Query re iron deficiency blood tests when hypot... - Thyroid UK

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Query re iron deficiency blood tests when hypothyroid and low B12

smilingjane profile image
17 Replies

Hello Thyroid people

I have just posted below in the pernicious anemia forum and realised that there are links with Thyroid issues.

I posted a while ago with queries re a low B12 count. I have that sorted and SI daily now.

My complexion until 2 years ago was a farmer giles type red/pink ☺

Over the last year I turned very pale. Now the paleness has gone but I'm very slightly a bit yellowish.

I was told 2 years ago that I dont have PA. I just had bog standard FBC at the time though so maybe that didnt show? I also have hypothyroidism.

My query is what do you think are the blood tests that I should be ordering? If I want to test for every kind of anemia?

I am not confident that my GP will request all that's really needed. So I am thinking I may do the tests with one of the online test companies.

Thank you in advance for all of your advice and shared situations.

Jane 😊

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17 Replies
Jazzw profile image
Jazzw

Well. :) First of all, welcome.

I bet you already know that there isn’t a definitive way of diagnosing pernicious anaemia. The test for PA very often comes back negative in people who are then eventually tested again and found to be positive. So whoever told you it isn’t could easily be wrong.

Being slightly yellow-tinged can indicate liver problems. Has your doctor done any liver function tests?

How are you feeling? Do you feel unwell?

smilingjane profile image
smilingjane in reply toJazzw

Hello Jazzw and thank you for my welcome 🌝

Yes I am aware it's a tricky one to determine.

Ah now I think you may have hit the nail on the head.

I had elevated liver enzymes and scans over a year ago. It was discovered that I have a very slightly dilated Pancreatic duct.

The last letter from the hospital stated that I have stable structures. I need to seek the letter out but as I remember they were going to recall me annually for a scan to monitor.

As to how I feel, my appetite disappeared months ago. I am always tired and mostly in bed.

I just eat ice cream and yogurt.

And boiled sweets for energy.

I put it down to a side effect of the Oxycodone that I take for restless legs but now I am not so sure.

I need to research stable strictures!!

Thank you so much for pointing the liver aspect out.

Jane 🤔

smilingjane profile image
smilingjane in reply toJazzw

Hi JazzwTo let you know I called the hept team I'm attached to at the hosp today and blood tests, LST and U&A along with Thyroid and FBC have been arranged for Monday.

Thanks again for your thoughts 😊

humanbean profile image
humanbean

Have you had some iron deficiency tests? I'm not clear on whether you've already had them or if they are coming up.

Have you got any iron results to share?

smilingjane profile image
smilingjane in reply tohumanbean

Hello HB Thanks for getting back 😊

I have an online FBC test done around 6 months ago.

I will try and copy and paste if it let's me.

humanbean profile image
humanbean in reply tohumanbean

Sorry, just re-read your post.

For an iron deficiency test I always do this one :

medichecks.com/products/iro...

An iron deficiency test will tell you if you are low or deficient in iron. But it is possible to be iron deficient without being anaemic.

You should find these links of interest :

irondisorders.org/wp-conten...

restartmed.com/hypothyroidi...

who.int/vmnis/indicators/ha...

ncbi.nlm.nih.gov/pmc/articl...

onlinelibrary.wiley.com/doi...

smilingjane profile image
smilingjane in reply tohumanbean

Thankyou so much .As always, reliable and informative and most importantly... there 🤗

Noelnoel profile image
Noelnoel in reply tohumanbean

Hi humanbean

Your links look interesting so I’ve tried to open them but can’t. It just says: bad request 400 on all of them. Not sure whether it’s my phone or the links because I notice no one else has mentioned a problem but if you have any suggestions I’d be grateful

Thanks

Stourie profile image
Stourie in reply toNoelnoel

Hi Noel I’ve just tried the first link and it worked for me. Just letting you know. Jo xx

Noelnoel profile image
Noelnoel in reply toStourie

Stourie

Thank you for letting me know. Must be my phone then. Will try on my iPad later

helvella profile image
helvellaAdministrator in reply toNoelnoel

Just tried all of the links - and all worked for me without any issues at all.

Noelnoel profile image
Noelnoel in reply tohelvella

hellvella.

Thank you for letting me know. Must be my phone then. Will try on my iPad later

smilingjane profile image
smilingjane in reply tohumanbean

That first link is particularly helpfull and makes the iron test easier to understand. Going to print at east that one out 😊

SlowDragon profile image
SlowDragonAdministrator

You need FULL thyroid and vitamin testing

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Also EXTREMELY important to test vitamin D, folate, ferritin

Low vitamin levels are extremely common, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

If TPO or TG thyroid antibodies are high this is usually due to Hashimoto’s (commonly known in UK as autoimmune thyroid disease).

About 90% of all primary hypothyroidism in Uk is due to Hashimoto’s. Low vitamin levels are particularly common with Hashimoto’s. Gluten intolerance is often a hidden issue to.

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

List of hypothyroid symptoms

thyroiduk.org/if-you-are-un...

smilingjane profile image
smilingjane in reply toSlowDragon

Thank you Slowdragon Information spot on as always.

🤗🤗

I have booked NHS bloods for Monday and will follow with more privately if some missing.

SlowDragon profile image
SlowDragonAdministrator in reply tosmilingjane

Hopefully it’s an early morning appointment

smilingjane profile image
smilingjane in reply toSlowDragon

Of course my friend 😊

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