What to do? : Hello, Been 2 weeks since I have... - Thyroid UK

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What to do?

simit profile image
7 Replies

Hello,

Been 2 weeks since I have started weekly vitamin D tablets. My tsh was observed at 3.8 but my gp said it was nothing to worry about. I am constantly suffering from knee, back and elbow pain, along with twitching all over my body. I’m not sure what is causing this and what to do about it... my potassium and magnesium levels are in the normal range.

I have had on and off pain, fatigue and twitching for 2 years now. But I only recently got my blood work done. I’ve always thought it had been due to working out or stress.

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SlowDragon profile image
SlowDragonAdministrator

Previous post shows extremely low vitamin D at 18nmol

Very low ferritin levels too at 11

What has GP prescribed for vitamin D deficiency?

Should have prescribed LOADING dose, did they?

NHS Guidelines on dose vitamin D required

ouh.nhs.uk/osteoporosis/use...

GP will often only prescribe to bring levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

Once you Improve level, you will need on going maintenance dose to keep it there.

Test twice yearly via vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function. There’s a version made that also contains vitamin K2 Mk7

It’s trial and error what dose we need

Calculator for working out dose you may need to bring level to 40ng/ml = 100nmol

grassrootshealth.net/projec...

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

With your Vit D, are you also taking it's important cofactors - magnesium and Vit K2-MK7?

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

simit profile image
simit in reply to SlowDragon

My doctor prescribed sandoz d forte 50 000 unit once a week for 12 weeks.

I’m on 5th week of treatment, but am still having strange symptoms. Specifically, joint and muscle pain in legs, knees, arms and elbows, and twitching. There are many more on and off disturbances too. I’m only a student so I’m quite worried. I had thought by taking my supplements the issue would have been resolved, especially by now...

Doctor said to wait until after 12 weeks of treatment to do further testing related to thyroid function and anemia. Not sure what to do 😔

SlowDragon profile image
SlowDragonAdministrator in reply to simit

Push GP to do full iron panel test for anaemia now

Are you vegetarian or vegan, do you have heavy periods

simit profile image
simit in reply to SlowDragon

No and yes. Will call her again tomorrow.

SlowDragon profile image
SlowDragonAdministrator in reply to simit

Heavy periods leads to anaemia

Low iron tends to cause heavy periods

So it’s important to get iron and ferritin tested and improve to optimal levels

Low iron and/or low ferritin frequently linked to hair loss

Never supplement iron without doing full iron panel test for anaemia first

Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

Links about iron and ferritin

irondisorders.org/Websites/...

drhedberg.com/ferritin-hypo...

This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.

healthunlocked.com/thyroidu...

Thyroid disease is as much about optimising vitamins as thyroid hormones

Helpful post about iron supplements and testing

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

restartmed.com/hypothyroidi...

Post discussing just how long it can take to raise low ferritin

healthunlocked.com/thyroidu...

SlowDragon profile image
SlowDragonAdministrator

Extremely low ferritin

GP should be doing full iron panel test for anaemia to see if iron is as low as ferritin

What’s your diet like, are you vegetarian or vegan?

SlowDragon profile image
SlowDragonAdministrator

Suggest you get Full thyroid testing in 2-3 months AFTER completing loading dose vitamin D and GP has tested full iron panel for anaemia

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus vitamins including folate (private blood draw required)

medichecks.com/products/thy...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/thyr...

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