research into the matter.
I find the comments from users on here, the information in the article and the subsequent response from the site owner very useful, so please don’t assume that do not take comments on board. I also try to show my gratitude, because I appreciate it when people take time to try and help.
To your final point, no, I am not certain my symptoms are thyroid related. Symptomatically, they align perfectly, and I’ve ruled out many other potential ailments having seen numerous private endocrinologists. I had a TSH of about 7 at the outset, which isn’t ridiculously high, but given how long I’ve been on various treatments now, if my issue is thyroid related then I believe it’s probably more complicated than just the levels of T3 showing up in my blood stream.
What I do know definitively is this; my problems began with a prolonged period of well meaning calorie deficit and weight loss. Is it ultimately my fault I am in this position? I would say ‘yes’, as I believe you have to take responsibility for your own decisions, although life is rarely black and white and in my defence I didn’t necessarily realise something was going wrong until I was in a particularly bad way. I didn’t go to bed one day feeling great and wake up feeling terrible the next. I do also feel let down by people in the medical world too, in some respects.
Ultimately, I’ve tried to approach this is an exercise in trial and error. I feel like I’ve ruled out the most common scenarios, both thyroid and non-thyroid related, and given that most medical professionals who have seen me seem perplexed, it leads me to believe that whatever’s afflicting me is something less common and more unusual.
Well, I wish you luck…you will need it!
BTW, this recent post is very enlightening; several experienced and knowledgeable members offering advice to no avail. If you keep asking for advice without listening to it, you risk alieniating others. I will not be reading any more of your posts which is why I can speak my mind. But this is a patient forum, so maybe you are expecting too much if your life is at stake.healthunlocked.com/thyroidu...
Again, you make assumptions. Too much dabbling perhaps, but I took a lot of the advice from that previous thread and dialled things right back. The issues I referred to there have subsided, thankfully.
The only thing I took exception to was the slightly passive aggressive and sarcastic nature of some of your response.
Maybe my expectations are wrong. Maybe I’m going about things the wrong way. Maybe I’m taking things too fast. All I did here was politely ask a question.
It’s ok you saying that I should take the advice dispensed as gospel and wait patiently, all the while watching my career, my health and my life go up in flames around me. Maybe YOU are right, maybe if I sit tight and follow the advice, then all will be ok in time.
For the most part, I do follow the advice given to me, both on here and by my endocrinologist. However, if the advice from either source turns out to be incorrect, for instance because the cause and nature of my illness is atypical, then at least continuing to search and research in the meantime feels more productive if nothing else.
I’m just trying to give myself the best chance possible.
I wish you all the best.
I think you should cut JonnyA a bit of slack, he’s obviously really struggling at the moment and a kind word goes a long way. I haven’t yet felt suicidal with the frustration I feel with consultants and doctors who don’t offer any helpful advice but I have felt extremely down and depressed when I don’t get the answers that I want but different people react differently in these situations so just try a little compassion 🙂
I am not a psychologist or a psychiatrist. I have tried to help the OP in previous posts and recognise a pattern - refusing to listen if you don`t say what he wants to hear. Compassion does not equal saying what someone wants to hear no matter how crazy it is. And I really do not need any lectures on my behaviour.
I understand what you are saying but if you feel so strongly about this, then perhaps don’t make a comment if you feel it’s falling on deaf ears.
I am also learning by trial and error and completely understand you looking at every Avenue. For me, what has absolutely worked is getting my folate, magnesium and other vits all high enough in ranges and getting my T3 high. My tsh was also never that high but I think that is irrelevant. Key is getting T3 high enough to start feeling well. Good luck.
JonnyA .
Sorry to hear your having a really hard time with it at the minute, nothing wrong with trying to get to the bottom of whats going on with your health, I've been there myself at the beginning. May I advise you find yourself a good Naturopath doctor. Unlike conventional doctors, they will get to the root of the problem and not just offer a band aid. Wishing you luck on your journey.
