Hello, I’ve recently started getting really bad pain on the right side of my body. Everything started with the upper right part of my abdomen and sometimes my right shoulder and upper back, then I got a constant pain in my lower back right side, then it spread to my hip and groin, so basically the whole right side of my body is in some form of constant pain. I originally freaked out about my liver since I was a drinker but my tests all come back normal. My tests include full liver blood work and a fibrosis blood panel that were completely perfect besides mild bilirubin elevation, 3 ultrasounds (1st one said mild fatty liver the rest say enlarged liver with no scaring or inflammation), 2 CT scans that show no scaring or inflammation of anything just a Riedel’s lobe of my liver, and a HIDA scan showing no abnormal functioning. My blood work for years has said mild hyperthyroidism that I never took medication for. After all my clear tests my drs keep telling me it’s my thyroid so I finally did ration iodine therapy a month ago which has not shown any benefits so far and my pain continues. Does anyone with thyroid trouble have this kind of pain? I’m running out of options but I feel like I’m o my getting worse by the day.
Hyperthyroidism and right sided body pain? - Thyroid UK
Hyperthyroidism and right sided body pain?
Just a thought...
Ovarian cysts can cause referred pain, particularly in the shoulders.
I honestly thought the same but my ultrasound for that showed nothing as well. I feel like I’ve been tested for so much and nothing shows up but the pain is so persistent and not like anything I’ve ever felt with before.
Was the cause of your mild hyperthyroidism determined? They don’t always investigate the cause and treat all hyperthyroidism with a trial of anti thyroid medication which can help some conditions go into remission, after that trail of up to 18 months RAI is recommended.
I hope that it was made very clear to you RAI is highly likely to make you hypothyroid and that a scheduled of regular repeat thyroid function test have been arranged to monitor for this.
Do you have access to your GP record & tests? You are legally entitled to them. You can also obtain an actual print out of past results. You need your results with ranges, as ranges vary between labs they are shown in [brackets]. TSH, FT4 and FT3. Any antibodies testing. Also important to test vitamin D, folate, ferritin and B12. These need to be optimal for thyroid health. Post your results on here.
So I’ll admit I did jump into the RIA and my doctor told me that the medication for hypothyroidism was better on my body than the medication for hyperthyroidism was. I took medication for hyperthyroidism for a year and never felt any different so I stopped. This May I ended up having all sorts of pains and problems that was sure was my liver and honestly still think it is my liver but all my liver tests show nothing but Slightly elevated bilirubin and I’ve had almost every test besides a biopsy. My dr did not want to investigate the reason I was hyper but told me that controlling it would make my pain better. My pain has only gotten worse to the point I feel like I got hit by a truck every morning when I wake up. I’m basically crying to my drs telling them something is wrong and they just don’t listen. My Tsh had gone back to the in range mode since the RIA but my t3 and t4 are now high which they have never been before. My WBC RBC and platelets have been slightly decreasing since May but since the RIA they took a bigger drop but since they are still technically in range no one cares to investigate why they are dropping. I’ve seen a dr pretty much every other week since May and I feel like things are only getting worse. My ANA s came back positive but they tell me healthy ppl have positive ANA s and they aren’t concerned about me. I feel so horrible all the time and I know I’m only going to continue getting worse but there’s nothing I can do.
In May: TSH 1.450, T4 1.37, and T3 3.7 (Can you check that? & post ranges)?
If that free ft3&4? They are very low by most ranges we see. The range of total thyroxine is much higher. Depending on the range that is an unusual result the TSH is in range but the f?T4 is very below range and ft3 is borderline low. If you were taking carbimazole at this time it was far too high a dose.
Were you taking biotin or B7 as that is known to skew results.
July 1st: TSH 0.256 (low) T4 1.49 very low?
August 27: TSH 0.566, ok T3 4.1 ok, T4 1.75 very low but higher after RAI. You can have a period of hyperthyroidism after RAI but expect it to go down, when Is your next blood test, you need careful monitoring.
Carbimazole is a strong drug and can cause serious side affects, Levothyroxine being a synthetic hormone is not a drug at all so is considered safer. Managing on right replacement levo is a good treatment for most, some have issues with the fillers. Unfortunately many can have to battle to find the right dose, with inadequate testing.
Do make sure you get copies of all your results including ranges for your records and keep a diary of your symptoms & any medicines & supplement you take. You might need to keep be persistent with your doctor.
