Mercury Pharma and sore eyes

[Hookie01]

Hi all,

Was just wondering if anyone suffers with sore eyes whilst being on Mercury pharma?

Changed to Mercury Pharma about a month ago and my eyes have been awful ever since.

[SlowDragon Administrator]

Dry, gritty or swollen eyes common hypothyroid symptom

Be interesting if it improves with different brand levo

[Hookie01 in reply to SlowDragon]

I've always had dry eyes, even before being hyper and I always knew when my levels had changed because it would affect my eyes, but this is worse than normal. If it doesn't settle down the only other brand of levo left for me to try is Wockhardt, but it only comes in 25mcg's doesn't it! Can't imagine the Drs would let me have a prescription for those!!!

[SlowDragon Administrator in reply to Hookie01]

I have had extremely dry gritty eyes ever since diagnosis 28 years ago

I use hypromellose eye drops everyday.....especially at night

Use to get on prescription (NHS were paying £7-9 per bottle)

Now these are no longer available on prescription...but dirt cheap via eBay...6 bottles for £7.99 inc delivery

Personally I don’t think it’s symptom of the brand...but symptom of Hashimoto’s

My optician said I would always have dry eyes as eyelids don’t shut properly when asleep. Direct result of Hashimoto’s

[pennyannie in reply to SlowDragon]

Same thing re NHS prescription being rescinded a few years ago.

Funnily enough now I self medicate and stay away from the surgery.

My prescription is just for Vagifem but the surgery have now added back in the eye drops I once bought privately, they then prescribed, and then cancelled -

Maybe we all have a ceiling of our worth ????

[SlowDragon Administrator in reply to pennyannie]

I take the view ...they fund my liothyronine...I’d rather pay for my own eye drops and all my blood tests

[pennyannie in reply to SlowDragon]

Well yes, fully understand - I think I drew a very short straw - just a yearly TSH and then an anti depressant. When symptoms like blood in my knickers and eyes so swollen from the RAI, there was some visual proof that I wasn't making it all up !!!

[SlowDragon Administrator in reply to pennyannie]

They can’t argue with printed copies of full private testing showing vitamin deficiencies and low thyroid levels

Dio2 gene test can be helpful, assuming you test positive

[pennyannie in reply to SlowDragon]

Looking back I was too ill to keep fighting the medical system : Ironic or what :

The more I stood up for myself the more exacerbated my symptoms became :

Funnily enough when I asked my doctor about a trial of T3 in 2016 it seems she had given me a trial way back in 2007 - 2 years after RAI treatment for Graves Disease :

I do remember being told to buy a pill cutter, and evidentially it didn't work and was stopped after a month : there were no blood tests run before or after, and yes, of course a trial isn't a month, and I have no details of the dose I was taking, and can't access this information.

The only to thing to have changed in those passing 10 years is that I became increasingly unwell, had to give up work, and given anti depressants along with Levothyroxine and guess what ?

Liothyronine has increased in price exponentially - Is it 600 % now ?

When presented with my own paid for blood tests in 2016 showing a T3 at 25% and a T4 at 80% through the range the retort was :-

" Well, you're very lucky to have any T3 at all " !!!

The blood test did help get me an increase in Levothyroxine and a referral to an endo, first one in 12 years since RAI for Graves, but by the time I saw someone my TSH was suppressed and I was disqualified from the game.

So I've backed away from the game and the other surgery in my catchment area is not prepared to write a script for T3 or NDT so I D. I. Myself as my health is now too important to me to play games with.

[SlowDragon Administrator in reply to pennyannie]

I was trialled on T3 about 20 years ago....but as we all know now ...essential to have ducks in row first

All my vitamins were dire and also severe undiagnosed gluten intolerance .....meant after 2 years I gave it up and went back to just levothyroxine

Only joining here, seeing importance of OPTIMAL vitamin levels and how for majority of Hashimoto’s and Graves patients gluten intolerance is huge unrecognised issue

Private endoscopy showed severe gluten intolerance (despite zero gut symptoms).

[pennyannie in reply to SlowDragon]

Yes, totally agree, this website has, literally, saved my life :

[SlowDragon Administrator in reply to pennyannie]

Initial trial of T3 must be via endocrinologist or psychiatrist

[pennyannie in reply to SlowDragon]

If I hadn't been able to purchase some T3 for myself I was actually planning to go the psychiatric route - and now, having " my brain back " I can see and I know the implications when starved of this vital, essential thyroid hormone.

Having trialled myself with both T3 in a combo with T4 and NDT I do prefer the later as it seems " softer " on my body and I'm not so " turbo charged ".

I thought all T3 was the same, until forced to buy other than the one I started on - and the second purchase of a different brand, ordered in a very reasonable quantity, didn't suit me at all.

So tried the NDT and haven't looked back - though obviously concerned about sourcing in the longer term.

[dayoff in reply to pennyannie]

Hi Pennyannie, could you PM me your supplier for NDT Please? I have improved my vitamin status and lowered antibodies but T3 won't budge at all. Thanks

[helvella Administrator in reply to dayoff]

Please read this recent post:

And me too...

healthunlocked.com/thyroidu......

[Hookie01 in reply to SlowDragon]

It could be many things, have had a lot of stress lately which can oddly affect my eyes, was probably just coincidence that I started mercury when I eyes got bad, they are actually feeling a bit better today. I will have a look for those drops, I like systane drops but they are so bloody expensive!

[pennyannie]

Hey there Hookie

Just be sure that if you want to use some eye drops, potions or lotions that they are marked as " preservative free " :