Blocked ears??: Hi all, I've has subclinical... - Thyroid UK

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Blocked ears??

21 Replies

Hi all,

I've has subclinical hypothyroidism for years... The drs and are taking a 'watchful waiting' stance.

Anyway, I've had problems with my ears for years also and I'm wondering if they're linked?

Quite frequently my ears feel blocked and no amount of nose blowing changes that. Blocked to the point where I can't really hear external noises and I can hear myself all too loudly when I speak! Often feel like I need to blow my nose but nothing happens!

I've thought for awhile it was an allergy perhaps but I can't pin it to any one particular thing.

It's very frustrating. Drs just suggested a nasal spray, which is useless. 🤷🏻‍♀️

Just wondered if anyone else has this too?

21 Replies
SlowDragon profile image
SlowDragonAdministrator

Yes...linked

What are your most recent test results?

If you have thyroid antibodies and symptoms, guidelines recommend a trial of levothyroxine

Add results and ranges if you have them

You are legally entitled to printed copies of your blood test results and ranges.

The best way to get access to current and historic blood test results is to register for online access to your medical record and blood test results

UK GP practices are supposed to offer everyone online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.

Important to see exactly what has been tested and equally important what hasn’t been tested yet

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Have you had thyroid antibodies tested?

Ask GP to test vitamin levels

Low vitamin levels tend to lower TSH ....

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Is this how you do your tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus ultra vitamin

medichecks.com/products/thy...

Medichecks often have special offers, if order on Thursdays

Thriva Thyroid plus vitamins

thriva.co/tests/thyroid-test

Blue Horizon Thyroid Premium Gold includes vitamins

bluehorizonbloodtests.co.uk...

Come back with new post once you get full results

in reply toSlowDragon

Wow! Thank you, SlowDragon for such a complete answer! Very much appreciated.

I will look at registering online and see.

I know that I haven't had the antibodies test - the gp requested it but lady that actually took the blood didn't request for it to be done. GP won't retest until Dec which will be a year after my last test so I will look at a private test next month.

SlowDragon profile image
SlowDragonAdministrator

Two previous posts show levels changing ...this is typical of Hashimoto’s

Early stage Hashimoto’s frequently starts with transient hyperthyroid results before becoming increasingly hypothyroid

If TPO or TG thyroid antibodies are high this is usually due to Hashimoto’s (commonly known in UK as autoimmune thyroid disease).

About 90% of all primary hypothyroidism in Uk is due to Hashimoto’s. Low vitamin levels are particularly common with Hashimoto’s. Gluten intolerance is often a hidden issue to.

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

List of hypothyroid symptoms

thyroiduk.org/signs-symptom...

Do you have any family with autoimmune diseases ....

Hashimoto’s often starts after hormonal changes...pregnancy, menopause etc

in reply toSlowDragon

I did have low vitamin levels. I can't remember if I posted those results previously but I think they were in the 'normal' range but by a hairs breadth!

I've had two Babies in 4 years and I'm still breastfeeding one of them so would it be better to wait for thyroid tests?

SlowDragon profile image
SlowDragonAdministrator in reply to

Suggest you test ASAP

If you are low in vitamin D and breastfeeding then baby will be too

ncbi.nlm.nih.gov/pmc/articl...

laleche.org.uk/breastfeedin...

kellymom.com/nutrition/vita...

Come back with new post once you get hold of existing results

in reply toSlowDragon

Me again! I've ordered a Thyroid panel test from Thriva, which should be here today. When is the best time to take it? I know you mentioned as early as possible for the drs but I just wondered if there was an optimal time? 🤔 Happy to get up in the middle of the night if it supports my case!

SlowDragon profile image
SlowDragonAdministrator in reply to

Only test on Monday or Tuesday morning

Post back by tracked 24 hour delivery

Do test as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test

Make sure to be well hydrated by drinking plenty water day before

Stop any supplements that contain biotin a week before

If taking iron and testing ferritin stop iron levels a week before

Tips on how to do test

healthunlocked.com/thyroidu...

in reply toSlowDragon

Thank you!! Why only a mon or Tues?

