My hashimato story: Hi 🙋🏼‍♀️ I was not aware of... - Thyroid UK

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My hashimato story

Denide profile image
18 Replies

Hi 🙋🏼‍♀️

I was not aware of nothing about hashimato’s disease. I am diagnosed at 2012 with 25mg and for years I continued using 50mg. I moved here in during the pandemic and I had difficulty in finding gps who know about this disease. According to my results, My blood tests are coming normal but it is not really. I dont feel at myself and I started to go gluten free.

I hope to feel good again.

Please someone give me the advice about my results.

T4 16.3

TSH 9.3

At the end of April 2021, My doctor asked me to increase to 75mg. I do feel really really sleepy tired since.

I’m looking forward to hear your interpretation.

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Denide profile image
Denide
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18 Replies
radd profile image
radd

Denide,

Welcome to our forum.

If you supply the test ranges (numbers in brackets) members can give a more informed answer. You can add them to your post by clicking on the little grey arrow at the bottom of your post and selecting 'edit'.

Denide profile image
Denide in reply to radd

Hi Radd,

Thanks a lot. I added it ✌🏼

SeasideSusie profile image
SeasideSusieRemembering in reply to Denide

Denide

The reference ranges aren't showing in your post. Please add them so that we can accurately interpret your results.

We know that your TSH is high as most TSH ranges have a top limit no more than 5, but we can't interpret your FT4 result. The range will be something like

7-17 or 9-19 or 12-22 or 11-23 or similar.

Denide profile image
Denide in reply to SeasideSusie

Hi Susie I only have these as a result. Should I ask for a detailed thyroid test?

According to the range given, t4 seem normal. Does not it? It says 12.0-22.0, mine is 16.3

SeasideSusie profile image
SeasideSusieRemembering in reply to Denide

Denide

If the range is 12-22 then your FT4 is 43% through it's range which, yes, is classed as normal because it's in range, but so is 13 at 10% through range and 21 at 90% through range but you'd feel very different at 21 than you would at 13.

The aim of a treated hypo patient on Levo only, generally, is for TSH to be 1 or lower with FT4 and FT3 in the upper part of their reference ranges if that is where you feel well.

To have a TSH of 9.3 with an FT4 of 16.3 is very unusual. With such a high TSH one would expect FT4 to be very low in range, I wonder if something has affected the result.

Did you drink coffee or other caffeinated drink before the test, as this can affect TSH.

Do you take Biotin or a B Complex, if so did you leave it off for 7 days before the test?

Denide profile image
Denide in reply to SeasideSusie

Susie I am hundred percent sure that I did not drink coffee that morning.

I am not taking biotin or B complex for a long time. Do you think is it refering something worse to consider?

SeasideSusie profile image
SeasideSusieRemembering in reply to Denide

Do you think is it refering something worse to consider?

No, I just think something is wrong with the results, it could be anything that might have skewed them. I would repeat the test with a different lab.

Denide profile image
Denide in reply to SeasideSusie

Good idea! I will 🕺🏼👍🏻

SlowDragon profile image
SlowDragonAdministrator

Your high TSH result suggests you are under medicated

GP was correct to increase dose of levothyroxine by 25mcg

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine

Always test as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test

Which brand of levothyroxine are you currently taking?

Important to also test vitamin D, folate, ferritin and B12

These are often very low when hypothyroid and often need to take vitamin supplements to improve

The aim of levothyroxine is to increase dose upwards in 25mcg steps until TSH is ALWAYS under 2

When adequately treated, TSH will often be well below one. Most important results are ALWAYS Ft3 followed by Ft4. When adequately treated Ft4 is usually in top third of range and Ft3 at least 60% through range (regardless of how low TSH is)

Extremely important to have optimal vitamin levels too as this helps reduce symptoms and improve how levothyroxine works

Come back with new post once you get bloods retested after 6-8 weeks on 75mcg levothyroxine

Denide profile image
Denide in reply to SlowDragon

These informations have enormous value for me. Thank you. I am on Levothyroxine since 2020. Before 2020, I was on Euthyrox. I am going to try to have a detailed blood test then and in July I am going to come back and share my results. Happy to find the community!

