Hair loss in Hashimoto’s/hypothyroidism - Thyroid UK

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Hair loss in Hashimoto’s/hypothyroidism

XxAnyaxX profile image
18 Replies

Ok so had a blood panel done at gp, end of March and it showed elevated tsh, TgAB and TPOAb. So long story short, I am still nowhere near being diagnosed/treated, anyway that’s a topic for another post.

My hair has been thinning for quite a few years now, however over the last year or 2 the texture of my hair has totally changed. Going from soft and straight to dry/coarse and frizzy, it breaks off so easily so much so I legitimately look like a scarecrow 😂😞

So my question is do any of you experience significant hair loss/breakage with Hashimoto’s/hypothyroidism?

Thanks in advance for any answers

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XxAnyaxX profile image
XxAnyaxX
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18 Replies
naryshkin profile image
naryshkin

Get your bloods checked for iron and ferritin. I was told that the first thing that goes out is hair and the last that goes back is hair and that it's linked to your iron. My sister who is undergoing an investigation for Hashimoto's disease (in private) suffered hairloss due to hypo/Hashi and a lack of iron. She has been supplementing with iron and was surprised to find that she's deficient, so it's definitely worth to get it checked with someone who knows more about it. She overhauled her diet to include more veg, mostly plant-based with the occasional meat. Argon oil and hair masks have been great! Baby shampoo is mild enough for daily use, if you find that your hair/ skin is sensitive/dry. Good luck!

XxAnyaxX profile image
XxAnyaxX in reply to naryshkin

I am planning to go to a trichologist, possibly at the start of the new year, hopefully I’ll find out more then. I have been supplementing, with a spray iron for the past few months, but I could still be low. I have overhauled my diet in the last 3 months, I am vegetarian so I eat a lot of legumes, veg and tofu. I was hoping overhauling my diet would help a little, but it hasn’t so far. I will try using baby shampoo, I only wash my hair a couple of times a week as my hair is so fragile atm. I will get some hair masks, hopefully soften my straw like hair a little 😂Thanks again for the reply

SlowDragon profile image
SlowDragonAdministrator

Previous post shows very low Ft4 and above range TSH

healthunlocked.com/thyroidu...

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels

Low vitamin levels tend to lower TSH

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Is this how you do your tests?

XxAnyaxX profile image
XxAnyaxX in reply to SlowDragon

Yes, I should really get a new thyroid panel done, my gp is still more or less phone consultations, right now so I’ll just need to phone and see. I think I’ll do private bloods, as getting a proper thyroid panel done through my gp’s has been like pulling teeth lol. When I did my first private bloods in January, my vitamin d was very low. However I have been supplementing with a vitamin d3 and k2 spray, 300iu for quite a few months now. Yes I’ve made sure all my blood tests were early and fasted.Thanks again for reply

sazzle2680 profile image
sazzle2680

Sadly yes, me too. I experienced this once running up to diagnosis around 5 years ago and then again at the beginning of this year after being wiped out by a virus.

Both times my thyroid and vitamin levels were poor. When I brushed my hair I would just shed handfuls, but I have a lot of hair. It’s fine but it’s thick.

The texture of my hair has changed, but my FT3 levels are rubbish and have been for quite some time. I’m working on that and maybe it will make a difference.

XxAnyaxX profile image
XxAnyaxX in reply to sazzle2680

Yeah, it’s pretty frustrating to say the least, oh hope you’re feeling better now. Yes it’s the hair shedding that’s, quite bad, I will need to look into extensions or something as it’s getting quite noticeable now. Hope you get thing’s sorted out, as even though it’s only hair it definitely affects your confidence.

sazzle2680 profile image
sazzle2680 in reply to XxAnyaxX

Feeling much better thanks. Started a trial of Liothyronine about 6 days ago and also on Humeria due fertility issues. Together it seems to be making a difference.I had the same though about extensions and gave them a try! I absolutely loved them when they were in, but they did weigh down my hair a lot (which caused it to break with it already being weak) when I took them out my hair was really thin.

Good luck with whatever you decide! Hopefully it will start to thicken out again.

sbadd profile image
sbadd

My hair and scalp have been dry for years, I have hashis but have noticed more hair loss recently, if you find something let me know, last time my hair was shiny and nice was when pregnant 11 years ago

XxAnyaxX profile image
XxAnyaxX in reply to sbadd

Yes it’s so frustrating, i have psoriasis on my scalp so I’m a flaky mess 😅, hope you find something that helps. However if I find out anything that helps I’ll let you know.

sbadd profile image
sbadd in reply to XxAnyaxX

Psoriasis same here, just grows back, get behind my ears 2, I can sometimes clear it briefly with olive oil, and antidandruff shampoos, but just comes back, I wish there was a cure

Macey2009 profile image
Macey2009

Hi I am undiagnosed also. Apart from very high tpo antibodies >1000 But my hair has changed dramatically too. Like you it was soft and healthy now it's so very dry brittle and breaking.

XxAnyaxX profile image
XxAnyaxX in reply to Macey2009

Yes it’s so frustrating, to be having symptoms and get no diagnosis or any answers. Yeah, my hair sheds a lot too, and breaks off so what little hair I have left is all different lengths 😅😖 hope you get a diagnosis soon, as surely a high antibody test would prompt a Hashimoto’s diagnosis 🤷🏼‍♀️ I suppose not

Macey2009 profile image
Macey2009 in reply to XxAnyaxX

Sorry to hear you're suffering. Yes it is frustrating. My gp never mentioned hashimoto's. I only know from this site. Although I did see a rheumatologist and he recommended 6 monthly thyroid checks as he said I am at risk of developing autoimmune thyroid disease in future 🙄 Sending you best wishes 🤗

Gigi62 profile image
Gigi62

I experienced hair thinning which started in my twenties, luckily it seemed to stop once I was diagnosed with Hashimotos. Went grey at the same time. Despite meds for 40 years and a total thyroidectomy ice never got back to anywhere near what I was health and activity wise

SlowDragon profile image
SlowDragonAdministrator in reply to Gigi62

Premature grey hair frequently linked to B12 deficiency

Extremely common with hypothyroidism, especially hashimoto’s

healthline.com/health/beaut...

Ask your GP to test B12, folate, ferritin and Vitamin D

XxAnyaxX profile image
XxAnyaxX in reply to Gigi62

Same here actually well mid twenties, and now I’m early 30s. Did your hair loss stop when you started medication? Oh dear that’s pretty rubbish, it’s a pretty horrible/frustrating condition. More so because a lot of doctors, shrug us off so we are misdiagnosed for years before ever being offered treatment.

Gigi62 profile image
Gigi62 in reply to XxAnyaxX

It stopped but never regrew. I really have no body hair. I take Vit D due to living in sub arctic but on my next blood tests I’m going in fully armed!

XxAnyaxX profile image
XxAnyaxX in reply to Gigi62

Oh I see, that is totally rubbish, hopefully you get the answers you’re looking for at your next blood test.

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