SlowDragon profile image
SlowDragonAdministrator in reply to

Because you need test kit to be processed before the weekend

Currently postal service is very variable

Even the 24 hour tracked is taking 48 hours to arrive

in reply toSlowDragon

Ok great. Thank you! I'll come back with the results next week. 🙂

DippyDame profile image
DippyDame

Yes...and it has been horrible! My GP diagnosed Eustacian Tube Dysfunction but, ever cynical, I've never been convinced of the cause.

As a child I frequently had sore ears. The bunged up head/ears/nose started a few years ago but each time passed fairly quickly... but a few months ago it returned with a vengeance!

I was first prescribed a steroid spray which didn't help and made me feel queasy some weeks later my GP suggested nasal drops....same outcome.

A couple of weeks ago the problem started to ease. I had increased my T3 dose!

I need a huge dose of T3 following a very long complex thyroid journey and now seem to be on an optimal dose, my head is clear but I still have a discomfort around the glands behind my ears.

In essence I'm convinced there is a link between thyroid dysfunction and my ear problem!

Sadly medics know very little about thyroid function as this forum underlines and to be told for years that you have subclinical hypothyroidism doesn't sound like a satisfactory diagnosis. Do you have a high TSH....but lower than 10?

You have no doubt seen the new TUK website but in case not...

thyroiduk.org/signs-symptoms/

Subclinical hypothyroidism is associated with Hashimoto's, many find a gluten free diet helps.

I'm not a medic but I would hazard a guess that you should be medicated. Do you have any lab results that you can post.....you are legally entitled to ask your surgery for copies.

Rant over!

Best...

DD

in reply toDippyDame

In November TSH was 7.54 (range of 0.4-5.0)

(Previous to that in June, Aug, and Oct, it was 6.03, 5.1, 7.73).

FT4: 16, -, 13.7, 14.7

Ferritin: 28.3, -, -, 16

Active B12: 51.7, -, -, -

Folate: 8.94, -, -, 4.7

Total B12: 250, -, -, 413

Vitamin D: 59.3, -, -, -

The first and third tests were thriva with the second and fourth tests being NHS.

If I'm honest, my symptoms have always been manageable and at the moment more of an irritation than a real problem but I'd like to get ahead of it if I can so that they don't become a real issue.

The ears thing though!!! OMG. If that's related I will be hammering on the door every day! 😂

It got so bad at one point which prompted my visit to the drs and I remember thinking 'I can't live with this for the rest of my life.' It was just awful. It's since eased off but it's still every day.

SlowDragon profile image
SlowDragonAdministrator in reply to

Your ferritin is extremely low

GP should be doing full iron panel test for anaemia

Do you have heavy periods?

Very common when hypothyroid

Vitamin D is too low

GP will often only prescribe to bring levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

NHS Guidelines on dose vitamin D required

ouh.nhs.uk/osteoporosis/use...

But with Hashimoto’s, improving to around 80nmol or 100nmol by self supplementing may be better

ncbi.nlm.nih.gov/pubmed/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly via vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function. There’s a version made that also contains vitamin K2 Mk7

It’s trial and error what dose we need, with hashimoto’s we frequently need higher dose than average

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

Also read up on importance of magnesium and vitamin K2 Mk7 supplements when taking vitamin D

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

Folate and B12 likely too low as well

Supplementing a good quality daily vitamin B complex, one with folate in not folic acid may be beneficial.

chriskresser.com/folate-vs-...

