Well mixed feelings really, endo couldn't really tell me what is causing my symptoms. Mainly relied on gp blood tests and as tsh was normal wouldn't do any other blood tests. She did however refer me for thyroid and lymph node scan and has referred me to ENT. She wasn't really interested in my list of symptoms and said they weren't thyroid related 😡. She wanted refer me back to gp but as gp had referred me to her to find the problem I said that wasn't acceptable which is when she referred me for scan. I feel back to square one and in meantime I just feel worse 😞
Update 1st endocrinology appointment - Thyroid UK
Update 1st endocrinology appointment
That's about par for the course with endocrinology. You are in the same limbo as me - endo only looking at blood tests and dismissing other symptoms. At least you got a scan and referral. Mine told me to go to gp and ask for referral to ENT.
That is awful so sorry to hear you're in limbo too. Its awful isn't it. Think she only suggested scan and ent due to get rid of me x
Mine was a phone consult. The endo has never seen me. She could hear my problem though as all but have lost my voice as a result of the problem. A kind GP told me the endos were only interested in blood results. I might also add that the phone appt was for 3pm. The endo actually called at 10am the following day. No explanation given
That is awful. Have you done private blood tests? My gp and endo will only look at tsh
The endo and GP do TSH, FT4 and Ft3 - they are obliged too as I am prescribed levothyroxine and liothyronine by them. My hormone levels are good on my current doses. I am happy with the levels. I think the problem is something to do with the actual gland or a cyst or a goitre which swells and gets inflamed.
Doctors almost always say that about symptoms, because they don't know what hypo symptoms are. They don't understand that as every single cell in the boy needs thyroid hormones, if there's not enough in the system to go round, symptoms can be just about anything and everything.
Most - perhaps all - endos are diabetes specialists who think hypo is easy to treat: just give levo and get the TSH somewhere back within the range = job done. We all know what a phalacy that is! But they don't. So, when they find that things are still going wrong, instead of looking for the problem, they get rid of the patient by passing them on to someone else. That also equals job done!
What is your TSH result? Have you had FT4 or FT3 tested? Or antibodies?
Tsh was 3.17 and and T4 was 12
OK, so that TSH is not 'normal' by a long chalk! A 'normal' (euthyroid) TSH is around 1, never over 2, and at 3 you are hypo. So, you are still hypo and that's what is causing your symptoms. It's so obvious but...
Can't comment on your FT4 because you haven't given the range, but it looks very low. 12 is often the very bottom of the range.
Post from 8 months ago showed dire vitamin levels and thyroid levels, but negative thyroid antibodies
healthunlocked.com/thyroidu...
Ferritin 24.5. 13-150
Magnesium 0.93. 0.7-1.0
Cortisol 521.0 6am - 10am 113-456
Tsh 3.17. 0.27-4.20
Total T4 90.3 66-181
Free t4 12.0. 12.0-22.0
Free T3 4.43. 3.1-6.8
Anti thyroid peroxidase 11. <34
Anti thyroglobulin 11. <115
Vit D 64. 59-175
Vit B12 209. 145-300
Serum folate 17. 8.83-60.8
You were working on improving low vitamin levels by supplementing
More recent post
healthunlocked.com/thyroidu...
Did you get FULL thyroid and vitamins tested again BEFORE seeing endocrinologist?
If not order retest now
Remember to stop taking any supplements that contain biotin a week before all blood tests
Stop iron supplements a week before testing ferritin
Always test thyroid levels as early as possible in morning before eating or drinking anything other than water
At least you are having ultrasound scan
This is typical for endocrinologist…I recently made the point to my endo why bother asking my symptoms again when I’m told they aren’t thyroid related, even though my GP says they must be and they are listed as typical text book symptoms associated with thyroid issues? She persisted I tell her (which I was a bit surprised about) but I think because she sensed I didn’t want to discussing it, It made her want to know. So I repeated some of my concerns & of course she said before I had even finished thats not thyroid related. Even saying - do I understand? and speak to GP for referral to different department…and just to stop me speaking further I got a “do not smoke” lecture even though I have never smoked, ever.
I will say she wrote an update to the GP and the GP used the info on the letter to support the referral….It was the first referral made in months that wasn’t declined.
How are you getting on with improving key vitamins Nikki31uk?I only started to feel better when these were optimal….. plus following forum advice to go gluten free made a huge difference to me.