6 weeks on ERFA. LATEST RESULTS: Please could you... - Thyroid UK

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6 weeks on ERFA. LATEST RESULTS

aliwt profile image
13 Replies

Please could you help me to understand my latest blood test results?

I have been taking 30 ERFA for 6 weeks, alongside reducing my Levothyroxine and feel so much better.

I’m due to see Endocrinologist next week but have just got these test results and can’t wait to understand what they mean! I know you clever people will understand them.

Thanks in advance xx

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aliwt
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aliwt profile image
aliwt

6weeks ago!

Results
pennyannie profile image
pennyannie

Hello again ;

Well I'm glad you are feeling somewhat better and the most obvious reason for that is the rise in your T3 levels from 3.63 to 4,76 and the decrease in your TSH from 3.27 to 0.34.

You have raised antibodies and presume you have Hashimoto's and you can read further on this AI disease on the Thyroid UK website.

Many forum members follow the research and work of Dr Izabella Wentz with regard to healing the gut to maximise conversion of thyroid hormone replacement and look at certain food intolerances such as gluten, dairy, wheat etc and it is also suggested that you get checked out for celiac disease.

I don't know if you are still taking T4 alongside this small dose of NDT so am not able to advise on your next dose increment and no doubt your endo has " a plan " to continue your improvement.

There is still a question to ask with regard to your very high ferritin - it has been well over range on both these blood tests ?

Your inflammation ( CRP ) - has jumped from 1.9 to 4.49 in these past 6 weeks and this might be because of the ferritin level, or because of your raised antibodies, or maybe there is something else going on that we don't know about.

Folate needs to higher at around 20 and I'd aim for around 100 on your vitamin D.

Onwards and upwards :

aliwt profile image
aliwt in reply topennyannie

Thanks so much for that information. I’m still taking Levothyroxine and instead of taking 75 per day, I’m currently taking just 50 or 25 on alternate days with ERFA at night. I do feel a lot better but not sure if I should aim to get better than this? I’ve felt so rough for years.😙I don’t know about my high Ferritin levels? What could that mean?

Nobody has ever mentioned hashimotos to me?

Thanks

in reply toaliwt

Hashimoto´s is treated the same way as other forms of hypothyroidism (by taking replacement hormone). The test is usually ordered just to confirm autoimmune thyroiditis which is the most common cause of low thyroid function. I interpret your results to be negative for Hashimoto´s, but once you are hypothyroid the reason doesn´t matter much as you will still need replacement hormone.

Imaaan profile image
Imaaan in reply toaliwt

Hi,

Your post caught my eye. I'm on 75 mcg of Synthroid currently and possibly thinking of trying Erfa. Do you only take one dose of 30mg or two doses of 30 mg?

aliwt profile image
aliwt in reply toImaaan

Hi, I just take one dose of 30 mg at night. It has helped a lot but I see the endocrinologist next week so he might change it. I recommend trying it.

Good luck

Imaaan profile image
Imaaan in reply toaliwt

Thank you and I wish you all the best on your journey

pennyannie profile image
pennyannie in reply toaliwt

Oh, I'm so sorry I read 55.500 as 550.00 - apologies.

Well seeing as you feel so much better I'd think I'd want to build on this and I would be considering loosing the T4 and increasing the NDT :

Your ferritin is very high and well over range and I think you need to know why :

High inflammation can be linked to high ferritin but I think you need this further investigated.

pennyannie profile image
pennyannie in reply toaliwt

Just looked back and two months ago SSusie highlighted your ferritin level then :

It could just be hereditary but it does need to be investigated.

in reply topennyannie

I was in fact wondering how to interpret those results...are the TPO levels really 67000 or 67,7? They are not flagged as abnormal so I think the anti-TPO levels are 67.7 and the anti-Tg levels are 11.9 so negative.

tattybogle profile image
tattybogle in reply to

it must be 67.7 .. so 'in range' .. they have used red crosses to indicate 'out of range' results..

tattybogle profile image
tattybogle in reply topennyannie

TPO antibodies are actually in range 55.5 [ <115 ] (and 67.7 in other photo ) but for some silly reason they are written as 55.500

... in range results identified by green * .... instead of 'red x' for out of range results

in reply totattybogle

A bit confusing!🙄

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