Jonny, the situation described conversion t3 to t2 during critical illness when the patient was given T3 intravenously.There are no tests for T2.
Jonny A , I definitely remember a study posted on this site some years ago, which stated that in times of illness, when the body does not need much T3, possibly because the patient is not physically active, the body stops or slows down converting T4 to T3. I will trawl through my binder which is full of useful studies and see if I can let you know.
I believe that is when the body increases rT3 production to slow down metabolism and save energy. I have seen it referred to as Euthyroid Sick Syndrome (ESS). As fas as I know, T2 is not relevant in this context.
Jonny, I have been where you are. It is a terrible existence. I spent 2 years all but bedridden barely able to think and feeling very ill. I had to stop working. I looked for all sorts of reasons for me being the way I was. I gave up on looking for a reason based on the function of thyroid hormones and began to look at the transporters of energy to the muscles and other metabolic functions which must have been downgraded by my dire lack of thyroid hormones. I started taking mitrochondrial rejuvenation vitamins as a result of this searching.
What I have concluded now is that what we are looking for is a needle in a haystack. Our body's systems got downgraded and some got switched off. Our body had to learn to work on very little so it covered the bare necessities for survival. The interaction of all the chemicals and hormones that make us function is so complicated that we will never find what is causing our symptoms - which hormones or chemicals are currently out of kilter.
What I think we can do in this situation is give our body what it needs and trust that it will adapt again thanks to having adequate thyroid hormones, vitamins, good food, determination, patience and a positive outlook.
Now I can't tell you if this will work because it is a journey I am on and it is a slow journey. I make sure I eat well. I have a drink or two occasionally. I have my FT4 and Ft 3 levels in normal range over half way (where they ended up on the doses I felt okay with). I try to walk a little each day and I measure my success by the things I have done, not by the things I can no longer do. My next goal is to be able to go away for overnight and enjoy a 2 day holiday without taking weeks to recover. I don't know when I will achieve this but today the sun shone and I was out in it.
Hi JonnyA
I’m sorry you’re having such a hard time. It’s distressing to read and i empathise with you completely.
You are not alone to have such dark times. I think the majority of people on this forum have experienced the despair that comes from the inability to regain wellness…. BUT we are here because we are keeping the faith that it is possible to feel better than we do.
I have read Lalatoot’s post above and ditto an awful lot of it. I flicked through your posts very quickly I am afraid but didn’t see anything on NDT? I only mention it and I may be well off course here but there are some people that just don’t do so well on synthetics so I wonder if you have tried or thought of trying it?
I’m not going repeat lalatoots comments but It is tough and I think acceptance of this is one of the hardest things for this invisible illness. Frustration abounds and after trying differing doses of t4/3 for a year I am still going because at times I have felt the glimmer of hope that improvement is possible. However having read others posts on trialling NDT after synthetics I just thought I’d mention it. It may not answer your technical questions but it may be useful to consider as alternative to try. I’m sorry if I am going over old ground.
Please please talk to GP, psychologist, and get help.
Depression and thyroid often go together
You may need help with mental health issues at same time at looking at thyroid
There’s no easy way to break this news—but even having an optimal meds for hypothyroidism may not resolve the issues you have.
My TSH is suppressed, my FT3 is high in range, my FT4 in range (I take NDT and a side effect for me seems to be that FT4 never goes up the range very much). My vitamin and mineral levels are generally good though I have to work at keeping them optimal.
And yet… I remain 6 stones overweight. I am low in mood a lot of the time. I really don’t like the way I look, I don’t have a lot of energy (which is great fun because I too have a very full on job) but I’ve ruled out pretty much everything and had to conclude it is what it is.
I’m not saying I’ve given up on ever feeling better than I do now, I haven’t. But I’ve realised that obsessing over whether I tweak this, add that, take away this etc is just a waste of living.
I don’t know how overweight you are—I’ve scrolled back through posts but I can’t see that you’ve ever said? I did spot that you were underweight for a while as a result of diet and exercise. I’ve never been there (LOL—I sort of wish! 
