Advise post radio iodine treatment : Last August... - Thyroid UK

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Advise post radio iodine treatment

Stubbzy profile image
6 Replies

Last August I had radio iodine treatment for a multi node thyroid, and havent really been 100% well since .

Tingling in feet and hands , funny headaches and feeling wobbly .

My Endocrinologist has checked thyroid function regularly and said function is within normal limits .

Last bloods

TS H 0.58

Vit D 76.7

Would like advise please

Thanks

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Stubbzy profile image
Stubbzy
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6 Replies
PurpleNails profile image
PurpleNailsAdministrator

Has your FT4 & FT3 been checked? review on TSH alone insufficient. Your actual levels could be very low. Tingling in hands and feet could be B12. Other than vitamin D have you had any other key nutrients tested such as Folate, ferritin?

Are you taking any medication? Anti thyroid or Levo?

pennyannie profile image
pennyannie

Hey there again

So sorry you are still feeling as you do :

I can't add to that I detailed some months ago, and to offer a considered opinion we need to see blood test results of a TSH,T3.T4, thyroid antibodies and your ferritin, folate, B12 and vitamin D :

These can be undertaken privately if your doctor will not action these for you.

There are full details on the Thyroid uk website and suggest you start by getting these basics bloods done so we can try to work what if anything needs to be adjusted.

P.S. - If you intend to order private blood test Medichecks, one of companies who offer this service, generally offer a discounts on a Thursday.

Stubbzy profile image
Stubbzy in reply to pennyannie

Thank you

Will ask for more detailed testing

pennyannie profile image
pennyannie in reply to Stubbzy

Hey there

I just added to my last reply - I don't know if you get notified of P.S. ' es.

and I think we crossed over each other ;

This is how I started off getting myself better a few years ago :

SlowDragon profile image
SlowDragonAdministrator

Just testing TSH is completely inadequate

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test all four vitamin levels and thyroid antibodies

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Thyroid plus vitamins including folate (private blood draw required)

medichecks.com/products/thy...

Thriva Thyroid plus vitamins

thriva.co/tests/thyroid-test

Blue Horizon Thyroid Premium Gold includes vitamins

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/thyr...

Medichecks - JUST vitamin testing including folate - DIY finger prick test

medichecks.com/products/nut...

Medichecks often have special offers, if order on Thursdays

Come back with new post once you get results

Stubbzy profile image
Stubbzy

Thank you will ask for more detailed testing

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