Thyroidectomy and on Levothyroxein 100mcg for ... - Thyroid UK

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Thyroidectomy and on Levothyroxein 100mcg for 3 weeks. Test Result TSH 0.11 mIU/ L Low FT4 30.1 pmol/ L High. Any advice ? Thanks

Vegan51 profile image
5 Replies

I have been on Levothyroxein now for 3 weeks following a total thyroidectomy due to cancer.

I have just received my thyroid test results as follows

Thyroid stimulating hormone0.11 mIU/ L 0.27 - 4.20 mIU/L Low

Free T430.1 pmol/ L 12.0 - 22.0 pmol/L High

I am seeing my consultant on 26th July. I am feeling very anxious about these results. Any advice would be greatly appreciated, with many thanks in advance for any support.

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SeasideSusie profile image
SeasideSusieRemembering

Vegan51

With those results it might be an idea to reduce your Levo a little to bring FT4 into range. However, as you have had a thyroidectomy it's almost a necessity to see your FT3 level too so next test ask for TSH, FT4 and FT3 to be tested together to give a full picture. You need to see how well your body converts T4 to T3, you may need a Levo plus T3 combination rather than just Levo alone.

Vegan51 profile image
Vegan51 in reply to SeasideSusie

Thank you so much for your reply and helpful guidance...I will discuss this with my consultant on Monday.

SlowDragon profile image
SlowDragonAdministrator

As a vegan what vitamin supplements are you currently taking

When were vitamin D, folate, ferritin and B12 last tested

Likely to need to supplement to maintain optimal vitamin levels

Is your GP and endocrinologist aware you’re vegan

On levothyroxine we must have GOOD vitamin levels for levothyroxine to convert from Ft4 to Ft3

For full Thyroid evaluation you need TSH, FT4 and FT3 tested.

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Is this how you did your tests?

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

If you can get GP to test vitamins the cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

Medichecks Thyroid plus vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

List of hypothyroid symptoms

thyroiduk.org/if-you-are-un...

It is most unlikely that you will ever feel well on levo alone, perhaps not even on combined levo/liothyronine. Do not delay too long if either of these fails. Your only choice will then be NDT, not available on the NHS except perhaps by Private prescription.Don't be afraid to ask questions of your GP or endo, they tend to say nothing if you don't ask.

SlowDragon profile image
SlowDragonAdministrator

Easier to get T3 prescribed alongside levothyroxine than NDT.

Before considering adding T3 all four vitamins need to be tested and optimal levels

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