) but I am fairly sure I ruined my metabolism with excessive dieting. And excessive exercise, as you get older, is likely to lead to an injury you won’t be able to shake off.
And stressing in itself is scientifically proven to lead to weight gain. For a number of reasons—a rise in levels of cortisol, insomnia (sleep is annoyingly important when it comes to weight loss—guess what, I don’t sleep that well…).
You do know that being overweight isn’t a crime, don’t you? What’s really driving the desire to lose weight—is it all about energy levels? Appearance? How did you feel before you lost weight?
There’s an element of “Jazz, practice what you preach!” in this advice, but I think what others here have been getting at is that finding wellness again tends to be a marathon not a sprint. Meanwhile, you still need to live and not put life on hold while you find the answer. If that means pacing yourself, then so be it. I know you’re rightly proud of your job—but how much stress is it causing you?
Oh and edited to add, as I’ve just seen this in one of your replies above:
given that most medical professionals who have seen me seem perplexed, it leads me to believe that whatever’s afflicting me is something less common and more unusual.
Oh, you’d be surprised. A ridiculously high number of us here have “perplexed” health professionals. Essentially, all chronic illness perplexes health professionals. That doesn’t make it unusual, just tricky to fix. It’s much easier for doctors to fix broken bones or arrange for heart valves to be replaced.
Thanks for that. In terms of the weight question; I’m not technically overweight - I am in a normal BMI range and still have a decent level of muscle from when I was able to train most days.
But I went from being afraid to take my shirt off on the beach to being about 8% bf and having a six pack for the first time in my life. I went from never being truly comfortable in my skin to a level of self confidence I’d never had in my life before.
If that sounds vain, I was never a vain person. The original reason for deciding to lose weight was triggered by my cardiologist.
I have a bicuspid aortic valve, which means that my blood leaks back or ‘regurgitates’ as it leaves my heart. That, over time can lead to deterioration or an aortic aneurism which requires major surgery.
I was advised to lose weight for the benefit of my long-term health, and so that’s what I did, mainly so that I could see my children reach adulthood without requiring that surgery and the risks it brings.
I was trying to save, or at least prolong my life for my kids’ benefit. There’s a cruel irony that I find myself where I am now, feeling as I’ll as I ever have, physically and mentally.
Evidently I made mistakes, so I need to suck that up. But to people who point that out to me (my wife is the first one to do that), I would say that I was like a frog in gradually boiling water.
I threw a couple of things were ‘off’ in early 2017, but they were so minor and so vague that I didn’t think anything of them. It wasn’t until August 2018 I realised there was something bigger at play, but even then medical professionals would tell me all was ok. I looked great, so I must feel great, right?
If I could have my time again I would do things differently, 100%. But I can’t turn back time now.
Wouldn't we all do things differently if we had our time again?!? But, one thing you have to realise is that whilst things might have been different, that doesn't necessarily mean they would have been better.
There's no point in playing the blame game - I blame my ex husband for mental abuse, but what does that change? And, in your case, I would lay a lot of the blame at the door of your cardiologist. It's all very well to tell patients to 'lose weight' - how many time have I heard that? - but what are they supposed to do? There isn't a little switch we can flick that magically makes us lose weight. It's a very, very complicated business, and there aren't any doctors that can help you do it safely, because they just haven't got a clue! They just keep parroting 'calories in vs calories out', and don't have the slightest idea that with a human body, it just doesn't work like that. So, unless he was in a positon to tell you how to do it, he should not have handed out that 'advice'.
But, in the end, it really doesn't matter whose fault it was. The situation is now there, and we have to deal with it - which is what you're trying to do. But, continually beating yourself up isn't going to help - could even make things worse. So, forgive yourself for any little mistakes you might have made, after all, you're only human, and you did what you thought was for the best. It's what you do next that counts.
