The Patients Association re Liothyronine - Thyroid UK

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The Patients Association re Liothyronine

Loafinabout profile image
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Loafinabout
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SlowDragon profile image
SlowDragonAdministrator

We have seen this pattern begin to emerge from the guidance on ‘low value’ medicines, particularly in respect of the drug liothyronine. We were pleased that the final guidance amended the initial proposals, and advised that liothyronine should still be available when a specialist advised it to be necessary. However, this has become an example of a barrier that patients should readily be able to clear, but in practice cannot: we have heard of CCGs formulating policies that misunderstand or misrepresent the guidance, and GPs interpreting either the guidance or their local CCG policy incorrectly, with devastating consequences for the patients in question.

Anyone still denied T3 ...or had it withdrawn.....especially if your endo says you have Clinical need ...and especially if female / over 65

Please write to email in article

knitwitty profile image
knitwitty in reply to SlowDragon

There is quite a lot of information if you follow the link, is it John Kell we need to reply to please ?

I shall definitely respond as I have been denied Liothyronine by my endo on cost grounds and he has written to my GP 3 times, he is refusing to prescribe because he doesn't feel "comfortable " prescribing liothyronine, never having prescribed it before, despite the endo offering to monitor me.

I am beyond frustrated. :(

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