Help understanding wha it means to have an over... - Thyroid UK

Thyroid UK

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Help understanding wha it means to have an over active Thyroid

Aimead profile image
12 Replies

I’m recently diagnosed and would welcome advice from anyone on any aspects of coping . and medication and symptoms associated with my diagnosis.

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Aimead profile image
Aimead
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12 Replies
Rapunzel profile image
Rapunzel

thyroiduk.org/hyperthyroid-... will help 🙂

NIKEGIRL profile image
NIKEGIRL

Hi. I have Graves’ disease. My first symptom was a tremor the heat intolerance, light periods, insomnia, swollen face and legs, heart palpitations and nausea right at the end. Pretty much in that order.

Meanbeannyc profile image
Meanbeannyc

Before diagnosis I was in a t shirt and shorts in -5 F weather sweating profusely and awake for 3 days straight.

pennyannie profile image
pennyannie

Hello Aimed and welcome to the forum :

Graves is an auto immune disease and when your immune system decides to attack your thyroid the symptoms experienced can be diverse, but will ultimately mean you end up at the doctors needing some help.

A blood test will be run and there should be a result showing TSI and or TR ab over range antibodies. These are the medical evidence that is needed to prove your have Graves Disease and on which your medication should be based.

Is this is what you have been diagnosed with and do you have any blood test results to share with the forum members ?

What treatment has been prescribed and what are your current symptoms.

There is also Hashimoto's Disease which presents as transient overactivity of the thyroid gland and is still an auto immune disease but presents with different antibodies and does not require the same treatment as Graves.

You will find more information on the various reasons why you may have become overactive on the Thyroid uk website who are the charity who support this amazing forum.

If you do have Graves Disease there is the Elaine Moore Graves Disease Foundation which is the most all encompassing website on all things Graves for all people everywhere.

I have Graves Disease and following RAI ablation in 2005 I now manage lingering Graves, thyroid eye disease and hypothyroidism.

P.S. Sorry - I've just read your profile and understand you are not on any medication - apologies - you have and are going through a very stressful time and this does seem to trigger some thyroid health issues, and obviously a blood test detailing TSH. T3 . T4 . and your antibodies would be the first step to getting a diagnosis and treatment.

In the first instance you could ask your doctor to action a full thyroid blood panel as a starting point and to liaise with endocrinology if the results deem treatment necessary.

You can get private blood test actioned through the companies listed on the Thyroid uk website if your doctor can't do this for you, and there are people on here more than competent to read the results for you and advise accordingly.

Aimead profile image
Aimead in reply to pennyannie

Thank you and sorry for the delay. I’m just learning to use the site

pennyannie profile image
pennyannie in reply to Aimead

No worries - in your own time :

SlowDragon profile image
SlowDragonAdministrator

Important to get Graves’ disease (hyperthyroid) confirmed by testing TSI or Trab antibodies

Hashimoto’s (hypothyroid) frequently starts with transient hyperthyroid results and symptoms before becoming increasingly hypothyroid

ling profile image
ling

Are u still looking after your husband?

Aimead profile image
Aimead in reply to ling

Yes

ling profile image
ling in reply to Aimead

Could u share any test results u have?

cazmania7 profile image
cazmania7

I was diagnosed with Graves and felt fine. A few tremors but nothing major. Took carbimazole and levothyroxcine and felt fine throughout.

Eventually they talked me in to RAI and I became unwell and hypo nine months later. If I could turn back time I would have run a mile from this treatment and stayed hyper.

I was super fit and slim when I got sick. Now I get out of breath walking up the stairs and I’m fat. Lol.

Lora7again profile image
Lora7again in reply to cazmania7

That is one of the reasons I do not want to have my thyroid removed is the large number of women I have come across over the last 10 years who have struggled to get the correct treatment afterwards. I know some have no choice because they have thyroid cancer but it should be the last resort in my opinion.

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