So, what do you do next? That's the question. And, call me crazy, but I'm going to make a suggestion: stop everything and start again. Yes, that's pretty radical, I know. And, doubtless a lot of people will thing me insane. But, at one point I got up to 225 mcg T3 only and still felt hypo. What I did next you can read about on my profile, if it interests you. But, let's just say I don't regret what I did. But, up to you to decide what you want to do.
JonnyA - I think greygoose has put it perfectly regarding the blame game thing. You can’t know whether things would have been any different if you’d done things differently—in fact, they could be worse! You did the best you could with the info you had at the time.
As for starting again—Greygoose might be on to something. Your TSH levels weren’t that high (they weren't great either) but it might have been too early to start thyroid hormone replacement.
JonnyA,
I absolutely agree with greygoose (for once 🤣🥰) in suggesting to go back to the beginning.
You raised thyroid meds so fast you didn’t even optimise your Levo levels and for all you know you may never even have needed to add T3 meds.
I would raise Levo slowly and only after many months of optimal T4 levels with adequate iron & nutrients so giving best chance of Levo working, will you know if T3 should be added.
You have read a little about the workings of the deoidonases, know how long med adjustments can take to optimise their effectiveness and how medicating excess hormones doesn’t all just get peed out but a proportion risks becoming counterproductive.
This should reverse given the right environment, supports and time and you need to believe you will recover but set your sights on much longer recovery period 😊
JonnyA
Having followed your difficult journey and having shared many of your challenges I'm now extremely concerned about your mental health and the effect it must be having not only on you but on your wife and young family.
You reaĺly must see your GP and explain exactly how you are feeling, hiding behind "a mask of bravery" in public really doesn't help anyone.
Is that how you are trying to cope right now? Been there....it's soul destroying!
Depression is a red flag signal for hypothyroidism!
As you know every cell in the body needs an adequate and constant supply of T3, it must reach the nuclei of the cells to becomes active.
For a small cohort of hypos ( myself included) they can have a high FT3 and medics immediately conclude, " overmedicated".
I self medicate and my GP thought my high FT3 meant I was about to kill myself....I had done my homework and knew what I was doing!
But, they may be overlooking the fact that while sloshing around in the blood that T3 remains inactive....it must reach the nuclei of the cells via T3 receptors ( as above)
Very basically, it takes a supraphysiological dose of T3 to act as "a battering ram" against hormone resistance, so that enough of the hormone is "forced" into the cells to do the job required of T3.....the remainder is eventually expelled by the bladder and bowel.
It has just dawned on me that an ebook available on Amazon for £3.56 or free if you have Amazon Prime might help. It is called "Impaired Sensitivity to Thyroid Hormone (Thyroid Hormone Resistance)" by Hugh A Hamilton. I found it very informative with lots of references to research papers.
Don't beat yourself up, this isn't your fault, it's a problem many of us here understand....we are all different but sadly we are all expected ( by medics) to be the same!
If it helps to off-load here then fine.
Just try not to get so bogged down in the minutiae that the important details escape!
Good luck!
Thanks, and I will promise I will seek support. I am your typical man on that front, and if you met me in the street I’d greet you with a big smile and a joke or two. Only my wife knows, really, and yet I don’t think even she ‘really’ knows.
The thing I find confusing, and perhaps the thing that one or two have taken me to task over, is the contrast in advice dispensed.
You talk about a very large dose. I tried that, felt no better but experienced a racing heart and palpitations. I dialled down on the advice of others, but where’s the right place for me?
And that’s why I asked my original question. I am looking for clues or markers which might point me in the right direction. It’s a confusing place to be.
I will have a look at that book though and give it a read. Thank you!
Hope it helps...
Sorry to repeat myself but you did rush headlong into that high T3 dose and little wonder your body rebelled with racing heart etc.Perhaps rather than 'advice" you need to look at responses as being members personal experiences. They offer different perspectives on what is a hugely complex condition. No two people are likely to need identical solutions which is why finding our way forward takes incredible patience...something frequently in short supply!
Believe me I understand how hard it can be to exercise patience in this context.
