Hi there I made an earlier post saying that I am on T3 only. A few years ago I had been put on levo thyroxine and it made my heart go super crazy and anxiety, pounding, pulsing body and tremors even on a little, I could get past a few days on it. I always seem to suffer from heart stuff anyway and skipped rythms also but have had many tests and told it is ok! I'm on only 35mg of T3 and don't seem to be able to raise for the same reason. Still feeling extremely poorly and fatigued. My recent results show that level of T3 is nearing optimal and T4 is almost completely suppressed, so is TSH which apparently is to be expected. My question is would it be worth trying to introduce a little levo at this stage? Though I'm a bit worried about it, I might react better this time. I just don't know where to turn next
Hashimotos, T3 & T4: Hi there I made an earlier... - Thyroid UK
Hashimotos, T3 & T4
I meant I couldn't get past a few days on it
How do you take your T3 as single dose or split as 3 smaller doses through day
Have you tried liquid levothyroxine
Always test as early as possible in morning before eating or drinking anything other than water
On day before blood test you need to take last 1/3rd daily dose 8-12 hours before test
Is this how you did last test?
Previous post showing last results
healthunlocked.com/thyroidu...
Shows folate and vitamin D are too low
Are you working on improving these
As you have Hashimoto’s are you on strictly gluten free diet
Or dairy free diet?
Slowdragon, thank you. What should the folate and vit d levels be? I have started taking a methylated folate and vit d drops. I have been on a gluten free and dairy free diet for a while. I do split the Lio into 3 doses and yes did all that prior to testing. I haven't tried liquid levo. My gp certainly wouldn't prescribe that on the NHS. I don't know which way to turn anymore to be honest. Antibodys are 208 by the way
Liquid levothyroxine often can only be initiated via endocrinologist due to cost
Are you currently prescribed T3 on NHS?
Email Thyroid UK for list of recommend thyroid specialist endocrinologists..
.NHS and Private
tukadmin@thyroiduk.org
Roughly where in the U.K. are you
Vitamin D at least around 80nmol and around 100nmol maybe better
Test twice yearly when supplementing via vitamindtest.org.uk
Vitamin D mouth spray by Better You is very effective as it avoids poor gut function. There’s a version made that also contains vitamin K2 Mk7
amazon.co.uk/BetterYou-Dlux...
It’s trial and error what dose we need, with hashimoto’s we frequently need higher dose than average
Calculator for working out dose you may need to bring level to 40ng/ml = 100nmol
grassrootshealth.net/projec...
Government recommends everyone supplement October to April
gov.uk/government/news/phe-...
Taking too much vitamin D is not a good idea
chriskresser.com/vitamin-d-...
Web links about taking important cofactors - magnesium and Vit K2-MK7
Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine
betterbones.com/bone-nutrit...
medicalnewstoday.com/articl...
livescience.com/61866-magne...
sciencedaily.com/releases/2...
Vitamin K2 mk7
betterbones.com/bone-nutrit...
healthline.com/nutrition/vi...
2 good videos on magnesium
healthunlocked.com/thyroidu...
Vitamin D and Covid
Notice how much vitamin D many of these medics are taking
Folate
Aiming for folate at least half way through range
Rather than just taking folate
May be better to be supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)
This can help keep all B vitamins in balance and will help improve B12 levels too
Difference between folate and folic acid
chriskresser.com/folate-vs-...
Many Hashimoto’s patients have MTHFR gene variation and can have trouble processing folic acid.
thyroidpharmacist.com/artic...
B vitamins best taken after breakfast
Igennus Super B is good quality and cheap vitamin B complex. Contains folate. Full dose is two tablets per day. Many/most people may only need one tablet per day. Certainly only start on one per day (or even half tablet per day for first couple of weeks)
Or Thorne Basic B is another option that contain folate, but is large capsule
IMPORTANT If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
endo.confex.com/endo/2016en...
endocrinenews.endocrine.org...
You can take just folate in that week prior to blood tests
Thank very much for all this info. Do you think that it's worth trying the levo under the circumstances for improvement of symptoms and to address suppressed TSH and FT4 or doesn't it matter if it is suppressed?
When any thyroid patient is taking T3 alone or alongside levothyroxine TSH is almost always suppressed or extremely low
Majority of patients who take T3 take it as small dose prescribed alongside levothyroxine. Usually in this case Ft4 and Ft3 will be roughly 60% or higher within range
But a significant minority thyroid patients can only take T3 only and can’t tolerate levothyroxine at all
Anyone on just T3 then Ft4 is going to be very low
It’s trial and error what suits each person
this is just my opinion but I would try the Levothyroxine and see what your heart does, after all, it's so much easier and more convenient than taking T3. My reasoning is that even though your heart does funny things (so does mine, my vet daughter checked it) you've been okay with it anyway. I quite like the strange feeling of arrhythmia and the sudden bonk as the heart 'restarts' after missing a few beats (that's a different thing my GP said it's doing sometimes), it makes me aware of my dear heart working for me every day and all night long and I find myself smiling to it and appreciating it.
Advice T3 / T4
Help please with t3/t4 combination
T3 versus t4
Further T3/T4 Guidance Needed Please
