Hi all I have just been on the phone with my Endocrinologist and I am really fed up with how my condition is managed. As with most people GP's and Endo's are only looking at TSH when checking my bloods to decide the dose of medicate and I have told him I don't agree with this rationale.
Both my GP and Endo told me to reduce my Levo to 100micrograms a day since my last appt in July (I am actually taking 150 and told my GP about that) My TSH is 0.2 miu/L (0.27-4.2) I have also been taking some Vitamin B12 and D supplements since then, which did make me feel a bit better. Now, today my Endo told me to reduce my Levo to 75mcg a day!
In my previous communications regarding the addition of T3, he said there was no evidence to support that I would benefit from that, besides the fact that I won't get it prescribed in my area, so I take that as a refusal to even consider prescribing T3.
Now I understand that my body may not need as much Levothyroxine as I have actually managed to lose 2 stone, now at 13st. since May this year and keep it that way by cutting out refined foods, sugar etc. But to reduce my Levothyroxine to only 75mcg seems way too low.
The other thing I mentioned to the Endo was chronic stress (financial and physical, as I am currently not working due to a back injury) and what impact it could have on my body's function to absorb or convert T4 to T3, he seems to dismiss that there could be any link at all, but he seems to think that whatever I have read on the internet cannot be evidence based because 'I found it on the internet' !
I have actually said that there is a possibility that he could be wrong, or that doctors are trained to only look at TSH to determine what dose of medication I should be on. Either way, to me it just sounds they're too arrogant to admit that Thyroid Function Tests are not always that reliable.
I am just so fed up with being fobbed off like that and would go private if I could afford to so, but I can't!
Rant over, really needed to get off my chest.
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Black_puma
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Previous post shows you have terrible poor conversion of Ft4 to ft3
Ft3 rock bottom
Vitamin D insufficient at 30nmol
How much vitamin D are you currently taking
Vitamin D needs retesting after 3-4 months
Aiming to improve to at least around 80nmol and around 100nmol maybe better
How low was B12
Exactly what vitamin supplements are you currently taking
folate and ferritin need testing
Vitamins are low because Ft3 is low
Ft3 is low because vitamin levels are low …..and vitamin levels invariably drop when dose levothyroxine keeps getting reduced
Roughly where in U.K. are you
Which CCG area
How much do you weigh in kilo
Guidelines on dose levothyroxine by weight is 1.6mcg per kilo per day
Always get same brand levothyroxine at each prescription
Do you currently take levothyroxine waking or at bedtime
Always take on empty stomach and then nothing apart from water for at least an hour after. No supplements within 2 hours, no vitamin D you swallow within 4 hours of levothyroxine
Can only repeat what I wrote to you on my previous post and would suggest you buy your own NDT and get the health back that you once had using this form of thyroid hormone replacement.
Hi, thanks for that information, I'll make an appointment to talk to my GP about my low vitamin D and haemoglobin tomorrow to see if I can get a prescription for that whatever I need, unfortunately they don't test for anything much, like folate, ferritin and B12 results and ranges I would like to go privately but I'm not in a financial position to do so, have applied for some benefits but waiting for response, the only money I have coming in this week is Statutory Sick Pay and board from my youngest daughter who still lives at home.
I think maybe we have to stop using the words “I read on the Internet”.
Most of us are quoting research we read on the Internet—proper studies, the words of esteemed endocrinologists. And I bet most doctors actually access their research on the Internet these days too. At least, those who bother to do any reading. Which doesn’t seem to be many of them.
Doctors, especially NHS doctors, ( However this doesn't exclude private doctors, btw) are very keen to dismiss our resources as being found on the internet, though, yet they don't appear to be updating their own education and don't like being called out on it, which is what I have tried to do. That's arrogance and ignorance on their part. I am having to do my own research, like most of us, hence this we are using this site to express our frustrations with the lack of our doctors willingness to learn beyond their medical education, so it seems. their reliance on medicating based on TSH is indoctrination at best.
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Latest bloods - GP reducing my levo :( 
Latest letter from NHS Endo
GP/Endo rant - help on TSH
