Thyroid normal but very low vit D (attached medichecks report)

Gutted really as I did have symptoms. I suppose I will have to go gp and get investigated. Any input from you guys would be great.

[SlowDragon Administrator]

See GP

Your B12 and folate are extremely low.

Any active B12 below 70 MUST be tested for Pernicious Anaemia before starting any folate or B12

Likely to need several LOADING B12 injections and then injections every 2-3 months ....even if not PA

Plus GP should prescribe folic acid

Vitamin D is deficient.

GP must prescribe LOADING dose vitamin D. That’s 300,000iu in total over 6-8 weeks

GP will often only prescribe to bring vitamin D levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol or even 80nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

But with Hashimoto’s, improving to around 80nmol or 100nmol by self supplementing may be better

pubmed.ncbi.nlm.nih.gov/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly via NHS

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function. There’s a version made that also contains vitamin K2 Mk7

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with hashimoto’s we frequently need higher dose than average

Calculator for working out dose you may need to bring level to 40ng/ml = 100nmol

grassrootshealth.net/projec...

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

Taking too much vitamin D is not a good idea

chriskresser.com/vitamin-d-...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

2 good videos on magnesium

healthunlocked.com/thyroidu...

Vitamin D and Covid

Notice how much vitamin D many of these medics are taking

vitamind4all.org/letter.pdf

[Hidden in reply to SlowDragon]

Will my GP test for pernicious anaemia or do I have to do it privately? Would Standard blood test show that as my full blood count came back normal.

[SlowDragon Administrator in reply to Hidden]

What’s your diet like?

Are you Vegetarian or vegan?

GP should test for Pernicious Anaemia before starting you on B12 injections

Loading doses of B12

healthunlocked.com/pasoc/po...

Low B12 symptoms

b12deficiency.info/signs-an...

B12, MMA and homocysteine

nutris.viapath.co.uk/pages/...

Guidelines on low B12 and folate

onlinelibrary.wiley.com/doi...

Full blood count is for checking iron and ferritin

[Hidden in reply to SlowDragon]

No I'm neither of those things I eat meat and veg both. I have looked further into it and my symptoms do match those of VitB12 deficiency, especially weight loss and extreme fatigue, despite blood test being OK.. I will discuss this with the gp Monday when they ring me about my blood tests results regarding liver and coeliac antibodies. What a nightmare this is.. I feel really rough.

[SlowDragon Administrator in reply to Hidden]

Come back with new post once you have seen GP

[Hidden in reply to SlowDragon]

I will. Thank you for your help really appreciate it x

[SlowDragon Administrator]

Question is why are your vitamins so low

Could very well be hypothyroid.

Request ultrasound scan of thyroid

With very low vitamin levels TSH is often low, in effect hiding how hypothyroid patient might be

Ft4 and Ft3 are both low....suggests hypothyroid

[SeasideSusie Remembering]

AnxietySufferer92

CRP - good

Ferritin - good

Folate: 4.2 (2.89-14.5)

Low in range, folate is recommended to be at least half way through range so that would be 9+ with that range)

ActiveB12: 27 (25.1-165)

Extremely low and barely within range. Active B12 below 70 suggests testing for B12 deficiency according to Viapath at St Thomas' Hospital:

viapath.co.uk/our-tests/act...

Reference range:>70. *Between 25-70 referred for MMA

There is a link at the bottom of the page to print off the pdf to show your GP.

Do you have any signs of B12 deficiency – check here:

b12deficiency.info/signs-an...

b12d.org/submit/document?id=46

If you do then list them to discuss with your GP and ask for testing for B12 deficiency and Pernicious Anaemia. Do not take any B12 supplements or folic acid/folate/B Complex supplements before further testing of B12 as this will mask signs of B12 deficiency and skew results.

When taking B12 in any form, we also need a B Complex to balance all the B vitamins. This should be a good, bioavailable one such as Thorne Basic B or Igennus Super B and will contain methylfolate (400mcg recommended) which will help raise your folate level. It is very important that B Complex is left off for 7 days before any blood test (including thyroid) as it contains Biotin and when Biotin is used in the testing procedure (most labs do) then it can give false results.

Vit D: 20nmol/L

This is Vit D deficiency and you should discuss this with your GP who should follow NICE guidelines for Vit D deficiency and perscribe loading doses of D3 - see NICE treatment summary for Vit D deficiency: cks.nice.org.uk/vitamin-d-d...

