Air hunger: Hi I am hypothyroid. My G P wants to... - Thyroid UK

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Air hunger

Jeanmw profile image
6 Replies

Hi I am hypothyroid. My G P wants to reduce my levothyroxine to 75mcs a day because my tsh is high. I have reduced down as requested and now developed air hunger. Any suggestions as to what may be causing this and what can I do to resolve it.

Thank you

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Jeanmw profile image
Jeanmw
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6 Replies
jimh111 profile image
jimh111

Can't be so, if TSH is high they need to increase the dose. Get hold of the results and we can comment further.

LMor profile image
LMor

If a Gp wants to reduce your dose because your Tsh is HIGH then they should be struck off!! As jimh111 says, get hold of your results and come back and let us know what they are. Good luck

Marz profile image
Marz

So for you reducing was not a good move ! Do you always obtain copies of your test results with ranges ? Going by the TSH only is incorrect. You need the FT4 & FT3 tested too.

Are you able to increase your dose ?

Air hunger can also be caused by LOW in range B12 - Folate - Ferritin & VitD. Do you suffer with Anaemia? Hashimotos ?

Nanaedake profile image
Nanaedake

I think Marz means FT4 and FT3 but hopefully you worked that out...

SlowDragon profile image
SlowDragonAdministrator

If TSH was too high ....you needed 25mcg dose INCREASE

strongly recommend getting hold of the actual results

You are legally entitled to printed copies of your blood test results and ranges.

The best way to get access to current and historic blood test results is to register for online access to your medical record and blood test results

UK GP practices are supposed to offer everyone online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.

Link re access

healthunlocked.com/thyroidu...

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.

Important to see exactly what has been tested and equally important what hasn’t been tested yet

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Is this how you do your tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus vitamins including folate (private blood draw required)

medichecks.com/products/thy...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/thyr...

Low vitamin levels frequent when under medicated

silverfox7 profile image
silverfox7

If there is another doctor in the surgery you can see then may be the switch a good idea to see if that doctor has a better grasp on what is happening!

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