Understanding results: Hi I wonder if you lovely... - Thyroid UK

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Understanding results

Tigger1968 profile image
5 Replies

Hi I wonder if you lovely people can help me. The beginning of last year my health took a bit of a tumble. I gained 3 1/2 stone in three months was diagnosed asthmatic. I started to suffer from sever acid reflux and became intolerant to tea and alcohol. I became confused, struggled to find words, had very painful feet that feel like they are buzzing. My hair started to fall out and my nails became very brittle. I wake 4-5 times each night but feel like I can sleep forever. Oh and hot omg I’ve never felt heat like it. I’m hot all the time, no sweats just red hot.I began to struggle with a very low mood for no reason and could actually of just given up on life. My Dr diagnosed b12 deficiency and put me on tablets( obviously pandemic stoped b12 injections). I have since had my loading done and are having 12 weekly injections. I see an immunologist as I have idiopathic angeodema and urticaria ( I’ve had this since I was 6 but only diagnosed 16 years ago). In March she diagnosed very low vitamin D. She said at the time it 27 nmol/L and put me on high loading dose of vitamin D.

I actually thought my problems were solved but they just haven’t got any better. The dr told me that my tsh was high on one of my blood tests but said he would retest in 3 months as an infection would probably be the reason. After research I found this forum and as my dr just says it’s the menopause I decided to get my bloods checked myself. Could I have hypothyroid issues?

Sorry it’s long winded but I thought the more information the better

Thank you for taking the time to read it

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Tigger1968
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SlowDragon profile image
SlowDragonAdministrator

Urticaria and Hashimoto’s often go together

Symptoms certainly suggest hypothyroid/Hashimoto’s

List of hypothyroid symptoms

thyroiduk.org/if-you-are-un...

20% of Hashimoto's patients never have raised antibodies

Recommend getting ultrasound scan of thyroid. Privately if necessary-£150

healthunlocked.com/thyroidu...

Paul Robson on atrophied thyroid - especially if no TPO antibodies

paulrobinsonthyroid.com/cou...

Also consider trial strictly gluten free diet

While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first

healthcheckshop.co.uk/store...?

Assuming test is negative you can immediately go on strictly gluten free diet

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

ncbi.nlm.nih.gov/pubmed/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

ncbi.nlm.nih.gov/pubmed/300...

The obtained results suggest that the gluten-free diet may bring clinical benefits to women with autoimmune thyroid disease

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

SlowDragon profile image
SlowDragonAdministrator

As you have B12 injections it’s recommended also to supplement a good quality daily vitamin B complex, one with folate in (not folic acid) may be beneficial.This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

chriskresser.com/folate-vs-...

B vitamins best taken after breakfast

Igennus Super B is good quality and cheap vitamin B complex. Contains folate. Full dose is two tablets per day. Many/most people may only need one tablet per day. Certainly only start on one per day (or even half tablet per day for first couple of weeks)

Or Thorne Basic B is another option that contain folate, but is large capsule

IMPORTANT If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

Tigger1968 profile image
Tigger1968 in reply to SlowDragon

Thank you for your response. I did actually think hashimoto may be the problem. I have been tested for coeliac and it came back negative. I have been trying to follow a gluten free diet and it has helped a little. I have noticed symptoms are worse if I have bread or pasta so I’m trying to find alternatives. Thank you for advice. Maybe it’s time to be more pushy with my doctor.

Thank you. You have really put my mind to rest. I just thought I was going mad

SlowDragon profile image
SlowDragonAdministrator in reply to Tigger1968

It takes 4-6 months for gut to recover each time you eat gluten

To be effective gluten free diet needs to be absolutely strictly gluten free

No shared butter, jam, cutting boards. Separate toaster for gluten free bread

Tigger1968 profile image
Tigger1968 in reply to SlowDragon

Oh wow I never knew that. Thank you so very much.

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