I'm new to the site. I experienced terrible heart problems on Thyroxine and believe that was due to Thyroxine poisoning. Doctor wanted me to go on beta blockers. I made the decision to stop Thyroxine and trestle myself. I don't any more get tested. I use glandular extracts, read the book by Dr. Peat and use supplements recommended by him. My heart was missing over 3000 beats on a good day, I had a 24 hour heart trace. Since stopping Thyroxine my heart has gone back to normal, I stopped over 15 months ago. I just go on how I feel now, which is pretty good. I use MSN every day, hair is back. Realise now that Thyroxine has an eight day half life, so builds up in the system. Not recommending this to anyone, but just an observation. A personal one. It works for me anyway. I had to ask myself the question, if the doctor cant fix it, then why go to him/her. I am free of the blood tests and the anxiety, but had to research for 3 years maybe 4. Side effects of Thyroxine are huge.
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Often, ectopic beats are caused by low T3. For some reason people often feel better when they first stop levo, but when the hypo starts to kick in again they feel much worse. However, you might do better on NDT or T3.
Now suffering with extremely painful muscles, skin conditions, muscular problems, tendonitis, and digestive issues.
These all suggest hypothyroid and/or low vitamins
Recommend you get FULL thyroid and vitamin testing
Low vitamin levels are extremely common when hypothyroid, but also as we get older too
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies
Ask GP to test vitamin levels or test privately
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Is this how you do your tests?
Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins
If TPO or TG thyroid antibodies are high this is usually due to Hashimoto’s (commonly known in UK as autoimmune thyroid disease).
About 90% of all primary hypothyroidism in Uk is due to Hashimoto’s. Low vitamin levels are particularly common with Hashimoto’s. Gluten intolerance is often a hidden issue to.
What do you mean by 'Glandular Extracts' ? Natural Dessicated Thyroid hormone,(NDT) made from the thyroid gland of pigs /cows( which is still a natural form of thyroxine )
Or something else.? If by 'Glandular Extracts' you DO mean NDT, then you haven't stopped taking thyroxine at all , you are just taking it in the form that comes from an animal rather than a synthetic form.
Yes the effect's of thyroxine are huge, but i wouldn't call them 'side effects'. Thyroxine (T4) is what is produced by our own thyroid gland, Levo thyroxine is a synthetic copy ( LT4)
Levothyroxine, the active ingredient itself saves our lives if we have insufficient thyroid to produce enough thyroid hormone. Tablets sometimes have fillers that disagree with us. The half life of levothyroxine doesn't cause a problem for utilisation. In fact, it's useful as we then have a store of thyroid hormone to use as needed.
I’m confused are you saying you have stopped taking levothyroxine for 15 months? How long had you been taking it to begin with? And how do you feel without it? (Don’t worry I won’t throw mine out the window I promise)
Everyone is different, with me I don't have a thyroid so will continue to take thyroxine.I do have tachycardia and my heart was beating so slow I nearly died, but because of that they tested my adrenal glands and I have one that doesn't work so they put me on steroids and I feel great now..
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