SlowDragon profile image
SlowDragonAdministrator in reply to Denide

Which U.K. brand of levothyroxine are you currently taking

List of different brands available in U.K.

thyroiduk.org/if-you-are-hy...

Denide profile image
Denide in reply to SlowDragon

Hi again It is Teva.

✌🏼

SlowDragon profile image
SlowDragonAdministrator in reply to Denide

Many people find Levothyroxine brands are not interchangeable.

Were you on Teva when taking 50mcg tablets?

Many patients do NOT get on well with Teva brand of Levothyroxine.

Teva contains mannitol as a filler, which seems to be possible cause of problems.

Teva is the only brand that makes 75mcg tablet.

So if avoiding Teva for 75mcg dose ask for 25mcg to add to 50mcg or just extra 50mcg tablets to cut in half

But for some people (usually if lactose intolerant, Teva is by far the best option)

Teva, Aristo and Glenmark are the only lactose free tablets

Most easily available (and often most easily tolerated) are Mercury Pharma or Accord

Accord is also boxed as Almus via Boots, and Northstar 50mcg and 100mcg via Lloyds ....but Accord doesn’t make 25mcg tablets

So beware 25mcg Northstar is Teva

List of different brands available in U.K.

thyroiduk.org/if-you-are-hy...

Teva poll

healthunlocked.com/thyroidu...

Once you find a brand that suits you, best to make sure to only get that one at each prescription.

Watch out for brand change when dose is increased or at repeat prescription.

New guidelines for GP if you find it difficult/impossible to change brands

healthunlocked.com/thyroidu...

academic.oup.com/jcem/artic...

Physicians should: 1) alert patients that preparations may be switched at the pharmacy; 2) encourage patients to ask to remain on the same preparation at every pharmacy refill; and 3) make sure patients understand the need to have their TSH retested and the potential for dosing readjusted every time their LT4 preparation is switched (18).

Levothyroxine is an extremely fussy hormone and should always be taken on an empty stomach and then nothing apart from water for at least an hour after

Many people take Levothyroxine soon after waking, but it may be more convenient and perhaps more effective taken at bedtime

verywellhealth.com/best-tim...

No other medication or supplements at same as Levothyroxine, leave at least 2 hour gap.

Some like iron, calcium, magnesium, HRT, omeprazole or vitamin D should be four hours away

(Time gap doesn't apply to Vitamin D mouth spray)

If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test

If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal

REMEMBER.....very important....stop taking any supplements that contain biotin a week before ALL BLOOD TESTS as biotin can falsely affect test results - eg vitamin B complex

Denide profile image
Denide in reply to SlowDragon

Do you think is it possible to ask my GP about a detailed tyroid test and hemogram test including minerals and vitamins? I secured a phone call with her at 21 of June. But I am not sure I can convince her for detailed tests.

Denisemoye profile image
Denisemoye

I personally would obtain a Medichecks full panel, including antibodies. If you’re feeling rubbish, then the medication isn’t’ sorting out the issues. Amazon do a really good thyroid support supplement which has loads of other stuff and I’ve been feeling amazing since switching to that and i’m now concentrating on reducing my thyroid antibodies which is the ‘thing’ that is attacking my thyroid. From the research I’ve done, if you can reduce/eliminate your thyroid antibodies, your thyroid function will go back to normal. Most gp’s don’t even have the knowledge of this and think they’re irrelevant. Lack of training!

RoboTh profile image
RoboTh in reply to Denisemoye

What supplement is helping you. Interested for myself x

Denisemoye profile image
Denisemoye in reply to RoboTh

Limited-time deal: Thyroid Support Supplement with Iodine - (Vegetarian) - A Complex Blend of Vitamin B12, Zinc, Selenium, Ashwagandha Root, Copper, Coleus Forskohlii & More - 30 Day Supply amazon.co.uk/dp/B00M13NHFY/...

Animal-lover2 profile image
Animal-lover2

Not advisable to take iodine with Hashimotos. Google Dr Alan Christianson naturopathic endocrinologist

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