The bottom line is that we cannot tell you what to do, instead you must use a mix of reliable information ( and beware, there is a lot of questionable and badly sourced information readily available on the Internet!) and pick out possible clues from the experiences of members here....which you appear to be attempting.
I found keeping a journal ( or spreadsheet) essential....I guess you do that too.
From there you can gradually extrapolate what works and what doesn't.
Basically, trial and error.
But that trial and error needs to be at snail's pace not at supersonic speed!
Without that approach you will fail!
As for...
given that most medical professionals who have seen me seem perplexed, it leads me to believe that whatever’s afflicting me is something less common and more unusual.
I think you would find that most of us here have been there!
Sadly their time in med school has not provided many medics with the tools to see beyond the very basic workings of the thyroid gland and thyroid hormones. The medical profession need to listen to the (thyroid) scientists because that is where the answers lie!
Slow down and admit that you need time to recover...
Jonny I'm so sorry you are feeling so bad. It seems to me that you have had a lot of changes to your life in the last few years - good and bad - and this alone can sometimes lead to clinical depression as the brain tries to adapt to all the new information that is being thrown at it. I don't know the answer to the problem you post here but it might be an idea to consider a short spell of anti depressants. I know opinions will probably vary about this, but they could just give you a brief respite from all the difficulties you are facing and when, slowly, coming off them after, say, six months, you might find yourself better able to look life in the eye and go with the punches. You have everything to live and fight for and will probably look back on this time as a definite learning period. Who knows, you might even find your experiences enable you to help others. Good luck.
Hi, I have personally found it essential to look at the whole of my health/lifestyle as opposed to just thyroid levels. Just about any disease seems to be associated with gut health and dysbiosis including Hashimoto’s. Hashimoto’s commonly comes along with gut issues and food intolerance which can drive other symptoms in the body. A low carb diet has been very helpful for me. I have also eliminated gluten but it wasn’t until I started experimenting with elimination diets that I found some foods were causing me issues. The trouble with food intolerances is that symptoms don’t always come on straight away but can take up to several days to show themselves. As such, foods can be overlooked as culprits. My dad for example cannot tolerate the type of casein in cows milk as it gives him severe migraines but it can take up to a week before the migraine manifests after consuming A1 casein. The diet I feel my best on is meat, fish with carbs being green leafy veg only. I also take supplements and regularly take Medichecks advanced thyroid test so that I can keep an eye on what’s going on. Thyroid meds aside, experimenting with diet and lifestyle has been major for me in improving my health and symptoms. 🙂
JonnyA please.... find a counsellor to talk to properly about how you are feeling.
Please forgive me if i 'm talking out of turn.. but a perspective from someone at the other end of parenthood may help....
You may , or may not, ever be able to regain your health.
Your business may fail, or you may have to adapt.
Your well earned lifestyle may go down the pan. And despite you best efforts you can't always control this. 'Life' will do as it wishes with you.
But you children need you to stick around no matter how badly you may fail at being the provider you wish to be , no matter how shit you feel about yourself , and no matter how much your life falls to bits .
They will survive all sorts of calamities, shocks and deprivations , and still find their way in life ..... as long as they still have you around .
The life i had planned for myself and my kids fell apart after i had thyroid problems .... and i didn't ever manage to fix myself... but despite having a 'useless' parent (as i often felt i was) , and growing up with no money, and without many of the life experiences i wanted to give them... they are now both doing very well as adults .
Had i 'checked out' when my head was telling me that my failings were doing them more harm than good .. i'm fairly certain (now )that the effects on them would have devastated their future prospects.
Even if you never get any better than you are now .. even if your business fails and you all end up living in a bus on handouts... even if you can't ever afford to take them anywhere interesting.. as long as you are there and love them , they will surprise you with their success at life... as long as they know you stuck around to be their anchor .
So at the same time as your very rigorous search for the answer to your physical problems... please make sure you also look for someone that you can safely unload your darkest feelings and fears to.
No man is an island.