(click on Management > Scenario:Management)

"Treat for vitamin D deficiency if serum 25-hydroxyvitamin D (25[OH]D) levels are less than 25 nmol/L.

For the treatment of vitamin D deficiency, the recommended treatment is based on fixed loading doses of vitamin D (up to a total of about 300,000 international units [IU]) given either as weekly or daily split doses, followed by lifelong maintenance treatment of about 800 IU a day. Higher doses of up to 2000 IU a day, occasionally up to 4000 IU a day, may be used for certain groups of people, for example those with malabsorption disorders.

* Several treatment regimens are available, including 50,000 IU once a week for 6 weeks (300,000 IU in total), 20,000 IU twice a week for 7 weeks (280,000 IU in total), or 4000 IU daily for 10 weeks (280,000 IU in total)."

Once these have been completed you will need a reduced amount so you should make sure that you are retested after you have finished the loading doses so that you know how much you should then take going forward. Most doctors, if they continue prescribing, only give 800iu daily which isn't enough.

If GP wont retest then do this privately (link below) and post your new result at the time for members to suggest a new dose to bring your level up to what's recommended by the Vit D Council/the Vit D Society - which is 100-150nmol/L - and then you'll need a maintenance dose to keep it there, which may be 2000iu daily, maybe more or less, maybe less in summer than winter, it's trial and error so it's recommended to retest once or twice a year to keep within the recommended range. You can do this with a private fingerprick blood spot test with an NHS lab which offers this test to the general public:

vitamindtest.org.uk/

Doctors don't know, because they're not taught much about nutrients, but there are important cofactors needed when taking D3.

D3 aids absorption of calcium from food and Vit K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems such as hardening of the arteries, kidney stones, etc.

D3 and K2 are fat soluble so should be taken with the fattiest meal of the day, D3 four hours away from thyroid meds if taking D3 as tablets/capsules/softgels, no necessity if using an oral spray.

Vit K2-MK7 wont be prescribed, you will need to buy your own. A dose of 90-100mcg is enough for up to 10,000iu D3. I like Vitabay or Vegavero brand.

When you get around to buying your own D3, avoid tablets as they are the least absorbable form. The most absorbable form are oil based softgels or an oral spray.

I like Doctor's Best D3 softgels which are a good, clean supplement containing just D3 and extra virgin olive oil for absorption, an oral spray contains quite a few excipients which is fine if you aren't bothered by them.

Magnesium helps D3 to work. We need Magnesium so that the body utilises D3, it's required to convert Vit D into it's active form. So it's important we ensure we take magnesium when supplementing with D3.

Magnesium comes in different forms, check to see which would suit you best and as it's calming it's best taken in the evening, four hours away from thyroid meds if taking magnesium as tablets/capsules, no necessity if using topical forms of magnesium.

naturalnews.com/046401_magn...

drjockers.com/best-magnesiu...

Your Thyroid results aren't particularly good. A normal, healthy person would have a TSH no higher than 2, often around 1, with FT4 around mid-range-ish, so your results are bordering on hypothyroidism but a diagnosis will be impossible until TSH goes over range with a below range FT4 or raised antibodies, or TSH is over 10 with lowish FT4.

Thyroid antibodies are within range so are negative but you can have Hashimoto's (known to doctors as autoimmune thyroid disease) without raised antibodies. Looking at previous posts you seem to have had symptoms of overactive thyroid, Hashimoto's often starts with a period of transient hypERthyroidism.

Your nutrient levels are dire so need to be addressed. Don't start all supplements at once. Start with one, give it a week or two and if no adverse reaction then add the next one. Again, wait a week or two and if no adverse reaction add the next one. Continue like this. If you do have any adverse reaction then you will know what caused it.

[jimh111]

Vitamin D could be low if you don't get enough sunshine or eat vitamin D rich foods. You should recover with supplemental vitamin D.

[Hidden]

Thank you all so much for your input. I didn't realise my b12 is so low. Maybe that explains why I feel like this! I have majority of those symptoms, especially gastric issues. I will speak to my GP on Monday as they are supposed to ring to give me my liver blood test results and coeliac disease as well.. Got tested for that also. Had inflammation marker done but medichecks shows its low so not worried about that.