Hi all
first post, I'm male 43, very active. has anybody managed to permanently heal their thyroid? I'm currently trying infrared treatments thyroidpharmacist.com/artic... with supplements. I've also heard walnut oil is good for thyroid
Hi all
first post, I'm male 43, very active. has anybody managed to permanently heal their thyroid? I'm currently trying infrared treatments thyroidpharmacist.com/artic... with supplements. I've also heard walnut oil is good for thyroid
And I've been on levy for 7 years. 50 mg but had none for 2 weeks and I feel ok. basically trying to biohack my thyroid
It’s very common for people to feel better in the short term after stopping Levothyroxine. Just be aware it probably won’t last and you may—and very suddenly—feel absolutely dreadful.
Out of interest, why did you stop taking it? 50mcg is highly unlikely to have been a big enough dose for you. We see it here all the time, people being left on doses that make them feel worse than they did to start with.
Matt If you have a diagnosis of an autoimmune thyroid disease then you cannot heal your thyroid as damage will have been done. Particularly if you have had antibody tests which show autoimmune thyroiditis aka hashimotos.
Have you had antibodies tested?
Yes, it does show I have antibodies
With autoimmune thyroiditis aka hashimotos which you have as you have the antibodies your thyroid will have been damaged over the years. Your autoimmune system mistakes the thyroid for a foreign body and attacks it. These attacks kill of a bit of the thyroid reducing thyroid function. Your thyroids hormone production will be compromised.
You do not have a fully functioning thyroid and it will not regenerate. You need thyroid hormones to replace the ones that your thyroid can no longer make you cannot bio hack them. You can try anything to stop further degradation of your thyroid but you need oral hormones to maintain your levels.
I all but stopped levo - I don't have autoimmune thyroiditis - and I felt great for 3 months. Then the lack of hormones really bit back and I was very ill.
We really need those hormone and only hormones can replace hormones.
I'm all for taking steps with diet that help the body to reduce autoimmune inflammation, but the article by Izabella Wentz that you link to is fairly clear that she herself hasn't seen very many such cases of Hashi's reversal. If it is possible at all, the patient and their doctor would really need to be on the ball, aware perhaps of some inherited predisposition to autoimmunity. They would also need to be testing antibodies pre-emptively on a regular basis. How often in real life does that happen?
what do you think top this one pubmed.ncbi.nlm.nih.gov/206...
It's interesting, and I think it's been discussed before on the forum.
Trouble is, this is an abstract, and I'd want to see the whole paper. There were only 15 participants, and there was no long term follow-up beyond nine months. The abstract says nothing about continuing symptoms in the patients, and whether the reduced doses of levo in all participants were prescribed according to standard TFTs or how the patients were actually feeling. On the whole, the abstract raises many more questions than it answers.
This study does say that it reduced antibody levels in some of the subjects. However reduced antibody levels means that the subjects still had autoimmune thyroiditis and this means that future attacks on the thyroid will still occur with the degradation if hormone production.
It’s extremely common to feel better/fine when initially stop taking levothyroxine...it doesn’t last
Why on earth have you been left on only 50mcg levothyroxine. That’s only a starter dose...likely extremely under medicated
guidelines on dose levothyroxine by weight
Even if we don’t start on full replacement dose, most people need to increase levothyroxine dose slowly upwards in 25mcg steps (retesting 6-8 weeks after each increase) until on full replacement dose
NICE guidelines on full replacement dose
nice.org.uk/guidance/ng145/...
1.3.6
Consider starting levothyroxine at a dosage of 1.6 micrograms per kilogram of body weight per day (rounded to the nearest 25 micrograms) for adults under 65 with primary hypothyroidism and no history of cardiovascular disease.
gp-update.co.uk/Latest-Upda...
Traditionally we have tended to start patients on a low dose of levothyroxine and titrate it up over a period of months.
RCT evidence suggests that for the majority of patients this is not necessary and may waste resources.
For patients aged >60y or with ischaemic heart disease, start levothyroxine at 25–50μg daily and titrate up every 3 to 6 weeks as tolerated.
For ALL other patients start at full replacement dose. For most this will equate to 1.6 μg/kg/day (approximately 100μg for a 60kg woman and 125μg for a 75kg man).
If you are starting treatment for subclinical hypothyroidism, this article advises starting at a dose close to the full treatment dose on the basis that it is difficult to assess symptom response unless a therapeutic dose has been trialled.
A small Dutch double-blind cross-over study (ArchIntMed 2010;170:1996) demonstrated that night time rather than morning dosing improved TSH suppression and free T4 measurements, but made no difference to subjective wellbeing. It is reasonable to take levothyroxine at night rather than in the morning, especially for individuals who do not eat late at night.
BMJ also clear on dose required
bestpractice.bmj.com/topics...
Strongly recommend you get FULL thyroid and vitamin testing after 6-8 weeks without levothyroxine (assuming you last that long without)....
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially as you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies .....and especially if been left on far too low a dose levothyroxine
Ask GP to test vitamin levels
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Is this how you do your tests?
Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins
List of private testing options
thyroiduk.org/getting-a-dia...
Medichecks Thyroid plus vitamins including folate (private blood draw required)
medichecks.com/products/thy...
Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test
Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test
bluehorizonbloodtests.co.uk...
If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3
£29 (via NHS private service ) and 10% off if go on thyroid uk for code
thyroiduk.org/getting-a-dia...
monitormyhealth.org.uk/thyr...
Medichecks - JUST vitamin testing including folate - DIY finger prick test
medichecks.com/products/nut...
Medichecks often have special offers, if order on Thursdays
You should understand that you can have periods of remission with Hashi's, just like you can with Grave's. On the way back down to being hypo, after a Hashi's 'hyper' swing, you can be euthyroid for quite some time, sometimes, and that's when people get the idea that they've 'cured' their Hashi's with whatever they've been doing at that time. But, it won't last. Eventually, you will go hypo again, I'm afraid.
Question: has anybody managed to permanently heal their thyroid?
I've recently been in touch with Eric Merola (The God's Cells) and they have had total remission of people with Hypothyroidism who have had "fetal stem cell" therapy. Some have had to have several sessions but they did have remission. Using stem cell therapy particularly for "hypothyroidism" is in its genesis as this type treatment becomes used more and more and prices go down information about it will get out. Long term results have not been verified as this is so new. This is a VERY controversial subject but it appears to have great results. VERY few places on the planet use "fetal stem cells" and are approved by governing bodies to do this (legally). I've spoken with two people who have flown to Kiev Ukraine and EmCell and had this done and they both had very good results. Do you have a spare 10-12k laying around...
Would love to hear how your infrared treatments come out. Please feel free to contact me and let me know..Good Luck..
Hi Matt
I guess you missed my post precisely 2 weeks ago healthunlocked.com/thyroidu...
Its intent was to solicit feedback/anecdotal evidence of remission (or recovery - I decided cure was a step too far!) i.e. only from those that have found them. Except for a few comments that some improvements were found, I received no such feedback although I have 2 or 3 theories as to why that may be which I can share via pm.
My gut feeling is that, as a minimum, some without inherited predisposition to hashimotos ought to be able to find improvements significant enough to consider to be in remission or even recovery. But no evidence of that from the replies to my post which I think numbered less than yours.