Hi all
Iv just got a print out of my antibody results before I see the Endo. However I don’t know what these mean. Can anybody help to explain these to me?
Anti-TPO - 1,365. Normal range is 60-100
Thyroglobulin abs- 1,650 . Normal range is 280-344
TSH- 0.01
T3- 15
T4-20
Many thanks for the help.
Both are extremely high ...this normally would confirm autoimmune thyroid disease also called Hashimoto’s
Technically in UK it’s only Hashimoto’s if you have a goitre
If high antibodies and no goitre it’s Ord’s thyroiditis
Rest of world tends to call both variations Hashimoto’s
But just seen you have had Graves’ disease diagnosed....
Extremely important to regularly retest vitamin D, folate , ferritin and B12 with Hashimoto’s...frequently vitamins are very low
Both Graves’ disease and Hashimoto’s affect gut function, lead to low stomach acid and low vitamins
Can significantly reduce symptoms to maintain optimal vitamin levels
Gluten intolerance is extremely common too with both Graves and Hashimoto’s
Can see from your other post you have also had Graves’ disease diagnosed
Have you actually had high TSI or high Trab antibodies tested to confirm Graves’ disease ?
It is possible to have high TPO and High TG antibodies with Graves’ disease....but they are normally not very high with Graves’ disease
Have you had ultrasound scan of thyroid?
You can have Hashimoto’s and Graves’ disease at the same time
Your high Ft4 and Ft3 could be due to temporary Hashimoto’s flare...or due to Graves’ disease
Have you had cholesterol tested?
Are these test results the ones you had done when you were diagnosed ?
Hi Marz
I became unwell and bloods were checked and when my tsh was 0.01 and T3 15 I was told I had hyperthyroidism. I then had an ultrasound of my thyroid with showed inflammation and vascular. I was told I had Graves’ disease and more bloods were obtained then (this was with a general medical doctor ) Iv since been referred to a Endo I’m awaiting apt! Iv started Carbimazole 20mg two weeks ago ,today I obtained a copy of my antibody results.
Hi all
Many thanks for yer reply, these blood results have just returned to me! My last doc apt wasn’t with an Endo specialist it was a medical doctor, who diagnosed Graves and then took these bloods and has referred me to an Endo specialist, do ye think the diagnosis initially of Graves is incorrect?
Possibly .....you really need Graves antibodies tested to definitely confirm Graves’ disease
TSI or Trab antibodies
Graves Disease antibodies test
medichecks.com/products/tsh...
Hashimoto’s frequently starts with transient hyperthyroid results and symptoms.....we see Hashimoto’s patients, who are tested during one of these hyperthyroid type phases, misdiagnosed as having Graves
Medics see Ft4 and Ft3 and assume hyperthyroid.....
Link about thyroid blood tests
thyroiduk.org/getting-a-dia...
Link about Hashimoto’s
thyroiduk.org/hypothyroid-b...
Link about Graves’ disease
thyroiduk.org/hyperthyroid-...
List of hypothyroid symptoms
thyroiduk.org/signs-symptom...
Hi slowdragon
Thank you for your very informative reply! I’m so lost in all this thyroid information, your information has been very helpful. When I see my Endo I will request the antibodies for Graves to be done so I am not being misdiagnosed.
As this is definitely an autoimmune disease I have am I correct ? Also should I be considered “at high risk “ regarding Covid 19? I work in a health care setting.
Also should I consider a shift work change as night duty mixed with day duty may worsen symptoms?
Nobody seems to know if having autoimmune disease puts us at higher risk of Covid
Many people with autoimmune disease have low vitamin D
Low vitamin D may be increases risks of Covid
Testing and improving vitamin D, folate, ferritin and B12 recommended regardless of Covid
nutraingredients-asia.com/A...
Post from couple of days ago from the Founder of a Thyroid UK ..Lynn Mynott
Covid may possibly be linked to causing Thyroid disease
healthunlocked.com/thyroidu...
