Doctor said I have the markers for hashimoto’s but said my T3, T4 levels are normal- so no meds for me but I feel like crap, dry skin, tired, headaches, brain fog.
T3 2.6./ T4 1.1/ TSH .77
Thyroid Peroxidase Antibodies 24 H
TSI <89
EBV Nuclear AG (EBNA) AB (IGG) 172.00 H
I’m going to see another doctor for a second opinion.
Are you in the U.K.
Please add ranges on these results (figures in brackets after each result)
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies
Ask GP to test vitamin levels
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Also request coeliac blood test BEFORE trialing strictly gluten free diet
Hi,
I’m in America.
TSH 0 .77 (0.40-4.50)
T3 2.6. (2.3-4.2)
T4 1.1. (0.8-1.8)
TPO 24 H (<9 IU/mL) This one out of range
TSI <89 <140 % baseline
I don’t see one that says TP
Vitamin D 26 L (30-100 ng/mL)
The rheumatologist suggested I get tested for coeliac by my regular doctor, I haven’t done that yet.
Ft4 is only 30% through range
Ft3 only 16% through range
Helpful calculator for working out percentage through range
Shows thyroid is struggling but that’s not reflected in TSH (common problem with Hashimoto’s)
High TPO antibodies confirms autoimmune thyroid disease also called Hashimoto’s
Vitamin D too low
Aiming to improve to 40ng/ml
Low vitamin D extremely common with Hashimoto’s
Important to regularly retest folate, ferritin and B12 too
Looking like you test positive for Epstein Barr virus (glandular fever)
Common trigger for Hashimoto’s
EBV links
thyroidpharmacist.com/artic...
drhedberg.com/epstein-barr-...
hypothyroidmom.com/hashimot...
drchristianson.com/epstein-...
The rheumatologist said that since I tested positive for EBV that I might have had mono at some time in my life. He said I have the markers for Hashimoto’s. He told me more information than the endocrinologist. She didn’t tell me anything, just said everything looks fine and take extra vitamin D.
Most endocrinologists are diabetes specialists and have little interest/understanding of Hashimoto’s
Hashimoto's frequently affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Poor gut function with Hashimoto’s can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
While still eating high gluten diet get coeliac blood test first just to rule it out first
Assuming test is negative you can immediately go on strictly gluten free diet
(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)
Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse
All these sites are USA based
chriskresser.com/the-gluten...
amymyersmd.com/2018/04/3-re...
thyroidpharmacist.com/artic...
drknews.com/changing-your-d...
restartmed.com/hashimotos-g...
Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease
ncbi.nlm.nih.gov/pubmed/296...
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
ncbi.nlm.nih.gov/pubmed/300...
The obtained results suggest that the gluten-free diet may bring clinical benefits to women with autoimmune thyroid disease
nuclmed.gr/wp/wp-content/up...
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
restartmed.com/hashimotos-g...
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
Thank you for all of the information, it’s very helpful. I did have an endoscopy less than two months ago and everything was normal. I’ll try the gluten free diet for sure, hopefully that will do the trick 👍.
T4-only; T3-T4 Combo, T3-only or NDT? How do you know?
Help needed with t3/t4
Help with t3 + t4 dosages
Clarification about T4 to T3
T3 T4