Thanks. I’m currently not on any meds for my thyroid yet and I had not taken thyroid meds for a few years now. So all my test results from May are results not affected by any medications. The only things I do take are vitamins D, B-12, milk thistle, and turmeric.
Amethyst I have had the weirdest symptoms so I can believe that this could be linked to your thyroid.
I was hyper and had the radiation treatment in 2015.
I am hypo now and have been on hormone replacements since.
When I was on levothyroxine only and undermedicated I had back pain on my back righthand side that went down my leg. That stopped for a while and it became my left hip, knee and leg that became stiff and painful. I could hardly walk. Plus other odd symptoms such as tingling lips and complete loss of voice and things you don't read in the list of symptoms.
I was given combination therapy - levo and liothyronine- my back and leg pain went. My voice came back to normal. They came back slightly when I was changing doses and levels were out so I know that they are thyroid related..
So the only way to test the theory is to monitor your thyroid blood levels TSH FT4 and FT3 and symptoms. You need FT4 and FT3 as both can cause symptoms if they are wrong for you. Post the results on here and we will suggest how they can be improved for you. Only by changing your thyroid hormone levels will see if this improves your awful symptoms.
Thank you. I know some Drs have told me thyroid can cause issues that you won’t read about in the books or online but my TSH has always been low and I never felt they way I do now so I guess I have a hard time believing it all but they don’t check the T3 and T4 as often as TSH so maybe that’s why.
In May: TSH 1.450, T4 1.37, and T3 3.7
Now in May I went to the dr for really bad left upper back pain after a spell of over drinking which is why I was positive and still believe it’s liver/ pancreas related but the only elevation on those labs for that was 1.8 bilirubin and everything else in range. So my thyroid was actually in good shape when it all started.
July 1st: TSH 0.256, T4 1.49 and vit D 33.8 ( which came up due to me taking two supplements a day for low vit D levels)
July 15th: TSH 0.201, T4 7.6
Did RIA end of July/ beginning of August
Aug 6th: positive ANA direct, TSH 0.281, PTH intact 17
August 27: TSH 0.566, T3 4.1, T4 1.75
So nothing crazy. Can I ask how long it took you to become hypo after the treatment and if it had any negative side affects for you?
It took 3 months from RAI to me becoming very hypo. It has taken 4 years for me to get on top of the hypo as the docs never checked my FT3. I do not convert T4 to T3 efficiently.
Now I am on a combo of Tv with a little top up of T3 I am getting there.
That worries me about my drs too. They don’t seem to check the whole picture unless I ask and when I ask I have to do so at least 50 times for them to do anything. I don’t get it, why would they not pay attention to the whole picture before prescribing or not prescribing things.
Heavy drinking leads to Vitamin deficiencies - especially thiamine
Have you had FULL thyroid and vitamin testing
What vitamin supplements are you currently taking?
Did medics explain the implications of RAI
You need to regularly test thyroid levels...as it’s highly likely you will become hypothyroid in near future
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies or TSI or Trab antibodies for Graves disease (hyperthyroid autoimmune)
Ask GP to test vitamin levels including thiamine (if possible)
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Is this how you do your tests?
Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins
List of private testing options
thyroiduk.org/getting-a-dia...
Medichecks Thyroid plus vitamins including folate (private blood draw required)
medichecks.com/products/thy...
Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test
Thriva also offer just vitamin testing
Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test
bluehorizonbloodtests.co.uk...
If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3
£29 (via NHS private service ) and 10% off if go on thyroid uk for code
thyroiduk.org/getting-a-dia...
monitormyhealth.org.uk/thyr...
I have had a vitamin D deficiency almost my whole life but didn’t really take supplements regularly until this year. Now I take two a day and I’m within range but still kinda low range. My vitamin B-12 was on the low side but still in range but I have been taking 1 a day because I read it helps with some issues I’ve been having. I’ll be honest I didn’t take care of my self for a long time and never felt bad besides some fatigue from time to time and irritability from being tired and some itchy skin. I was diagnosed with I BS c in 2015 and took Linz was for yrs and never changed my diet or drinking. I know stopped meds, almost quit drinking( have severely cut it down), I diet like crazy now and only eat things safe for a liver cirrhosis diet, and I take more vitamins to help with everything and honestly my body has been on a downhill slope since May. I feel so much worse now than I did back then but my labs always looks so good that I’ve seen 5 different drs and specialists since May and no one wants to give me the time of day because on paper and in person I look 100% but inside I feel more like 30%.
Recommend getting full thyroid and vitamin testing as detailed
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