Parliamentary Question re Liothyronine Patient ... - Thyroid UK

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Parliamentary Question re Liothyronine Patient Pathway

lynmynott profile image
lynmynottPartnerThyroid UK
36 Replies

Lord Hunt of Kings Heath has asked a Parliamentary Question which has been answered by Lord Bethell, the Parliamentary Under-Secretary for Health and Social Care and which, in our opinion, has not been answered very well.

See what you think and if you agree with us, please click "No".

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lynmynott
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36 Replies
Lora7again profile image
Lora7again

I have just clicked No

It is appalling the way they are treating people who need this medication.

Localhero profile image
Localhero

I've also just clicked on ”no”. Such disregard for people’s healthcare is despicable.

tattybogle profile image
tattybogle

That's a 'no' from me......... Jeez! they've barely put enough effort into that answer to formulate a full sentence.

birkie profile image
birkie

Hi lynmynott♥️

Just clicked no.... How discusting it is.. Would they do the same with a pill for heart problems my mum had a heart attack and was on meds that kept her alive.. same with diabetes its about time this was changed... 👊

london81 profile image
london81

done

knitwitty profile image
knitwitty

Done. We are living in a heartless country and have to suffer from a healthcare service which, in some instances, shows a blatant disregard for people's needs.

Betty41 profile image
Betty41

I despair 😩 As someone struggling on Levo after a total thyroidectomy I doubt I will ever feel normal or get my health back. My CCG have banned T3 and consultant refuses to discuss it with me 😢

vinnieboy profile image
vinnieboy

No

That is actually laughable! I almost missed it looking for the paragraph of text I was expecting!

m7-cola profile image
m7-cola in reply to

No from me. I too nearly missed the answer!

Zephyrbear profile image
Zephyrbear

A definite and resounding “no” from me! I’d be a zombie without my T3...

thyroidquest profile image
thyroidquest

I clicked no, but in face he did answer the question of what plans the government had by saying no plans 😂😡

Wired123 profile image
Wired123

Shambles. We should all write to our MP asking for this to be followed up

missrees profile image
missrees

Is that it!! That is not helpful at all. How can we try to get as many people say no as possible?

lynmynott profile image
lynmynottPartnerThyroid UK in reply tomissrees

It has gone onto our social media. Not sure what else we can do...

t3rr profile image
t3rr

definitely ticked no...where do we go from here? I'd like to meet Lord Bethell and I would tell him straight!!!

lynmynott profile image
lynmynottPartnerThyroid UK in reply tot3rr

We have tagged Lord Bethall in a tweet. Let's see if he responds. :-)

nightingale-56 profile image
nightingale-56

It is a NO from me.

Star13 profile image
Star13

No from me too. Is there any chance Lord Hunt can come back and construct the question in another way which may force them to answer it more fully? Its rather a missed opportunity. Is there any reason why Lord Bethall answered him?

lynmynott profile image
lynmynottPartnerThyroid UK in reply toStar13

That is exactly what is happening - next week

Wired123 profile image
Wired123

Are there any MPs or Lords who have thyroid disease or maybe their partner/children do?

We need to find these people and get them on the case. There’s some high profile MPs inc Theresa May who have Type 1 Diabetes, there’s been some good changes in treatment options in that area over the last few years.

helvella profile image
helvellaAdministrator in reply toWired123

There have been many references to Gove's wife, and journalist, Sarah Vine.

We know she was prescribed Armour and felt so much better on it but I am not aware of any involvement with the wider community of thyroid sufferers. Maybe she is involved somehow?

lynmynott profile image
lynmynottPartnerThyroid UK in reply tohelvella

If I remember correctly, we were going to approach her but then she or or her husband was negatively mentioned in the news (can't remember why) and we didn't.

Lora7again profile image
Lora7again in reply tolynmynott

She does work for the Daily Mail as well which is not exactly an honest newspaper.

lynmynott profile image
lynmynottPartnerThyroid UK in reply toWired123

There are some in the House of Lords who spoke at the last debate. We were supposed to have another debate this year and we were hoping they would speak again.

Star13 profile image
Star13 in reply tolynmynott

Ed Davey’s wife has a thyroid issue but I’m not sure what medication she’s on.

grumpyold profile image
grumpyold

I just ticked no too. It's one rule for them, another for us "proleteriat".

It isn't a level playing field. Just look at the way government ministers flout Covid restrictions and get away with it.

Would Gove like a few (hundred or even thousand) concubines so we could all benefit from Sarah Vine's optimal treatment?

tattybogle profile image
tattybogle in reply togrumpyold

I've just though about that for a second...... no ! that price is too high for me.

Ireness profile image
Ireness

It’s a NO from me too. I have no words for these people

Zazbag profile image
Zazbag

They spend hundreds of thousands of pounds on cancer drugs for terminally ill patients to prolong their lives by a few months while they suffer with all manner of side effects and no actual quality of life, and yet for a large number of thyroid patients who will live for decades and actually get a genuine benefit from the right treatment they say it's not "cost effective". Since adding T3 I'm 100x more productive and therefore a better contributor to the economy. Millions of exhausted people is such a f***ing waste!!

Lora7again profile image
Lora7again in reply toZazbag

Yes I agree ... every day I see women who I think are hypothyroid with thin hair, overweight and very tired looking. I was actually chatting with one of them in M & S and she told me she had been on Levo for years and her GP refused to increase her 50mcg because her TSH was in range. There must be thousands of other women in the same position and I really don't know why they would want to do that. I asked my local MP to write to Matt Hancock about our plight and even shared my story with her. Matt Hancock got one of his minions to reply to me and they are just not interested in us and I don't think it will ever change unfortunately. Sometimes I wish Boris would become hypothyroid and then perhaps he will know how it feels. That is never going to happen unfortunately.

CountryBlue profile image
CountryBlue

I have just clicked “No” (and forwarded it to my family to do the same.,,) This is typical of people (MPs) commenting / voting on something they do not understand. Does anyone know of an MP who has a thyroid problem who can lobby for us?

ZoMa profile image
ZoMa

DippyDame profile image
DippyDame

No... but I'm in Scotland!

Out of interest, Wiki on Lord Bethell -

"In August 2020 in response to the controversy over the down grading of A-level results he tweeted that he had fluffed his A levels and this had taught him how to hustle and that "Grades are great, but grit and perseverance win every time." His critics responded that a hereditary peer was not in a position to advise youngsters who have had "none of the advantages and the privilege that he has had".

And we all know the negative connotations of the phrase to hustle!

I suggest for, " the government has no plans" that we read "Lord Bethell has no idea" and doesn't give a toss about thyroid patients.

His response to Lord Hunt is rude, dismissive, arrogant and appalling .....and lacks any intention or ability to comment on the subject.

Sorry, this is more than a tick and maybe I'm not supposed to comment here in such terms, but when we read, on a daily basis, the litany of people who are on their knees and desperate for help that response is unforgiveable.

Rant over!

sandpebble profile image
sandpebble

Its a definite no from me too. Bet he takes longer deciding what to have for his subsided lunch than the thought put into that....

Liz

Stourie profile image
Stourie

A definite NO Jo. xx

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