HealthUnlocked are now part of Corrona - Thyroid UK

Thyroid UK

141,273 members•166,542 posts

HealthUnlocked are now part of Corrona

lynmynottPartnerThyroid UK•

HealthUnlocked are now part of a larger group of organizations, the Corrona family, and they will be working within their patient experience unit, HealthiVibe.

In case you missed their post about this you can find it here:

tinyurl.com/y47j4wrr

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lynmynott

Partner

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16 Replies

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diogenesRemembering4 years ago

Does this mean better funding for TUK?

DippyDame• in reply todiogenes4 years ago

The blurb...

corrona.org/news/corrona-ac...

"Our organization is positioned to expand its expertise in gathering, analyzing, and applying deep patient insights to optimize the patient journey and bring significant value to our clients."

Star13• in reply toDippyDame4 years ago

So in plain English they are data mining and selling it on for their own profit but telling us we will eventually benefit by what big pharmaceutical companies get out of it....... have I got that correct 🤔

DippyDame• in reply toStar134 years ago

Couldn't possibly say!

lynmynottPartnerThyroid UK• in reply todiogenes4 years ago

No. We don't get any funding for HealthUnlocked and that won't change.

ThaiDogRescue4 years ago

unfortunate choice of name considering the virus.

HighlandMo4 years ago

This worries me so much that I would like to delete all my posts and replies. How do I do this please?

It is clearly going to become data mining for the benefit of big pharma.

RedAppleAdministrator• in reply toHighlandMo4 years ago

HighlandMo,

If you only want to delete your posts and replies, you would need to do that manually by clicking on each individual one and deleting it. Here's your activity log healthunlocked.com/user/hig...

If you no longer want to particiapte on HealthUnlocked forums, you can close your account as well. Here's how:

For desktop users:

1. Click on your profile picture on the top menu and select "Settings". Alternatively, click here to access your Account settings

2. Scroll down to the bottom of the page and click on the "I want to close my account" button

3. Confirm this by selecting the "Close my account" button

For mobile users:

1. Click on your profile picture in the top left corner of your screen. This should cause a menu to appear

2. Select "Settings"; this will take you to your account settings

3. Scroll to the bottom of the page and select the "I wish to close my account" button

4. Select the "Close my account" button

Please note that once your account has been closed:

We are unable to reinstate it

Your profile is deleted but the content you have published (questions, posts, replies, poll answers etc.) remain on HealthUnlocked unless you manually delete them prior to your account deletion.

HighlandMo• in reply toRedApple4 years ago

Thank you I’ve done that.

I think there should be some indication at the top of the page and definitely when someone new signs up that all information on the forum will be shared with Corona/Healthvibe and how it may be used. I’m worried that the “alternatives” discussed here that some of us depend on may be targeted as “they” would prefer us to be on the pharmaceutical versions which so many people find don’t work for them - thus defeating the original purpose of the forum - to provide a different voice.

RedAppleAdministrator• in reply toHighlandMo4 years ago

HighlandMo, I understand your concerns. Not sure if will help, but HU have posted some FAQs about this, which includes the following:

Will there be any changes to the HealthUnlocked privacy policy or privacy features?

The privacy of all engaging with the platform will continue to be safeguarded by the HealthUnlocked team with the utmost care.

We do not foresee changes to our privacy policy as a consequence of the acquisition, and we remain bound to comply with current privacy laws, including GDPR and Data Protection Act 2018. Having affirmed this, if there is any planned change, be assured a detailed communication will be provided to HealthUnlocked members, as usual.

Will it be possible to opt-out of being included in data gathering and research?

Everyone on HealthUnlocked has the option to opt-out of aggregated data collection through their account settings. You can also customise which emails you receive from us, including research opportunity emails.