Advice and opinions please?: New results back and... - Thyroid UK

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Advice and opinions please?

Baggiesfan profile image
6 Replies

New results back and got zoom consultation with private consultant in two days. Can I have your advice, opinions please? They're a bit better but I don't really feel it. Ectopics continuing and driving me potty, but is this just me? I don't feel unduly anxious 🤷‍♀️. I currently take 75mcg levo per day and 5mcg T3 twice a day.

T3 5.2pmol/l (range 3.1 - 6.8). Was previously 4.9.

Thyroxine 14.6pmol/l (range 12-22). Was previously 10.3. I did increase my levo a little myself on 2 days to 75mcg as was 50mcg. So I now take 75mcg every day if that makes sense.

TSH 0.08mu/l (range 0.27-4.2). Was previously 0.09.

I welcome any comments and advice as I really want to get the best out of my next consultation, I really can't afford to keep paying every couple of months and NHS no help whatever so far.

Many thanks for reading.

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Baggiesfan
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6 Replies
SlowDragon profile image
SlowDragonAdministrator

So how long have you been on 75mcg every day

Do you always get same brand levothyroxine at each prescription

Have you tried splitting levothyroxine dose

Was test done as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test

Last 5mcg dose T3 8-12 hours before test

Are you sticking to absolutely strictly gluten free diet

Baggiesfan profile image
Baggiesfan in reply toSlowDragon

Thank you SlowDragon for replying, been on 75mcg a day for about 8 weeks now. No never tried splitting levothyroxine, I seem to be forever taking things with the vitamins to fit in! I took finger prick test 07.15, nothing only water before, last dose over 24 hours prior to it and last T3 11 hours before as advised on here. Not strictly gluten free but trying really hard and only the odd slip up. 😊

SlowDragon profile image
SlowDragonAdministrator in reply toBaggiesfan

As you are taking T3 twice day …..it’s relatively easy to split levothyroxine taking at same time as T3

Something to consider possibly in New year

Quite a few members find it helpful

Baggiesfan profile image
Baggiesfan in reply toSlowDragon

Thank you, might try it. Got zoom meeting in 2 days, hopefully will be better than last time fingers crossed.

thyreoidea profile image
thyreoidea

Hi Baggiesfan, When you say eptopics are you referring to what I call missing heartbeats as that is what it feels like when checking my pulse, if so how frequent and when do they occur.

Baggiesfan profile image
Baggiesfan in reply tothyreoidea

Yes thyreoidea, it's the same thing. The heart fires an extra beat but as it's weak we don't feel it, then on the next beat there is more blood in the heart to pump out so it's more forceful, which is why it feels like a thud in our chest or a missed beat when checking your pulse.I get many times a day, often every 2nd beat and it can go on for hours sometimes. I'm sick to death of it interfering with my life but told not to concentrate on it, many people have them and don't notice! I don't think about them, they just happen even when I'm busy concentrating on other stuff. If you find a solution please let me know and I truly hope you will soon x

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