Useless Endo call but offered a thyroid scan. - Thyroid UK

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Useless Endo call but offered a thyroid scan.

Unite_To_Fight profile image
9 Replies

So I received a phone call appointment with an Endo who noted my palpatation problems and high TPO but of course was as usless as expected only explaining that this is a non issue at the moment and that I should only receieve thyroid TSH testing every six months and that my chance of developing autoimmunity is higher than the average population but that it is not a gurantee, especially considering that I have no know family history of it.

Of course all of this is complete non-sense and he's just another person who has no business being responsible for this kind of patient.

Any, little rant/ramble over, I did get offered a thyroid scan and was wondering how much information or if it would show any indiciation of autoimmunity at all and how useful this kind of procedure is?

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Unite_To_Fight
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SlowDragon profile image
SlowDragonAdministrator

Yes ultrasound scan can be very helpful to see scale of damage

If Hashimoto’s or Ord’s thyroiditis

ada.com/conditions/thyroidi...

Unite_To_Fight profile image
Unite_To_Fight in reply to SlowDragon

I suppose it's a little win then, I managed to get some kind of further investigation.

SlowDragon profile image
SlowDragonAdministrator

What are your most recent thyroid results and vitamin results ?

Unite_To_Fight profile image
Unite_To_Fight in reply to SlowDragon

Don't have any, I'm still waiting to go private in blood testing, just bad timing with it being christmas soon.

My GP had zero interest in further investigation, I had to contact a nurse from a hospital just to get noticed.

SlowDragon profile image
SlowDragonAdministrator in reply to Unite_To_Fight

Are you currently taking any vitamin supplements?

Unite_To_Fight profile image
Unite_To_Fight in reply to SlowDragon

Not at the moment, are there any you recommend?, or would I need testing first?

SlowDragon profile image
SlowDragonAdministrator in reply to Unite_To_Fight

When are you planning/hoping to do full thyroid and vitamin testing

If not till after Christmas/ New year

Can you test vitamin D now - £29 or £26

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

Or £29

vitamindtest.org.uk

momindenver profile image
momindenver

Are you experiencing heart palpitations? For this I have found a hand held portable EKG ($100 USD) helpful to differentiate atrial fibrillation (associated with too much thyroid medicine) from skipped beats (associated with too little thyroid medicine.)

NIKEGIRL profile image
NIKEGIRL in reply to momindenver

Is atrial fibrillation really from too much thyroid medication?

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