Sorry for the unsolicited 'mum' talk .. but if my son was in as much distress as you . i would want someone to tell him the same.
Definitely x
Being the mum of a psychologist I know how much getting things off your chest helps.Please tell your GP everything and go from there and explain your concerns.
Sometimes you have to put that link in their heads that you’ve already made a connection with, and work to rule things out one at a time.
I have obsessed beyond belief about my thyroid as being missing link to my problems and actually it’s had the opposite outcome along the way.
I was getting more and more uptight and in turn in my case I was getting worse spasms which drove me to look even more and it caused more anxiety mixed in with peri menopause it had me all over the place and couldn’t get off this cycle of problems.
I had to look at everything as seemed nobody else would, with that fight and flight attitude my hormones were all out of whack and I was spiralling out of control and wasn’t getting anywhere and absolutely exhausted.
Obviously being of a certain age I had other hormonal issues too not just an under medicated thyroid, but it wasn’t helping things.
I told GP I had to once and for all get to bottom of things eliminate my thyroid as my problems, and pointed out various areas she couldn’t now after 8 yrs ignore, as I’ve ruled out one thing after another all my bloods (ones they’d do) were well in range and for my own sanity I needed referral to look at things beyond her help.
Finally referred and it was like a weight had lifted off my shoulders, my mood and spasms lessened I realised although there’s a definite muscular problem, I do have a lot of control on how bad it can be, and being uptight really doesn’t help me at all.
The body keeps the score by Bessel van der Kolk, hold this belief various traumas we encounter can resurface and manifest anywhere in the body.
I was obviously laid up in 2012 not knowing if I’d walk again but within a few weeks I did manage to walk and was told I was very lucky, as disc had hit my spinal cord, this lead to various tests, with hypothyroidism and two weeks later coeliac disease, and pernicious anaemia diagnosed.
I had been relatively well I had asthma and couldn’t shift weight after birth of my daughter but plodded on as you do with nothing else wrong.
This coeliac disease I actually took to very well, but I think the alienation it gave me and constant worry of being glutened, having to always constantly consider where I can get food from or having to prepare in advance has manifested as anxiety and caused pain elsewhere and how I hold myself makes this area more problematic.
I think all that has been all pent up in me and the slightest stress I get it’s triggered, pretty petty in comparison to many others problems, all the same we all show our problems in different ways.
I still like you have to research things to a point which is above and beyond, as that’s my coping mechanism too, but with it over the years I have had to also distract myself from doing it as much as it can have opposite outcomes.
It’s a very hard thing to do, when you don’t feel well and seems only ourselves are actively doing something about it, but you also need time off from these thoughts.
I know it’s easier said than done.
I hope all the hard work pays off but you need to share those thoughts with GPs see if they can refer and go from there.
Don’t try doing it all alone.
Let us know us know how you get on.
I read your post with concern. I am a Clinical Hypnotherapist and I feel from reading some of your previous posts too, that you are listening to your self talk in your mind that is telling you the absolute worst. You are convinced that you are gravely ill (and yes, I know you have an aortic issue) and this will be causing you to have a high level of cortisol which is not going to help any thyroid issues. Having suffered burnout myself (which is how I got into other therapies) I can tell you that it causes a lot of similar symptoms! I think it would benefit you to do some kind of relaxation and get your head in a good place so you can stop looking for answers here, there and everywhere which contribute more to your anxiety. Depression and anxiety go hand in hand. Thyroid problems give you depression and the ability to look for doom everywhere, don't I know it!
If you're mind is in a good place you can just read information and evaluate it constructively instead of immediately linking it to yourself and creating more anxiety.
As you say you are in Yorkshire perhaps you would listen to another Yorkshire man on his YouTube channel Hypno4all where you will find some useful sessions to help you out of your despair. You might like to try the Recovery from any physical illness track. It is clinically proven that the mind makes the body sick as well as vice versa and your mind cannot distinguish between what is real and what is imagined so the more you convince yourself that things are not right, the more the chance they won't be.
I wish you all the very best. x
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