Longing to be healthy: I’ve been silly enough to... - Thyroid UK

Thyroid UK

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Longing to be healthy

Snqanq profile image
2 Replies

I’ve been silly enough to reduce thyroxine dose inappropriate myself to swap to some diet & Supplement as others done

Unfortunately it’s not work for me and another

unluck thing after reducing dose incorrectly for a while then I got covid my health has gone downhill badly since 😞 things that I have never

experienced before

Seem to breakdown everything I’ve got Tinnitus, sound like ears infection issues but its actually not..

Numbness hand & feet

then feeling sick.. Weekness mostly lying down, Vertigo Dizziness and severe Headaches staying till now

Weirdest thing is I have to eat regularly every an hour to 2 hours with much more sugar..

Even though increase the dose after blood test and blood test but it still very slowly move up

I was normally on 75 mg 5 days & 100mg 2days

But now 100mg every day but still seem to be not enough…

Developed much more anxiety & depressed

Five months now I don’t know what to do.. what I do all day is alarm to eat then lying down same thing..

Im sick & tired of eating too quickly regularly don’t wanna eat but I have to eat to recovery as there no other way founded

is there any good idea please please help out

Would be most appreciated

By the way please suggest good endocrinologist

Many Thanks

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Snqanq
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2 Replies
shaws profile image
shawsAdministrator

I think you should request a 'Full Thyroid Blood Test' at your surgery. This would be TSH, T4, T3, Free T4, Free T3 and thyroid antibodies. (some surgeries don't test the 'frees'

The appointment should be at the very earliest, fasting (you can drink water) and allow a gap of 24 hours between your last dose of levo and the test and take afterwards.

If GP isn't amenable, you can get a private home blood draw test and if you decide to do so, make sure you are well-hydrated a couple of days before and that arms/hands are warm when you draw your blood.

Also request B12, Vit D, iron, ferritin and folate too. We don't want these to be deficient.

Put up another post requesting a message to be sent to you privately of a name of a good endocrinologist in your area. Your post will then be closed and members will send you a private message as no names must be put on the open forum.

SlowDragon profile image
SlowDragonAdministrator

Tinnitus, numb feet and dizziness all often linked to low B12/folate…..common if hypothyroid

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies or when been under medicated

Ask GP to test vitamin levels

Thyroid levels should be tested 6-8 weeks after any dose change or brand change in levothyroxine

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Is this how you do your tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

Remember to stop taking any supplements that contain biotin (eg vitamin B complex) a week before ALL BLOOD TESTS as biotin can falsely affect test results

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