Non- Hashimoto’s Hypothyroidism - causes - Thyroid UK

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Non- Hashimoto’s Hypothyroidism - causes

discocat54 profile image
3 Replies

Hi everyone

I was diagnosed with non- Hashimoto’s 25 years ago at the age of 25 when my GP was looking for an explanation for severe headaches that I’d had since I was a child. I had my TSH tested which came back as 25 with no antibodies present.

One thing I’ve never had an answer to is what the cause could be, there’s no iodine deficiency, I’ve never taken lithium or had chemotherapy.

Is it something that can just develop?

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discocat54
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SlowDragon profile image
SlowDragonAdministrator

First ...Hashimoto’s can have high a TPO or high TG antibodies...NHS only tests TG antibodies if TPO are high

So many Hashimoto’s patients who only have high TG antibodies never get Hashimoto’s diagnosed

You can test both privately

20% of Hashimoto's patients never have raised antibodies

Have you ever had Ultrasound scan of thyroid?

healthunlocked.com/thyroidu...

Paul Robson on atrophied thyroid - especially if no TPO antibodies

paulrobinsonthyroid.com/cou...

SlowDragon profile image
SlowDragonAdministrator

Lots of infections can cause thyroid to go haywire

Glandular Fever

SIBO

H pylori

hypothyroidmom.com/hashimot...

Other possibilities

Tonsillectomy

SeasideSusie profile image
SeasideSusieRemembering

discocat54

Although Hashimoto's is the most common cause of hypothyroidism, there are many other causes which Dr Peatfield lists in his book "Your Thyroid and How to Keep It Healthy":

Genetic - thyroid gland may not develop properly in the womb, may be totally inactive or partially inactive.

Environment - iodine deficiency, selenium deficiency, environmental poisons such as mercury, fluoride (not naturally occurring fluoride but the toxic waste fluoride added to toothpastes, water, etc).

Thyroid suppressing drugs - eg Lithium, Amiodarone

Glandular fever/Epseine-Barr virus

Major Trauma

Thyroid Trauma

Surgery

Pregnancy

My hypothyroidism is non-autoimmune, when I saw Dr P he suggested that tonsillectomy at age 5 and pregnancy may be the cause but he couldn't confirm and no GP has ever even considered what might have been the cause. I started getting symptoms a few months after the birth of my second child. But at the end of the day, knowing the cause of non-autoimmune hypothyhroidism doesn't really help so I wouldn't fret too much about it.

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