Thank you slowdragon
I will add vitamin d to my list of bloods I request.
Appreciate all your help 👍
Agree with SlowDragon.
The high TPO and TG antibodies would suggest Hashimoto's.
To confirm Graves, test TRAb or TSI.
It is possible to have both Hashimoto's and Graves.
Wishing u well.
Thank you ling
Can I ask if it’s Hashimoto’s how long can I be in the hyper phase of this before becoming hypo I’f left untreated?
In Hashimoto's, the thyroid is in the process of self-destructing, so it moves between hyper, hypo and normal. In terms of symptoms and blood test results, you will experience these different phases, and it doesn’t necessarily move in a linear manner like going hyper then hypo. It goes up or down or normal before the thyroid burns itself out. The key then is to manage the symptoms depending on the phase u are in.
However, to leave it untreated very much depends on your symptoms. Some symptoms can be very dangerous and could affect your long term health. Take for example heart symptoms in the hyper phase. If your heart is racing a lot and u have palpitations, these need to be addressed. A racing heart can eventually put u in heart failure. The process for the self destructing thyroid could take years, and if your heart is veering from racing to slow when u are in a hypo phase, these effects will affect your long term heart health.
How do you feel Busyy? What are your symptoms? Yes you have Hashi’s but it could be a Hashi flare and you don’t have Graves. A flare is when the Thyriod is under attack and as it dies the thyroxine is dumped into the bloodstream.
I hope the doctors aren’t treating you by TSH alone. Although your T3 is around 3times mote than ‘normal’ I’m not sure if I’d start any treatment till I knew all details and thought about how I felt.
Hi NWA6
I don’t feel as bad as what I’m reading and others say I should feel, but to be honest I don’t know what’s normal to feel anymore. My husband died suddenly over a year ago and I was 8 months pregnant at the time- I’m not a single mum with little support. I have been exhausted since really. But recently I found I was caught for breath easily and finding it hard to sleep. My heart rate at rest was 140-150, exertion could have driven this much higher. Iv lost weight but not a massive amount. I’m functioning very well with my daily activities really I don’t feel unwell.
Do you think Carbimazole could be the wrong drug for me?
Oh Busyy 😞 I’m so so sorry to hear the tragedy that you’re going through 😞
I’m really not sure about the Carbimazole or the dosage you’ve been given but I would be wary until I was sure that I had Graves along with the Hashi’s or as we might suspect it’s just Hashi’s but a flare. Only when I knew exactly what my condition was would I think about a blocker. My reason for this is that they might put you on too high a dose or for too long and send you into a hypo spiral and as many of us here know they treat Hashi’s just as poorly as they do Graves Symptomatically both are hard to deal with.
My sister was told she was hyper (now we’re not so sure) and I was diagnosed Hashi. We’ve both really struggled. Quite comically at times when we were together, me on the sofa, wanting peace and quiet, she cleaning tidying, talking manically! 😂
If you feel ok atm then take your time to learn what you can, research and then you can make informed choices.
Take a look at these symptoms from Thyroiduk and tick all that apply. One for hypo and one for Hyper and lots of them do overlap.
thyroiduk.org/signs-symptom...
thyroiduk.org/signs-symptom...
Much love and please keep reading and asking questions, we’ve all been there and we’re at various stages of our journeys 🤗
Hey there again Busyy
There are two main reasons why you have symptoms of hyperthyroid and they are either because of Graves or Hashimoto's and both auto immune diseases that attack the thyroid gland.
Graves is constant hyper symptoms and anti thyroid drugs are prescribed to block your own thyroid production.
Hashimoto's is transient hyper symptoms and is not treated with AT drugs.
The only way to know which disease you are dealing with is to have the antibody blood test which is Graves specific and commonly referred to as a TSI or TR ab antibody test - basically you're looking for over range antibody levels with either a " stimulating or blocking " wording on the blood test results :
I know it's confusing, but it is important to find out exactly what you are dealing with and to be sure you re on the right course of medication.
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