radio-iodine uptake

as i mentioned last week my appointment with a so called endo didnt go to well. iam looking into having a second opinion and into other tests i believe i should be offered other tests. ive never had T3 checked as she said it would make no difference and the fact i was untreated for 11 years would cause no damage. ive heard there is a radio-active up-take test to measure thyroid funtion but is this only given for graves or can it also be given for hashis? the same endo said i should forget about my thyroid problem and get on with life but iam finding that difficult.

11 Replies

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  • I think your endo should forget about his career and get on with life.

  • Joyce I'm sorry the Endo was so dismissive of your plight. I've looked at your Profile and you say you were diagnosed in 2014 with underactive thyroid plus in Nov last year with hashimotos. Why did they not test your antibodies in 2014 so that you would be aware that sometimes the attack on your thyroid gland was causing unpleasant symptoms etc.

    I am a bit puzzled as above the Endo stated:-

    the fact i was untreated for 11 years would cause no damage

    I don't like the fact that your Endo said:-

    ive never had T3 checked as she said it would make no difference and the fact i was untreated for 11 years would cause no damage.

    So I am assuming your had severe symptoms and if they did do a blood test for your thyroid hormones that your TSH wasn't high enough to be diagnosed but your symptoms were diagnosed as a 'mental condition' rather than a dysfunctional thyroid gland? That wouldn't be the first time that's happened I am pretty sure.

    The Endo is wrong - it's just they are so badly trained it's unbelievable.

    Our brain contains the most T3 receptor cells and if our body isn't producing sufficient or our hormone replacement doesn't convert - we cannot function very well at all and we suffer.

    Do you take levothyroxine and what dose?

    So, I would ask your GP to do a Full Thyroid Function Test, TSH, T4, T3, Free T4 and Free T3 plus antibodies. Vitamin B12, Vit D, iron, ferritin and folate as we are usually deficient. If he wont I'd suggest a private test if you can afford it.

    The test should be at the earliest and don't eat before it although you can drink water.

    Allow 24 hours between your last dose of thyroid hormones and the test and take afterwards. Put hormones elsewhere the day before so you wont make a mistake and take them before test.

  • thanks shaws i take 75mg but one gp i saw last year said she felt i didnt need them as she says iam still borderline. i had a private scan just after xmas and the physician said i showed signs of thyroid gland fibrosis which i believe has another name and is fairly uncommon. she also said the hospital should keep a close eye on me but the endo discharged me after that first appointment. some small nodules where found they are clustered together a bit like a raspberry.i also have connective tissue fragments but not sure what it means. i have however been in contact with PALS (patient relations at the hospital where i also work). they are going to look into things for me.

  • That's good PALS are going to look into it for you and I hope you are able to get a solution and get well again.

    endocrineweb.com/conditions...

  • thats all i want really shaws. the gps for some reason assume i want the thyroid removed just because i made a remark about two cousins who recently had the op and said how well they are now.

  • is it a good idea to maybe have another scan at some point or should the one i had be enough and if so how long should i leave it before having another?

  • Joyce59,

    As far as I'm aware radioactive uptake scans are done to check whether there is a hormone secreting nodule or cyst causing hyperthyroidism.

    Being under treated for years shouldn't cause damage if you are adequately replaced now.

    Unless your TSH is suppressed <0.03 it is unlikely your FT3 will be tested in primary or secondary care. They are looking for evidence of high FT3 (hyperthyroidism) not low FT3 in hypothyroid patients. You can order a private thyroid test from Blue Horizon or Genova via thyroiduk.org.uk/tuk/testin...

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    I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

  • That Endo wants stuffing up a gum tree... sounds like anyone on the unemployment list could offer that advice... no matter what their profession! I think you wouldn't hear a word from him if he sat down...because he talks out of his backside.. x I had the uptake test over 22 years ago when I was Hyperactive...I have Hashi's now because of RAi x 2 treatments. x

  • my cat knows more than she does he keeps tapping my thyroid area and senses somethings wrong.

  • I believe that because they use dogs to detect illnesses in people nowadays. Animals have an heightened sense of smell. x

  • he certainly does in fact he was a stray kitten that turned up when i was crying after having my old cat put down. no-one claim him so i kept him.

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