B vitamins best taken after breakfast

Igennus Super B is good quality and cheap vitamin B complex. Contains folate. Full dose is two tablets per day. Many/most people may only need one tablet per day. Certainly only start on one per day (or even half tablet per day for first couple of weeks)

Or Thorne Basic B or jarrow B-right are other options that contain folate, but both are large capsules

If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before any blood tests, as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

You need both Tpo and TG thyroid antibodies tested.if either are high this confirms autoimmune thyroid disease and you should be started on levothyroxine

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

List of hypothyroid symptoms

thyroiduk.org/signs-symptom...

Mags2909 profile image
Mags2909

Hi...yes I had dry mouth ,nasal passages and a full feeling in ear for years..rheumatologist said I had Sjogrens..no antibodies every showed in blood tests to confirm this..I was 40yrs old then..Now I'm 53..menopausal...and last year was hypothyroidism subclinical..GP wouldn't start treatment . I think I had been subclinical for years ..always tired ... really stiff and sore especially in the morning...full feeling in throat ...just thought it was Sjogrens...took ibuprofen when it got bad..

In February I crashed ...TSH 125 ..T4 6

Now a lot better on 100mcg levothyroxine...My advice is to get bloods done privately ...if you have Hashimoto's..you can question GP as to why hes not going to start treatment straight away ...as you have evidence your thyroid trouble is an autoimmune disease...why suffer anymore than need be ...the autoimmune condition is always going to be there...even when you start on the medication ..Good luck x

humanbean profile image
humanbean

I've been diagnosed with Eustachian Tube Dysfunction by a GP. I've also been prescribed nasal sprays two or three times. They didn't help.

patient.info/ears-nose-thro...

I've had problems with my ears since childhood. The almost constant feelings of having blocked ears or trying to hear underwater has been a problem for the last decade (before that it was intermittent throughout life) and it badly affects how well I can hear. The severity of the problem varies from day to day but rarely goes away completely.

It hadn't occurred to me until reading this thread that it could be thyroid related - but it makes sense.

Beads profile image
Beads

Yes, beginning of the year I had a sore throat (only on one side) and a binged up ear (same side). The throat has cleared up now I'm on levo, the ear still feels like there's pressure behind it, not as bad as it was at the beginning of the year though. Just a feeling like I need to hold my nose and blow. Tinnitus on that side is worse, though better than pre-levo.

Noelnoel profile image
Noelnoel

I have blocked ears too. I think I posted something here some months ago describing my symptoms. It’s accompanied by post-nasal drip and copious amounts of catarrh. I have this plastic thingy that I attach a balloon to and insert into a nostril, pinch the other closed and then inflate by blowing. I immediately feel my ears pop and the catarrh flows down the back of my throat to be spat out. Sorry

It’s immediate relief but unfortunately doesn’t last long unless I repeat it several times a day, which I rarely do. I think though that if I did do it several times a day, over a period of time I’d get on top of the mucous build up in my sinuses which gets infected 3/4 times a year and obviously impacts on my ears and hearing

I find that when I go dairy-free, I secrete less mucous and my hearing improves. I never stay dairy-free long enough to get significant and lasting improvement. Goodness knows what that’s all about. Do I like having blocked ears? No but do I dislike it enough to give up dairy permanently? Apparently, no

It’s a bit like the saying: nothing tastes as good as skinny feels and eating cake anyway

Rottie6 profile image
Rottie6

Professor Dayan suggested this syndrome en.wikipedia.org/wiki/Pendr...

humanbean profile image
humanbean in reply toRottie6

I've never heard of that before. Interesting!

Noelnoel profile image
Noelnoel

Thank you Rottie6

I read the Wikipedia link you sent but as it doesn’t really say what the symptoms are, I can’t relate it to my ear problem

It was interesting though and worth further investigation, so I’ll read up on it as it’s something I’ve never heard of

Thank you again for bringing it to my attention

Well, took my bloods this morning for Thriva so that will be posted off shortly. With a bit of luck I'll hear by Weds, but I'd have thought by Friday.

Anxious wait now, because while I don't really want to have Hashi's or be hypo, but I really do want to have a reason for these symptoms.

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